Dear Friends and Family,
On January 23, 2017, I received the devastating news that my 3-year-old nephew, Nicholas, was diagnosed with Acute Lymphoblastic Leukemia (ALL). He was admitted to Stony Brook University Hospital, where he stayed for 2 weeks before he was well enough to go home. Since being diagnosed, Nicholas has already had to endure having a port placed inside his chest, several blood transfusions, bone marrow biopsies, 8 spinal taps, and numerous chemo treatments.
My brother and sister-in-law, Damien and Denise, were expecting their third child to be born in July. Three days after hearing that Nicholas has cancer, they learned that Denise lost her baby almost 15 weeks into her pregnancy.
Unfortunately, the heartache does not end there. We were expecting Nicky to be in full remission by the 29th day of treatment. However, a bone marrow biopsy determined that there is still a small amount of leukemia cells in his bone marrow. This led him to be classified as “high risk.” He is now being treated with a very aggressive chemo plan. He gets chemo 2-4 times a week at the clinic, takes chemo pills daily, and has regular spinal taps with chemo injected into his spinal fluid. It is likely that he will continue to need blood transfusions, and he will need to be hospitalized at times throughout his treatments.
In about 5 weeks, Nicky will again be tested to see if he is fully in remission. WE ARE PRAYING SO HARD THAT HE IS! Regardless if he’s in remission or not, he will be receiving chemotherapy for over 3 years.
Damien and Denise are still trying to accept and understand the challenges of their new life. I am starting this YouCaring account to help relieve them of one aspect of their stress and anxiety. Denise had to take a leave of absence and is unsure of when she will be able to return to work. Unfortunately, she will soon no longer be getting paid, and the cost of co-pays and unforeseen medical expenses is adding up. It is their main goal to ensure a sense of normalcy for Nicholas and his 5-year-old sister, Julianne. Any and all supports are greatly appreciated. Damien and Denise also strongly believe in the power of prayer, so even just sending a message that you are praying for their family means so much to them.
Nicholas has been a TROOPER throughout this entire ordeal. He is truly our little superhero! Please continue to keep Nicholas, Julie, Denise, & Damien in your prayers. We can’t thank you enough for all of your love and support.