Lyme Disease Treatment Fundraiser - Bite Back 4 Chantelle

For: Chantelle Lewis - Chronic Lyme Disease Treatment
Organizer: Chantelle Lewis
Lyme Disease Treatment Fundraiser - Bite Back 4 Chantelle (Chantelle Lewis - Chronic Lyme Disease Treatment)
£7,844
of £30,000 goal.
Raised by 162 donors
26% Complete

The Story

I am Chantelle, I'm 32 years old, and have been battling with Chronic Lyme Disease and co-infections for almost 4 years now.

I was left undiagnosed for 14 months, and within that time it allowed for the multiple tick-borne infections to diseminate throughout my entire body. As a result of this I am in constant pain and have spent most of my time house-bound. Things are improving slowly but surely and already I can do so much more that I could even 6 months ago this gives me so much hope for future healing and better health. 

I am thankful for such a supportive network of family, friends and also the amazing generosity from people who didn't know me; all of whom contribted to my initial fundraising page and enabled me to travel to a specialised clinic in California for almost 4 months. There I received further diagnostic testing and intensive medical treatment, from which I made noticeable progress. I returned to the US in 2015 for further intravenous treatment which has continued to get me more steps closer to remission. 

My treatment is on-going, with IV antibiotics through a PICC line, oral antibioitcs and herbal supplements, of which I am still self funding. I have already spent £65,000+ on medical tests, two trips to the specialist clinic and am now 3 years into treatment. I have seen so many physical and neurological signs of improvement throughout the past 3 years, but it remains a bumpy road to remission with continued IV &
oral medication daily. 

This fundraiser will allow me to continue with intensive medical treatment and return to the clinic in 2017 for a mandatory check in with the doctors which is vitally important for my recovery from this debilitating illness. It will also allow me to fund my treatment whilst here in the UK which physically I can't afford to stop. Everything has to be self funded; Skype consultations with doctors, every needle, bag of fluid, syringe, dressng for picc line, antibiotics, supplements, alternative treatments, basically everything I need to heal, not to mention it also all has to be shipped from the US! 
The NHS continue to have severe difficulty understanding or treating this disease, therefore the intravenous antibiotics and supportive therapies are not readily available to me in the UK, thus my recovery is compromised greatly. 
I am so determined to fight this disease and with the help of donations and the Lyme literate doctors in the USA, I really do have a great chance, not to mention hope. Treatment is a long and gruelling process, but I keep in mind the end goal of becoming symptom free and with a prognosis of remission. 
Thank you so much for supporting me on this journey, it is really appreciated. There will be life beyond Lyme Disease and I will be sure to discover it... 
‘If you keep hope alive, it will keep you alive’.
Chantelle Lewis xXx ⚓️💚💫💊

Fundraiser Updates

Posted on August 3, 2016

Posted on August 3, 2016

"If you keep hope alive it will keep you alive".

Hello to all you wonderful people... Yes YOU are A...mazing, because every pound donated to my on-going fundraising campaigns from you all has literally saved my life. I will forever be grateful, because each and everyone of you is giving me the chance and hope of living life to the full again. Goal remission is still very much in progress... I'm still fighting and 'biting back' against Lyme Disease & multiple Co-infections on a daily basis, but I do feel like I am making huge progress.

I fell sick 4 years ago, thanks to the bite of a tiny tick, and as many of you know it took 14 months to get a diagnosis and answers as to why my health had rapidly declined. I was extremely un-well and a  shadow of my former energetic self. I had to give up work, was bed or house  bound and literally fighting for my life. Eventually I got a diagnosis, and just having an answer finally was a relief, but little did I know at the time the complications and controversies surrounding treatment. After sending my blood sample to the U.S and having a highly positive lab test for Lyme Disease 'Borrelia Burgforferi', I literally begged for treatment from multiple teams of professionals in the UK, but the medical system here remain in the dark with regards to the complexities of this disease in its late stage. Not only did they not know how to treat Lyme in this Chronic form, but they would also NOT accept my positive lab tests from abroad. I was left in the dark, with little hope and looking at a future with more symptoms than I could remember. I was barely mobile, house bound and the possibility of death felt far too real. This prospect was beyond scary, never could I have imagined such a predicament where I was fighting for my life as well as fighting the medical system.

Then came the silver lining...

My family, friends and even complete strangers were rallying around to drive forward my initial fundraising campaign to enable me to get me to California to a specialist clinic for intensive intravenous antibiotics and other treatments. The team of Lyme literate doctors there have a world of knowledge and experience on chronic and complex illness and back in December 2013, my healing journey began under the guidance of these incredible doctors.

I am now 2 & 1/2 years into treatment and it's definitely one of the most challenging times of my life, but as time passes, thing are improving, symptoms lessening and we are slowly but surely killing of these bugs which have literally invaded my body from top to toe; my brain, joints, gut, nervous system etc.

Treamtnet is intense, and  following such an intricate protocol means that taking my oral medications and running my intravenous medications through my PICC line is pretty much a full time job. It comes with the highs, the lows, the stress, the tears, the fears and the multiple emergency trips to hopsital and the unpredictable complications of this disease.

With treatment being so complex and long term,  My fundraising is continuous and to date I have spent over £65,000 on medications, consultations, 2 trips to California for treatment totalling 12 months and my battle against the bugs continues. I will need to return to the US in the spring of 2017 and I continue to pay for monthly Skype consultations with my US Lyme doctor. I still have to pay and ship every medication, PICC line dressing supplies, IV fluids, syringes... Basically every aspect of my medical
care that is predominantly saving my life. I don't have an option of stopping treatment, as this would be hugely detrimental to my health and I am not ready to be 6 feet under yet, I'm only 31! There is so much more life to be lived, goals to be achieved and fun to be had... and I am not going to stop until I am in remission and hopefully have a great percentage of my health back.

The medicine is working, things are improving, I have more energy, I leave my bed and the house, and I don't need help to shower. This is huge, life was so very different and beyond difficult before treatment and at times I felt like I was dying. I still have a lot of pain, too many symptoms and an array of infections and virus I continue to battle, but the level of these is lowering. The treatment and perseverance is working and I can really visualise life on the other side of Lyme. 

Thnkyou so much to all of you who have kindly supported me on this journey, donated to my treatment and given me the moral support to keep fighting on those toughest of days/weeks. Eventually when I make it into remission, I really will do all I can to pay this kindness and generosity forward and help others in whatever battle they may be facing. For now I will continue my fight against Lyme and I look forward to the day I can look back on this nightmare from
the other side. Please know that every penny/pound donated is not taken for granted and is making this Treamtnet possible.
Much love & huge thanks always... Chantelle xXx 

#ChantelleFightsLyme #Hope #BiteBack #DontStopBelieving 


Posted on March 2, 2015

Posted on March 2, 2015

Hello... I would like to say a huge THANKYOU to all of you who have kindly donated so far. It is really generous and hugely appreciated. I have just reached over the £2,000 mark, and it is so overwhelming that there are so many of you who are helping me at this difficult time. This fundrasing is massivley important, as I cant access the medical treatment I so desperatly need here in the UK. Having enough money to continue treatment overseas really is my only chance of fighting this disease into remission. I am doing my best to stay mentally strong and positive, even though I seem to be getting weaker by the day. I have already fought for this long, and I know giving up is not an option. Your support means everything to me and I am so truly grateful. To follow my journey in more depth, you can find links to my Lyme blog and social media pages on my website at www.biteback4chantelle.co.uk
Much Love, Chantelle Lewis Xx


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