Mya has been suffering from Fibro dysplasia Offician Progressiva for 12 years. In the beginning she was told she had a rare form of cancer where she took 8 different types of chemo. Nine years later we were told it was a miss diagnosis she has a very rare bone disease that's terminal. The chemo destroyed her bones and there was nothing we could do. It's been a constant battle leaning about this bone disease because it's only one doctor in the world that's affiliated and specialized in this disease who is doctor Frederick Kaplan in Philadelphia tryin to commute from marrietta to Philadelphia on a single income with a mother that's had 2 open heart surgeries and very little income this pose a a threat on our household and my being treated in Philadelphia. It's no other doctor in the world to help mya Mya's disease. Its has progress so much in the last year and a half from her breathing being compromised from her chest wall closing in so rapidly the pain in her body being excruciating and all the medications she's taking day to day to survive. All the machines and care from Dr.Kaplan helps her life expectancy to be lengthened tremendously. It's nothing worst as a mother not to be able to help and comfort your child when they're not felling well but to take her to a Dr.where they don't have any answers and there's no cure and everyone is trying everything they can it's like your constantly running into a brick wall. I pray constantly for change and to take her pain away and let her live like any child should I just can't do it alone without help I'm choosing between our roof over our heads and her care. She has a mobile wheelchair but my car is not assessable so it's takes everything out of me helping her. If you find it in your hearts to give please know it is at your mercy that God has a blessing stored for you for your blessings. We thank everyone in advance.. In Jesus name amen..