Kaitlin Needs Your Help!

For: Come Together for Kaitlin
Organizer: Becky Bowman
$3,780
of $5,000 goal.
Raised by 72 donors
75% Complete
This fundraiser is closed. Thank you for your support!

The Story

Kaitlin is an 8 yr old girl who is diagnosed with a rare and fatal neurodegenerative disease called late infanitle neuronal ceroid lipofuscinosis. At this time, the disease is neither preventable or treatable. Kaitlin has been given a life expectancy of 8-12 yrs old.

As Kaitlin gets older and her needs increase, it becomes harder to provide everything that she needs. Kaitlin has copays for appointments and prescriptions that are just not covered by insurance. These are out of pocket every month and a necessity to continue her quality of life. Kaitlin also is on a blended diet of all natural and organic foods to keep her body as healthy as possible as well as improve her seizure control. Even her grocery bill every month has become yet another hurdle in our lives.

We purchased a handicap van for Kaitlin's transport last year. This is the only way that we can get Kaitlin from point A to B safely now that she is wheelchair bound. The loan on the van is over $20k with a substantial monthly commitment. We have decided to start this fundrasier to help with Kaitlin's growing expenses and thank you all in advance from the bottom of our hearts. Being able to provide for my daughter is the most important thing in my life.

Fundraiser Updates

Posted on May 22, 2014

Posted on May 22, 2014

While this fundraiser officially ended according to the initial time frame that we had hoped to raise $5000 in, we have extended the fundraiser and ask that you please keep sharing Kaitlin's story with those around you. Kaitlin is a true treasure and your help in sharing her journey against this horrible disease is crucial to her continued success!

Thank you all for your support!

Posted on April 3, 2014

Posted on April 3, 2014

Thank you to everyone who helped with this fundraiser! We had tremendous success and will keep the fundraiser open in hopes of reaching our goal!! We are close!!! With less than $1800 to go until our goal, we are very appreciative of all who helped us get to where we are already!!

Kaitlin is doing well and I'm proud to report that her Dr's give her a thumbs up on all of her recent check ups!!

Keep the prayers coming!!

Posted on March 22, 2014

Posted on March 22, 2014

11 days left everyone! We have done amazing but would be thrilled to reach our goal of $5000! Please share Kaitlin's story with those you love and ask them to share as well. If you've had the pleasure of meeting Kaitlin, you know first hand how precious she is and how she can touch your heart within only a few moments. Please Help Us Help Her!

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