Meeting my terminally ill husband online was a beautiful miracle! Now, we're praying for another miracle!
It was in 2009, just seven short years ago, that my dear husband, Michael Thompson, was diagnosed with Pulmonary Alveolar Proteinosis. "I'm sorry to say," said the doctor nervously, "that there is no known cure. PAP is a terminal lung disease. You're probably only going to live for five more years. You'll be lucky to make it to age forty."
It must have felt like a kick in the stomach. Unfortunately, I didn't know him then. I wish I had so we could have gone through it together.
How We Met
Michael and I met through an online dating site in March of 2012. He was very honest and told me in his very first email that we was terminally ill with Pulmonary Alveolar Proteinosis. But I wanted to be Mrs. Thompson, even if it was only for one day! So we met in person on April 7th and were married fourteen days later on April 21st, 2012. We married in haste...and it was the best decision we ever made!
What in the World is PAP?
Well, it's an extremely rare lung disease. So rare, that less than 500 people diagnosed in the United States suffer from it. So rare, that it took the doctors two years to diagnose it.
Basically, it's an auto-immune disease that causes the body to produce extreme amounts of the natural protective protein coating in the lungs. Basically, your fate is to drown to death in your own protein. Michael lives every day with this fate hanging over his head. Any day may be his last.
While suffering from PAP, rheumatoid arthritis, fibromyalgia, spinal stenosis and heart disease, he is still the most cheerful, positive, creative and loving person that I know. And I'm so lucky to have him!
Funds are extremely tight. I'm doing my damnedest to scrimp, save and scratch to make a few bucks from eBay, customized pyrography artwork and freelance writing. But there's no money for anything extra. And Michael has so many extra needs. A travel oxygen concentrator. Dentures to replace the mouthful of beautiful teeth Michael lost due to medication side-effects. A tub so he can soak in hot, hot water when fibro & rheumatoid make his life a misery and the funds to finish installing the On-Demand hot water system we own but couldn't install yet. (We only have a shower with very limited hot water now and he sure misses being able to take a hot bath. Sometimes it's the only thing that eases the pain.)
And eventually, a lung lavage or two (washing out the lungs with warm saline to remove protein build-up.) This procedure costs over $100,000 and is NOT covered by our insurance. And usually more than one lavage is needed.
Please be an angel in our lives and help to ease the burden of these ongoing expenses.
We thank you very much. God bless you for your help!
If you prefer to mail your donation, please make the check payable to "Help Michael Breathe" and mail to...
Help Michael Breathe
c/o Lenora Thompson
P.O. Box 3
Gully, MN 56646
Like, Share and Follow Michael's journey and battle to breathe at www.facebook.com/helpmichaelbreathe