Help Millie Jones beat cancer

For: Millie Jones
East Meadow, NY
Organizer: Cass Jones
Help Millie Jones beat cancer (Millie Jones)
$4,170
of $12,000 goal
34% Complete
Raised by 51 donors

The Story

After almost a year of battling stage 4 Pancreatic Cancer, Millie is still attempting to achieve what some consider impossible. About a year ago, Millie began to feel ill. Eventually in January of 2017 she was told she may have cancer, and after a month of tests and delayed appointments, she finally got a diagnosis. Having defeated cancer once before ten years ago, Millie already had her mind set on fighting once again. However, this type of cancer was much more aggressive than the breast cancer she had battled in her past. In March of 2017 doctors explained to Millie and her family, that this was an incurable, and aggressive terminal illness. They went on to explain her chances of remission were 5%, and they did not seem very optimistic. Treating her with categorized practice rather than custom personal care, Millie’s doctors didn’t seem to have a plan, other than to inhibit the growth, offering a year or 2 of time. The Jones family responded with their obvious plan to put their best efforts forward in order for Millie to be one of the 5% of patients that go into remission. Unfortunately, the medical system did not respond with similar enthusiasm right away. Millie and her family were shocked at the approach taken to treat this cancer, and the lack of positive reinforcement offered to its victims. It was clear that this would be a team effort, requiring some major adjustments and sacrifices for Millie to have the best chance. Immediately Millie’s family and friends stepped up, doing everything possible to aid in her mission. 

The first 6 months included some of the hardest times of Millie’s life. A lack of strategic planning and no answer for a cure, was matched by countless symptoms and mishaps. This chemotherapy was no joke and the side effects were brutal. Hospitalizations and missed holidays left Millie hurt. Time off from work, and time away from friends and family took its toll. Finally in September of 2017 a scan showed that Millie was indeed defying the odds. Her metastasis in her liver was getting smaller, and so was the tumor in her pancreas. This was amazing news, but it also meant chemotherapy would continue. Within a few treatments from that time, Millie’s body began to react differently, and her doctor decided to change her regimen, until eventually she was being given a therapeutic dose. Unsure of what the future held, and how the cancer would react to this adjustment, the Jones family reached for hope once more, and pursued a second opinion of Millie’s progress and treatment options, at Cancer Treatment Centers of America in Philadelphia.

Although Millie had incorporated her own changes and adjustments, an integrative medical system would confirm her actions, and influence her future progress. Immediately after seeing the quality of care and integrative approach CTCA took to treat their patients, a co-treatment plan was initiated. Millie and her family began to feel hope once more. MSK in Rockville Centre and CTCA in Philly, would each see Millie once a month as equal parts of her bi-weekly chemo regimen. Each doctor would infuse Millie with the same chemo regimen, but implement their own tests and integrative treatment, while keeping communication open with each other. CTCA offered a convenient network of doctors, able to see Millie all within her 3 day treatment. Customized medical practices were chosen, and Millie began to feel confident in her plans. Clarity of what she could benefit from, gave her the ability to prioritize her actions, to best suit her body. 

On December 5th of 2017 MSK performed their routine CT Scan of Millie’s abdomen. The metastasis in her body had cleared. The tumor in her pancreas still remained, but was showing a decrease in size and proof that all her treatments and integrative medicine were helping.

Millie approaches her next chemo infusion and an MRI on January 17th. Whatever the next move is, the battle is far from over. Doctors will have options available for Millie, based off of her scans. The next step may require all of her strength, and a lot of recovery time. Millie’s family is doing all they can to help her, and her strength and positive mindset makes her easy to care for. Millie has always been nurturing, generous, loyal, and humble. Working with various causes, and helping many over the years, Millie still made sure to be there for loved ones. Selfless, it is rare that she would accept help, let alone ask for it. So naturally, she did not create this fundraiser, but rather her friends and family. She has agreed to allow it, although skeptical at first… Even the greatest of heroes need help to defeat their most powerful enemies. As her family and friends, we ask that you come to show your love and support at her fundraiser on January 15th 2018. This fund is to allow all of those who have been touched by Millie’s heart, to donate to her cause, and allow her to focus on her health. If you are somebody who cannot travel to Millie’s fundraiser, then this page will allow you to show your love and support! You can forward any other inquiries, offers to volunteer to help with this event, or donations to her fund, to [email protected] … Thank you for your time, prayers, and support, they are truly appreciated. 


Fundraiser Updates

Posted on February 13, 2018

Posted on February 13, 2018

THANK YOU. 

Almost a year later, all the doubts and pre-conceptions of what would "most likely happen", have been defied. Every prayer, hug, and message of hope, has built up Millie, and given her the courage and strength she needs. As we reach a milestone of treatment, as her family, we think back and find amazement in how much has been accomplished, and how blessed we are. A year ago, Millie's previous doctors refused to give her options, hope, or a plan for the future. They didn't support her desire to use integrative medicine, and would wait until symptoms or conditions were severe before considering options. Reactive medicine, has been an issue in the health of many, across the country. Doctors choosing not to support each other or communicate, while their patients are the ones suffering the consequences of their actions. After a few months of seeing Millie struggle, her family could stand this no longer. Her diet, regardless of doctors opinions, did matter immensely. Her supplements (vitamins), were vital to her progress, even though her doctors would not even speak of them. It is clear that the options for hope in this country, are based off categories instead of customized for each person. Could we stand up and use our experiences to change the world? Maybe. For now we are going to stand up and fight for the life of a woman, who each of us care dearly for, to give her the best chance at the battle for her life. To most doctors, insurance, and some in disbelief, she is merely an underdog. They however, do not know Millie Jones. The woman has fought from birth, never receiving a single thing without fighting for it , and when doctors gave up, her family and friends stood up. Your health issues can be the fault of many, but its your own responsibility to fix it, or find those who can. 

Currently in Philadelphia, Millie is receiving Radiation therapy for the month, in conjunction with chemotherapy, while utilizing a unique machine for Hypothermia treatment. New symptoms are being felt, due to the aggressive nature of the treatments, and changes in her regimen. Luckily, CTCA in Philadelphia is ahead of the game, and has prepared Millie and her family, while being immediately available to them should complications arise. 

Thinking back, it seems so long ago, that doctors at previous hospitals had refused to treat Millie in such an aggressive fashion, because in their eyes she was categorized as a lost cause. With such a lack of effort being offered by doctors, how could survival rates even be estimated? How could chances for patients improve, if most doctors are not even willing to try or suggest the attempt to their patients?  The answer, they cant. 5% remission, based off a study of patients who were told they were a lost cause, is a poor representation of the odds. Thankfully, the medical industry failing miserable in this fashion, has made it that much easier to defy the odds for us. 

I hope somebody reads this, or hears about Millie's story, and passes along the message that even when the odds are not in your favor, it is your choice whether you would like to try or not. There are cancer centers, and doctors, who do work together and communicate to support their patients. Lucky for us, at CTCA they are all under one roof and are more efficient than any medical team or hospital we know of. More so, if you are as blessed as Millie and her family, your loved ones and friends fill in the gaps , where doubt and disbelief may lie, which brings us to never ending gratitude.

Thank you. Thank you for donations, prayers, hugs, love, belief, smiles, and every other amazing thing that has been offered to support Millie and her family. This wonder woman, was the ultimate underdog, and with your love and support, she is a million times stronger than ever before. She is receiving a treatment that other hospitals would not even consider, and that up to the first day of treatment, had to be fought for. The fight continues, and this is a vital round in the match. We her family, cannot express our gratitude enough, for every person who has contributed in their own way. Each one of you is a part of our miracle, as we continue to stand behind our "Wonder Woman", the under dog, and watch her thrive.  


Posted on January 31, 2018

UpdateImage

Posted on January 31, 2018

Overwhelmed by joy from our fundraiser, where we had raised $10k , and had an unforgettable night, the Jones family headed to their cancer center for Millie's next MRI. Their first day in Philadelphia they took their MRI, got their results in their oncology appointment, and went for what might be Millie's last chemo inter venous infusion. After remarkable results and immense support from her doctors, we sat as a family with our next plan of attack in Millie's treatment. Millie will now be a full time patient of CTCA in Philadelphia for her Cancer Treatment. She will be using integrative medicine, along with chemo, and for the next 6 weeks a new treatment of targeted radiation. This new regimen will hopefully cause more progress for Millie's body and give her a chance to be a candidate for future procedures.

When we returned from Philly, it all set in. We had the best team of family and friends, and were in the best position possible, in one of life's toughest situations. The Jones family thanks everyone for everything they have done, big and small. The blessings and overwhelming support is a major reason for Millie's success, as she continues to fight the ultimate fight.


Posted on January 5, 2018

Posted on January 5, 2018

For starters, we want to thank all the donors, and those who shared our site. We feel truly blessed already and are so thankful for the response we are receiving. 

Event Updates : We are still collecting donations for the Chinese auction at our event.  We will also be preselling admission in multiple locations this upcoming week.

Millie's updates : Every day is a blessing and we are certainly still counting ours as we are heading into the hardest part of our battle. Other than some fatigue, our Wonder Woman is hanging in there. We are approaching our next rounds of testing and doing everything in our power to help Millie's body kick this cancers ass! Feel free to send loving messages and things to make her smile as we believe this is the greatest medicine for her. 

Lastly... the Wonder Woman thing. I am sure you've seen the flyers, and if not, at some point you have seen Millie or one her supporters wearing these nifty wonder woman superhero themed bracelets. Before the recent cinematic release of the new Wonder Woman, Millie was diagnosed with this cancer. Each type of medicine has been considered, but one of the strongest is the power of positive thought. Wonder woman traditionally wears cuffs which give her strength and power. These bracelets serve as our mantra, and all who are wearing the bracelets are in fact, passing along some of their strength and power to Millie's bracelets. Among the many feelings this brings about, it also contributes to Millie's courage, and the comforting feeling of knowing she is not alone..

More updates to come! Email [email protected] with any questions, inquiries, or donations! 


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