Note from Matt: This fundraiser is now closed. Thank you all for helping fund my treatment! :)
Please help Matt!
I am sending out this plea for help for my 26 year old son. He has chronic Lyme disease, and he is not covered under the Canadian medical system for treatment. Even worse, this terrible debilitating disease is not even recognized by the Canadian medical system, so even getting a doctor's note for time off is difficult. We are now faced with searching for treatment in the US. The expense of this endeavour to help him is staggering.
We have arranged treatment at the Sponaugle clinic in Florida. This involves going down to Florida for 3 days for blood tests. We are told this involves about 37 vials of blood and could take a couple of days depending on Matt's physical condition. As you can imagine this is quite taxing on a body that is already under siege. The cost of the initial tests are in the $5,000.00 range, and that is just the beginning. In all we are estimating his treatment will cost about $4,300.00 per week. We are not sure how long this will take but typically it takes around 12 weeks. This estimation does not include additional supplements or travel and accommodations.
Matt managed to earn a degree in Kinesiology and graduated from Brock University with honours as well as keep a part time job despite the everyday challenges he faces. He has always been responsible and diligent. He hopes to further his education and get into research in the health sciences. He has a good job with the energy department within the Alberta government and has come back to his family home in Niagara for support, as there is no family support out there. We are hoping that he will be able to return to a normal life and keep his job, returning to it once treatment is done.
Currently, the Lyme disease has affected the left side of his body. As seen in the photo gallery, his left shoulder and arm are severely wasted, and have become weak. He walks with a cane on days when his left leg cannot be trusted. Sometimes he stumbles as his leg cannot seem to bear his weight. He is 6 feet tall and weights about 135 pounds. The challenges do not end there. He has trouble sleeping (usually about 5 hours per night), has terrible brain fog, heart palpitations, constant muscle twitching, and has become light sensitive, so some days he fairs best in a dark room.
I wake up every morning thinking that this is just a nightmare, but unfortunately this is Matt's reality. All of this suffering for over 10 years, enduring countless tests and doctors appointments and untold expense.. only to be told to come back in a year, they don't know what's wrong. All this suffering and turmoil, not from leading an unhealthy lifestyle, not the affects of using drugs or alcohol but from the bite of a tick.
Now that we have finally found a path forward, we need to get him help. If you can help us either with donations of prizes to raffle off, a venue to hold a fund raiser or a cash donation, it would be very helpful.
Thank you for your time and attention. I hope you can help us put an end to Matt's nightmare.
- Debbie Risi