Please help Mike Miller with his upcoming medical expenses!

For: Michael R. Miller
Urbana, IL
Organizer: Todd Lindsey
Please help Mike Miller with his upcoming medical expenses! (Michael R. Miller)
$27,695
of $100,000 goal
27% Complete
Raised by 197 donors

The Story

Please consider helping our friend, Mike Miller, if you can in any way...he's got a long road ahead and needs our help! I'm his manager in our band, The Boat Drunks, but I consider him my friend first and will gladly spearhead this effort. I'll let Mike explain his situation below. Thank you all in advance for anything you can do.

Todd Lindsey

From Mike:

Hello Friends,

I’m going to try to make a very complicated and complex situation as understandable as I know how to in as few words as possible.

Those of you who are close friends of mine are aware that I have a blood disorder called Polycythemia Vera and that I have been receiving low-dose chemotherapy to manage this condition since 2009. For the most part, I have tolerated this treatment well.
Over the last few months I have been noticing that I have been getting more and more easily winded and just generally feeling run down. On April 14th, I was able to make contact with my hematologist back in Charleston, SC and he sent orders for me to undergo testing locally and have the results sent to him. I did this on Monday, the 17th of April and the testing showed that I was in extreme distress and was immediately hospitalized and given a transfusion.

The following day, I had a bone marrow biopsy performed (editor’s note, if anyone ever offers to give you one of those just for fun, I would take a pass…) Today, my local hematologist went over the results with me. I’ll try to condense this down as best as I can:

I have Myelodysplastic Syndrome or MDS for short. This was brought on by my underlying blood disorder. The medical field of study that deals with this sort of thing, rates the individual cases based on a scoring system called the IPSS-R. It stands for International Prognostic Scoring System (Revised). My particular case falls between the “High Risk” and “Very High Risk,” which as I’m sure you might suspect are the two worst possible scores.

The only curative treatment that offers any chance of long-term survival is an Allogenic Bone Marrow Transplant which, if it happens will be months down the road. Let’s just say that there are lots of hurdles to clear, not the least of which is my being uninsured.

Over the next several months, my doctor plans to monitor my blood counts weekly and to try to keep my numbers at an acceptable level through what is called “supportive care.” It is my intention, during that time, to do my best to honor all performing commitments. In the mean time, I would appreciate your prayers and support.

Fundraiser Updates

Posted on April 14, 2018

Posted on April 14, 2018

I'm happy to post any kind of update on Mike's condition, but these are easy and can keep coming...way to go, Miller!

Todd


I think this qualifies as a reason for an update. I've been released from the hospital. My blood numbers have improved enough that they've allowed me to move back to the apartment. I'm on a lot of medications, including anti-rejection drugs which suppress my immune system so I'm still under a lot of restrictions, but I'm out!

I'm 15 days post transplant and, according to the doctors, there are a lot of potential complications that did NOT occur, so I've been very fortunate so far. As one of the doctors said, "Every day that passes without a major complication is a victory."

I'm still going to be in the Bethesda area for the foreseeable future as I visit the clinic about 3 days a week. I guess you could call this "phase II." There's still a long way to go but I'm thankful that I got this far without any major setbacks.

I want to thank you all for your cards, packages, love and support. I couldn't have done it without you. I'll do my best to keep you informed as things progress.

Mike


Posted on March 30, 2018

Posted on March 30, 2018

Update from Bethesda:

The bone marrow transplant started just before midnight local time last night and was completed in a bit over two hours. Last report was all went well and Mike says he feels fine! More to come, but it's a great start...Happy new Birthday, Michael!

Todd

Posted on March 22, 2018

Posted on March 22, 2018

Hey friends,

The latest update from Mike below, and, frankly, the one I’ve been waiting for: we have a transplant date! Keep praying...and thanks.

Todd


Hello Friends. Here's the latest update on things here at NIH. My biopsy results came back yesterday and my blast cells were low enough that they are continuing on to the next phase. I have been re-admitted to the hospital and I start my (hopefully) last round of chemo tomorrow. My transplant is scheduled for March 29th! I'll try to let you know if anything changes.

For those of you who have been contacting me directly, depending on how I am tolerating this next round of chemotherapy, I may or may not be able to respond right away. I apologize in advance.

About the Organizer

Report Fundraiser

Report Fundraiser

*Please report fraud and Terms of Service violations only. Personal disputes will not be reviewed.

* YouCaring will not use or share your phone number or other information for marketing purposes.

Comments

Supporters

Grab Our Widget

Please help Mike Miller with his upcoming medical expenses!

Grab Our Widget
Donate NowFacebook Share Button