Please help Mike Miller with his upcoming medical expenses!

For: Michael R. Miller
Urbana, IL
Organizer: Todd Lindsey
Please help Mike Miller with his upcoming medical expenses! (Michael R. Miller)
$24,786
of $100,000 goal.
Raised by 182 donors
24% Complete

The Story

Please consider helping our friend, Mike Miller, if you can in any way...he's got a long road ahead and needs our help! I'm his manager in our band, The Boat Drunks, but I consider him my friend first and will gladly spearhead this effort. I'll let Mike explain his situation below. Thank you all in advance for anything you can do.

Todd Lindsey

From Mike:

Hello Friends,

I’m going to try to make a very complicated and complex situation as understandable as I know how to in as few words as possible.

Those of you who are close friends of mine are aware that I have a blood disorder called Polycythemia Vera and that I have been receiving low-dose chemotherapy to manage this condition since 2009. For the most part, I have tolerated this treatment well.
Over the last few months I have been noticing that I have been getting more and more easily winded and just generally feeling run down. On April 14th, I was able to make contact with my hematologist back in Charleston, SC and he sent orders for me to undergo testing locally and have the results sent to him. I did this on Monday, the 17th of April and the testing showed that I was in extreme distress and was immediately hospitalized and given a transfusion.

The following day, I had a bone marrow biopsy performed (editor’s note, if anyone ever offers to give you one of those just for fun, I would take a pass…) Today, my local hematologist went over the results with me. I’ll try to condense this down as best as I can:

I have Myelodysplastic Syndrome or MDS for short. This was brought on by my underlying blood disorder. The medical field of study that deals with this sort of thing, rates the individual cases based on a scoring system called the IPSS-R. It stands for International Prognostic Scoring System (Revised). My particular case falls between the “High Risk” and “Very High Risk,” which as I’m sure you might suspect are the two worst possible scores.

The only curative treatment that offers any chance of long-term survival is an Allogenic Bone Marrow Transplant which, if it happens will be months down the road. Let’s just say that there are lots of hurdles to clear, not the least of which is my being uninsured.

Over the next several months, my doctor plans to monitor my blood counts weekly and to try to keep my numbers at an acceptable level through what is called “supportive care.” It is my intention, during that time, to do my best to honor all performing commitments. In the mean time, I would appreciate your prayers and support.

Fundraiser Updates

Posted on September 10, 2017

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Posted on September 10, 2017

Hello friends...

While I wait out Irma news from all of Florida and specifically one of my favorite places in the world to go visit, Key West, I thought it would be a good time for an update. Mike is headed to Bethesda, Maryland today for a week of testing at NIH that hopefully will be his last hurdle to clear prior to being admitted in the clinical trial there for a bone marrow transplant. We are all optimistic that the light we see at the end of this tunnel is a positive beacon for a long-term recovery for Mike. Your donations to date from all the wonderful events, fundraisers, tip jars, cash stuffed in my pocket, etc. total over $61,000. Keep it coming so Mike can get the care he needs and deserves once he's hopefully admitted at NIH! I'll update more as I hear from him...but for now, please keep him, all of our friends in Key West and all of Florida in your thoughts. Here's to you, Chris and Trish Hambrook!

Posted on August 22, 2017

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Posted on August 22, 2017

The finished product...

Posted on August 22, 2017

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Posted on August 22, 2017

Another "positive" update from Mike...😉. Keep the good vibes coming!

Todd




OK... One of the most amazing people I have ever known has "suggested" that I could benefit from a more positive outlook and told me that I should start using words like "when" as opposed to "if," etc.... So here goes:

WHEN I get accepted to this upcoming clinical trial and receive my bone marrow transplant, they will be intentionally destroying my original bone marrow with strong doses of chemo-therapy and possibly radiation. This is going to cause my hair (such as it is) to fall out. Therefore, rather than seeing it go to waste on some hospital floor, I decided to take preemptive action and donated it to Locks of Love to be made into a wig for a pediatric cancer patient.

So here it is..... my first haircut in seven years. Thank you Jan Orr for documenting the transition and for buying me ice cream after. :-)

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