We have finally been able to get Wesley some help, this has been frustrating to say the list. He can't qualify for assistane in just about everything we applied for because he had income last year, well last year he didn't have cancer and of course he had income he worked, he didn't live off of the government for no reason so you punish him for it by first of all cancelling the program that his previous employeer had insurance through when the sequester went into effect, and then turning him down for assistance because he worked, even through the first three months of chemo he worked, even when he got sent to the ER from work during chemo treatment he worked, he did that until he could do it no longer due to his health, so lets punish him for it ~thank you US Government ~ if he hadn't worked and had been a slug things would be fine everything would have been paid, in the three months he had not treatment his tumor spread. MD Anderson finally came through and gave him 50% financing but the other 50% he is supposed to pay upfront every visit so he is still in REAL need of assistance. Thank you to everyone who is supporting him through prayer and through donation.
Wesleys PET scan just came back and the news is not good, the tumor is taking on more dye which means it is more active, the disease has spread all over his chest and to a few other areas, he is in desperate need of funds having lost all insurance.
I just posted an image of Wesleys tumor of diagnosis in December, the two black areas are his lungs, the white mass covering the area where a visible heart should be is his tumor.
Wes is still fighting cancer please consider making a donation.
Wesley had his PET scan last week and it did not go as well as hoped, his tumor is still showing very HOT even after the 5 chemo treatments he has had so far, which means it is still very active and due to the fact that it is sitting on top of his heart his doctor has great concern about doing any radiation which could permanently damage his heart, they have scheduled more chemo sessions at this time and will decide with the next PET scan a course of action, stem cell and bone marrow transplants give him a greater risk of re-occurance but radiation gives him a great risk of premanent heart damage, so we just have to wait and see at them moment.
A few odd bits of news. My pet scan is still showing pretty hot. While the size of the tumor has decreased it's still taking in a lot of dye, meaning its still really active. I have 3 more chemo treatments minimum. Then my oncologist wants to talk about radiation or not. Sadly the active part of the tumor is directly over my heart, radiation treatment has the potential to really mess up my heart, so we may opt to do stem cell replacement therapy or marrow transplant instead. So, I am already at a higher risk for relapse because of how "hot" the tumor is after all these treatments... Good news, my blood cell counts are pretty normal. She said sometimes bone marrow boosts cell production as a defense response to chemo killing everything, so that's what my body decided to do. (Good news for my busted leg) she actually asked if i skipped a treatment. so....that's my long-winded bi-weekly update on what's going on. Thanks again to everyone for being supportive and super awesome. You guys rock, and I'm super thankful the universe has surrounded me with so many good people. I'll leave you with this, adriomyacin. They call it the red devil and its my first drug in my 4 drug treatment....looks really cool, always scares me when I use the restroom after this stuff. "Don't worry, your not peeing blood"
Wesley has a PET scan Monday to check and see if the size of his tumor has reduced and then we will have an updated treatment plan for him.
Wesley should be getting a scan this week to find out if his tumor has reduced any, he is on his fourth chemo treatment.
Thanks everyone for you support.
Wesley has now had 3 sessions of chemo, before the 3rd session he shaved his head, he said he wanted to loose his hair on his own terms and is now "Rockin the Cancer Look" per his own words.
Wesley received good news yesterday, the cancer has not spread into his blood.
He had his first round of Chemo this morning and so far is feeling okay.