Leif's Life

For: Leif O. Greening-Hamlin
Organizer: Dana Hoey
Leif's Life (Leif O. Greening-Hamlin)
of $100,000 goal
55% Complete
Raised by 442 donors
This fundraiser is closed. Thank you for your support!

The Story

Leif Osiris Greening-Hamlin was a happy toddler who loved trucks, trains, “diggers,” music and dancing and his two small dogs, Freud and “Izzy” (Isabel).

On March 22nd,, 2013, the day before his second birthday, he was diagnosed with Ewing's Sarcoma, an uncommon and voracious bone cancer. His tumor was localized in his shoulder blade and the surrounding tissue, and so considered treatable. He was given a 70 to 75% chance of long-term survival. The treatment plan involved approximately nine months of intensive chemotherapy and surgery to eliminate the main bulk of the tumor. 

But during his initial course of chemotherapy something else went wrong. The chemo brought on veno-occlusive disease, a rare form of liver failure that put him in the ICU, hovering near death for weeks.  Thankfully, he survived, but he ended up with long-term damage in many organs as well as brain damage.

Leif's year-long course of chemotherapy is now over. His cancer is currently in remission, and in many respects he is doing amazingly well.  But the underlying side-effects are still there.  Leif is trying to eat and walk again, and we don't know what the effects of the brain damage will be.

Your donations help recoup lost wages and pay for housing, food, insurance and for care that insurance won't cover, like high-quality physical therapy. Thank you for your generosity.

Mary, Eric and Leif

Fundraiser Updates

Posted on September 21, 2013

Posted on September 21, 2013

We are so grateful for all you have done for us. Thank you again. Radiation is over. 8 chemo cycles complete, 9 to go. 4 months straight inpatient, surviving and then recovering from liver failure. And hooray! Leif will (probably) be discharged next week! So Mary, Eric and Leif will leave our hospital existence and feel air, see the moon and sun together, go back to cosleeping in our Oakland home, and be human for a bit. The 9 more cycles of chemo will take us into next spring if it goes well. And most of the chemo requires biweekly inpatient stays. So it's a long hard, haul. Beautiful Leif can play and laught and hug and talk and cuddle and be Leif. But all his organs have a greater or lesser degree of damage that we will need to tend to for his life span. And the cancer fight continues. But with actual hope. Thank you for the hope you've given us when we had none. Thank you for your love and support.
Mary C. Greening, Eric Hamlin, Leif Osiris Greening-Hamlin

Posted on July 1, 2013

Posted on July 1, 2013

The last update was posted at one of Leif's lowest points.  I'm happy to report that since that nadir, things have only improved.  Just last week the breathing tube was removed from his throat, and he has been awake and talking.  He asks for his favorite toys, movies and books, albiet in a tiny quavering voice.  

They plan to release him from the PICU sometime in the next few days and shortly thereafter, they anticipate that he will be well enough to continue chemotherapy.  Time will tell how well he does, but for now, he's on the mend.

Posted on June 13, 2013

Posted on June 13, 2013

Unfortunately right after our previous, excited, update, we got more bad news: Leif has an extensive fungal infection in his lungs and some kind of infection in his brain.  Fungal infections are difficult to treat, and the PICU staff is apprehensive about his chances.  On the other hand, he looks good clinically (meaning how he's doing overall, what they can glean by looking at him).  So that weighs on the positive side.

Thank you all for your continued support.  It really helps.

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