Posted on October 2, 2013
Dani and I went to Houston Methodist today for our first appointment after I have been placed on the waiting list for Pancreatic Transplant.
First, We saw Dr. Knight (Head of Transplant Surgery). He wanted to go over his findings thus far with me and tell me of his progress on his end and explain the surgery in a little more detail while getting a little more background medical information from myself. He was happy that I have lost close to 20 pounds since May but feels that the Pancreas Graft can cause complications with my current BMI including Clotting and Death. He wants to speak with Dr. Gaber (Head of Pancreas Transplantation) to come up with a good weight for me to be at since they know I have been gaining weight lately due to the severe low blood sugar episodes I have been having. Other than my weight loss goals, everything is on track for transplantation and moving smoothly from the Surgeons perspective.
Next, We saw Anju (Transplantation Dietitian). Anju was awesome! She was fun to be around and understood exactly what I have been going through. She knew that I have been struggling with having to eat poorly in order to keep my blood sugars somewhat stable. She wants to try a long shot to see if it helps. Anju is putting me on a short term super high protein diet hoping to stabilize my sugars somewhat to encourage my weight loss. If it doesn't work we will be trying something else. I will be eating things like eggs and plain oatmeal in the morning, hummus and cheese for snacks, whey smoothies & lots of meat for dinner. If I get low I will try peanut butter with bread or crackers. Soda and candy are still in play for severe lows. We are going to try this for a week and let Anju know how this goes while we log all food and insulin intake.
Last, We saw Dr. Sadhu (Transplant Endocrinologist). This Endocrinologist is by far one of the most intelligent I have ever met. After getting my background and reading through the notes she agreed that transplantation is the way to go but offered some insight as to what may be causing my problems. This is quite a change as I am still not diagnosed with anything that could make my Diabetes worse and she feels I may be a candidate for 2 possible rare conditions. One is a adrenal gland problem and the other is a autoimmune disease that either creates a sensitivity or blockage of the insulin receptors which is more in line to what I have been going through. Due to this she wants to have me run tests in the morning so I am staying in Houston another night so I can have special lab work drawn in the morning.
The lab tests are extremely rare and only a few labs in the world test for it so my blood will be traveling to the UK to undergo the test and it takes over a month to get the results back. I have to be fasting for the labs so that is why I have to go back tomorrow morning.
These tests are very important due to the fact that if I have the autoimmune disease with the sensitivity receptor issue then a transplant won't cure me and the surgery will put me in a worse situation then I am in now. If the test comes back negative than we just continue not knowing what's wrong with me and continue with the surgery.
I will post another update in the morning after I have the lab work done.