Kaitlin Needs Your Help!

For: Come Together for Kaitlin
Organizer: Becky Bowman
$3,780
of $5,000 goal
75% Complete
This fundraiser is closed. Thank you for your support!

The Story

Kaitlin is an 8 yr old girl who is diagnosed with a rare and fatal neurodegenerative disease called late infanitle neuronal ceroid lipofuscinosis. At this time, the disease is neither preventable or treatable. Kaitlin has been given a life expectancy of 8-12 yrs old.

As Kaitlin gets older and her needs increase, it becomes harder to provide everything that she needs. Kaitlin has copays for appointments and prescriptions that are just not covered by insurance. These are out of pocket every month and a necessity to continue her quality of life. Kaitlin also is on a blended diet of all natural and organic foods to keep her body as healthy as possible as well as improve her seizure control. Even her grocery bill every month has become yet another hurdle in our lives.

We purchased a handicap van for Kaitlin's transport last year. This is the only way that we can get Kaitlin from point A to B safely now that she is wheelchair bound. The loan on the van is over $20k with a substantial monthly commitment. We have decided to start this fundrasier to help with Kaitlin's growing expenses and thank you all in advance from the bottom of our hearts. Being able to provide for my daughter is the most important thing in my life.

Fundraiser Updates

Posted on May 22, 2014 by Becky Bowman
While this fundraiser officially ended according to the initial time frame that we had hoped to raise $5000 in, we have extended the fundraiser and ask that you please keep sharing Kaitlin's story with those around you. Kaitlin is a true treasure and your help in sharing her journey against this horrible disease is crucial to her continued success!

Thank you all for your support!

Posted on April 2, 2014 by Becky Bowman
Thank you to everyone who helped with this fundraiser! We had tremendous success and will keep the fundraiser open in hopes of reaching our goal!! We are close!!! With less than $1800 to go until our goal, we are very appreciative of all who helped us get to where we are already!!

Kaitlin is doing well and I'm proud to report that her Dr's give her a thumbs up on all of her recent check ups!!

Keep the prayers coming!!

Posted on March 22, 2014 by Becky Bowman
11 days left everyone! We have done amazing but would be thrilled to reach our goal of $5000! Please share Kaitlin's story with those you love and ask them to share as well. If you've had the pleasure of meeting Kaitlin, you know first hand how precious she is and how she can touch your heart within only a few moments. Please Help Us Help Her!

Posted on March 16, 2014 by Becky Bowman
We have broken the $2000 mark!!! Thank you to everyone who has donated, spread the word and kept Kaitlin in your prayers! Please keep sharing Kaitlin's story with your friends and family!!

Posted on March 6, 2014 by Becky Bowman
We have less than 30 days left everyone!! Please share Kaitlins story with the people in your life! This coming April will mark 5 years since Kaitlin's diagnosis. Her story is very important. Lets tell the world!

Posted on March 1, 2014 by Becky Bowman
Kaitlin was able to return to acupuncture today! She hasnt been able to go for two months now because she has been in and out of the hospital with colds and h1n1. I could see the relief and relaxation in her face as she sat there with the needles doing their job!

If you have ever thought about acupuncture but arent sure about it, I'd highly recommend you try! It has done a number on Kaitlin! She is so much healthier and her struggles against dystonia are almost non existent at this point! Give it a try!

Posted on March 1, 2014 by Becky Bowman
Kaitlin was able to return to acupuncture today! She hasnt been able to go for two months now because she has been in and out of the hospital with colds and h1n1. I could see the relief and relaxation in her face as she sat there with the needles doing their job!

If you have ever thought about acupuncture but arent sure about it, I'd highly recommend you try! It has done a number on Kaitlin! She is so much healthier and her struggles against dystonia are almost non existent at this point! Give it a try!

Posted on February 27, 2014 by Becky Bowman
Tomorrow, Friday Feb 28th is Rare Disease Day. Please consider donating even just a few dollars to CTFK and share Kaitlin's story with your friends and family. Remember that Kaitlin was born seemingly healthy and that if this can happen to my child, it can happen to anyone. Kaitlin has lost her childhood. Please help me get her story heard and Help Us Help Her.

Posted on February 25, 2014 by Becky Bowman
With about 35 days left, we have raised a little over $1500 towards our goal of $5000! That is amazing! We are right on track with our goal of $100 a day! Thank you all so much for your support and prayers. We appreciate all the cards and well wishes!

This Friday, Feb. 28th is Rare Disease Day! Please consider sharing Kaitlin's story and fundraiser with those you love this Friday and show your support for Kaitlin as she fights LINCL!

Posted on February 25, 2014 by Becky Bowman
With about 35 days left, we have raised a little over $1500 towards our goal of $5000! That is amazing! We are right on track with our goal of $100 a day! Thank you all so much for your support and prayers. We appreciate all the cards and well wishes!

This Friday, Feb. 28th is Rare Disease Day! Please consider sharing Kaitlin's story and fundraiser with those you love this Friday and show your support for Kaitlin as she fights LINCL!

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