Wheels for Evie - ongoing support

For: Evelyne
Organizer: Louise Blencowe
Wheels for Evie - ongoing support (Evelyne)
of $25,000 goal.
Raised by 76 donors
68% Complete

The Story

Evelyne was born with the rare condition Beals Syndrome. It is a connective tissue disorder that effects all her joints. Her main issues so far have been managing a worsening scoliosis, which is curvature of the spine. She wears a brace or a cast constantly and has restrictive lung disease as a result of the reduced space in her chest.

Although she appears active, and she desires to be so, she struggles with energy levels and pain. At the moment at school she uses a pram for mobility for the times in the day she is tired. As a 6 year old, the pram is no longer appropriate for her age and thus we are looking to the next phase of using a wheelchair instead.

The wheelchair will give her independence, allow rest, enable her aide to move her around the school and give another source of seating. We have been advised on a particular manual wheelchair initially that the teachers can push her in ($5000) then we can later attach a motor onto it which will enable her to push herself as she gets older ($10990).

You can read more about Beals Syndrome and Evelyne's story on my blog www.lifewithbeals.blogspot.com

I am also selling a variety of childrens clothes and homemade items via the facebook page 

Fundraiser Updates

Posted on March 3, 2015

Posted on March 3, 2015

The 'Wheels' have arrived!

Thanks to the amazing generosity of so many people, the 'Wheels for Evie' wheelchair arrived last week. There was a lot of excitement (from all the family).

We are so excited about this chair in so many ways. It is a manual (Zippy) chair base, but has a power attachment (ZX1). As a result we have two chairs in one. This means we can still use the lightweight manual chair and fold it up in the car, but that she can also independently attach it to a power base. 

This amazing chair gives her independence and control over her own mobility. Yet we don't have to have a modified car like with most power wheelchairs. The school has paths and ramps so she can access all areas. The main issue we have to deal with is stopping her from increasing the speed and basic driver training! She wouldn't let me put 'L' plates on, but there have been a few moments I felt they were needed. She's perfecting wheelies and donuts.

We are still astounded of the generosity from friends, family, church, school, community, anonymous donations, Lions, as well as complete strangers. We are very thankful to God for the amazing supports he has given us.

First trial                         -                         Off- road                         -                       Watch out Sam!

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