Jason's Battle

For: Jason Chmel
Organizer: Joyce Ruisi Chmel
$25,000
of $100,000 goal
25% Complete
This fundraiser is closed. Thank you for your support!

The Story

Jason's Story:

 

            Last summer of 2012, Jason (age41) his wife Marissa and their two children Emilio and Marcello were traveling every other week to Western Pennsylvania to visit his father who was battling cancer.  During their last visit in late August, Jason had a seizure and was rushed to the hospital.  The doctor ordered for an MRI and found out it was a tumor in the right frontal lobe.   A few days later, Jason and his family returned home and went immediately to see a wonderful neurosurgeon in Philadelphia.  The doctor looked at the scans and determined that Jason would need a craniotomy to remove the tumor the very next morning.  Jason and his wife Marissa were devastated by the news.  They had no time to mentally and emotionally prepare for what was to come next. 

                A few days after the operation while recovering in the hospital, Jason received a phone call from his sister saying that their beloved father had lost his battle to cancer.  Saying Jason was upset because he could not attend his father’s funeral would be an understatement.    A week later, Jason was diagnosed with Glioblastoma Multiform (GBM).  It is an aggressive cancer that attacks the brain and spinal cord.  There is no cure for this cancer and he would be considered lucky if he survives five years. 

                A month later, Jason had started chemo and radiation, but a few days into it, Jason started to behave differently.  Jason was taken back to the hospital where they did another MRI.  The scans showed the tumor came back with vengeance in the same location.  Once again, the surgeon performed a second craniotomy to remove the tumor.  This time the surgeon was able to do a total resection. In some ways we felt as though Jason’s father was there with him. GBM is compared to a weed, just when you think you have it all out, there are more cells hiding in the brain and you never know when it will return. 

                Two weeks after surgery Jason was finally able to go through six weeks of chemo and radiation.    In January 2013, Jason had a follow up MRI and was given the bad news that the cells had returned.  Jason was immediately put on a more aggressive type of chemotherapy and the doctors researched a new device that was created for this particular cancer. The doctors contacted the company and Jason is the first in the hospital to try it!  The device stays on Jason’s head day and night to stop the cells from dividing.  So far he is doing very well and he has had a few good MRI scans since wearing the device.

 

Through this whole nightmare, we are amazed at Jason’s constant positive outlook on life.  Though he would love to see his boys grow up, he says if he were to go tomorrow it would be ok, because he has led a great life.  His strength and courage are a true inspiration.

 Update: 07/15/13 Jason's tumor has returned and is scheduled for his third craniontomy Friday July 19, 2013. 

How can you help:

Unfortunately, Jason did not have health insurance when he became ill to cover the outstanding medical expenses. A year prior to his illness, he and his wife were both laid off from their jobs.  Jason was employed for 15 years and his wife for 10 years.  He has had some help with the cost, but not enough.   We need your help raising funds for Jason’s medical bills and other future expenses, so he can have one less burden on his shoulders.

Please post, send to your family and friends, and share liberally.  We appreciate any support that you can provide.  And please keep Jason in your prayers.

Deepest Thanks

P.S. If you are having trouble with sending a donation through this website, you can send a donation to; Marissa Chmel - PO Box 123 Mechanicsville, Pa 18934-0123

 

 

 

Fundraiser Updates

Posted on January 7, 2014 by Joyce Ruisi Chmel

 Happy Belated New Years to Everyone.

I am sorry it has been a while since I have posted something, but this has been quite a transition for my children and myself.  I went from being overwhelmed and pulled in every direction to a silent home when the kids are in school.  At first I enjoyed the silence, but that only lasted for two days.  

 We got through the holidays.  With the help of family and my amazing community/friends, the kids and I had an wonderful Christmas. Members from pack 169 put up lights outside our home.  “Santa” and his “elves” came in during the early evening and delivered awesome presents.  I would like to thank all of you who made this Christmas extra special.  There were only tears of joy on Xmas morning.  Marcello was amazed to find a John D. Tractor perfectly assembled (BIG THANK YOU) .  One of my personal favorite gifts was a miniature tree decorated with homemade ornaments made by very special children/angels.  The note from Santa was the topping on the cake.  It is still proudly displayed on our refrigerator.  Our Christmas dinner was perfection.  It was made by one of the parishioners at Our Lady of Guadalupe.  One of the best pork roast of all time.  I can go on and on about food, but I won’t.

I would also like to say thank you for all of you who have been praying for us and sending well wishes.  Your words of kindness mean more to me than you will ever know.  I have saved every card and read them quite often.  . It is my faith in God and the love I feel from all of you that keeps me going.  I miss Jason every day, but I am still at peace knowing he is healed and safe.  And though my emotional wounds are still raw, I am moving forward and loving life more than ever.    I will never let cancer break me. I will not allow it to have that kind of power.   I am fearless and stronger than I have ever been because of you and my faith.

 

Our home is filled with laughter, joy and music again.

I love you,

Marissa

 


Posted on January 7, 2014 by Joyce Ruisi Chmel

 Happy Belated New Years to Everyone.

I am sorry it has been a while since I have posted something, but this has been quite a transition for my children and myself.  I went from being overwhelmed and pulled in every direction to a silent home when the kids are in school.  At first I enjoyed the silence, but that only lasted for two days.  

 We got through the holidays.  With the help of family and my amazing community/friends, the kids and I had an wonderful Christmas. Members from pack 169 put up lights outside our home.  “Santa” and his “elves” came in during the early evening and delivered awesome presents.  I would like to thank all of you who made this Christmas extra special.  There were only tears of joy on Xmas morning.  Marcello was amazed to find a John D. Tractor perfectly assembled (BIG THANK YOU) .  One of my personal favorite gifts was a miniature tree decorated with homemade ornaments made by very special children/angels.  The note from Santa was the topping on the cake.  It is still proudly displayed on our refrigerator.  Our Christmas dinner was perfection.  It was made by one of the parishioners at Our Lady of Guadalupe.  One of the best pork roast of all time.  I can go on and on about food, but I won’t.

I would also like to say thank you for all of you who have been praying for us and sending well wishes.  Your words of kindness mean more to me than you will ever know.  I have saved every card and read them quite often.  . It is my faith in God and the love I feel from all of you that keeps me going.  I miss Jason every day, but I am still at peace knowing he is healed and safe.  And though my emotional wounds are still raw, I am moving forward and loving life more than ever.    I will never let cancer break me. I will not allow it to have that kind of power.   I am fearless and stronger than I have ever been because of you and my faith.

 

Our home is filled with laughter, joy and music again.

I love you,

Marissa

 


Posted on December 25, 2013 by Joyce Ruisi Chmel

Merry Christmas Everyone!


Posted on December 22, 2013 by Joyce Ruisi Chmel

I was never one to really get into the xmas holiday spirit, but I love seeing it through the boys' eyes.  Part of me wishes the Jason that I once knew was here, but I am glad the sick Jason is gone because now he can watch us in heaven.

All of you, my family, friends, church and community have touched me in such away.  I am forever greatly humbled by all of this.  There is so much goodness in this world and I wish others who don't believe could witness this. My faith has been restored because of this whole ordeal. I feel held up by so many arms and wings.  You are what keeps me going.  You are what gives me the strength to move on from this nightmare.  I assure you I will do my best to be the best person/ mother I can be.  I have said it before and I will say it again.  I will not let this dreadful moment define who I am.  I am so ready for the next chapter.  I am strong and fearless.  And after what I went through, I feel like nothing can stop my.

I love seeing my local peeps out and about.  They usually start of by saying, I can't imagine what you went through.  My answer is always,  " you don't want to"

Many horrible events took place between Jason and I, but I need to put that in the pass and begin to heal.

I love all of you and please remember what truly matters this xmas season......
Things break, but love can last an eternity.

Love,Peace,Clarity, and Happiness to you all.

Marissa

MERRY CHRISTMAS
MERRY CHRISTMAS
MERRY CHRISTMAS * INFINITY

 I hope the  PC police don't come after me.... oh well ;)


Posted on December 10, 2013 by Joyce Ruisi Chmel
Tonight there is a benefit for the Chmel family this holiday season  at Bobby Simone's on East State Street, Doylestown, Pa.  It will be from 7PM to 10PM.  There will be live music and a cash bar.  A visa gift card or donation is required for entry into this private event.  No donation is too small.

To thank you for your generosity, you will automatically be entered into a raffle** of your choice.

Confirmed raffle participants include:

Bobbie Simone's
Corner Stone
Gerhard's Appliances
Johnson and Johnson
Libra Dance Studio
Maximuck's Farm Market
Pump it Up!
Serenity Spa
South Avenue Sweets
Textbook Goaltending
The Karate School
The Talking Teacup
Zips Dry Cleaner

All proceeds from the event will go directly to supporting the Chmel Family.

**Raffle winners will be notified by telephone.

Posted on December 9, 2013 by Joyce Ruisi Chmel
"God our Father, walk through my house & take away all my worries & illness &  please watch over & heal my family & other families too ... amen



The Funeral was this past Saturday and It was beautiful.  It was a cloudy cold day, but just as the service began the church was flooded with beaming light coming from the windows.  The sun was almost blinding and it was shining right on Jason.  I knew he was there with us.... with me.  It was the most beautiful thing to see.  And when the service ended the sun went away.  It was his way of telling us he was there.

I know people  were surprised to see me composed, but as I have said in the past... unless you have walked in my shoes you will never understand the nightmare we were put through.  I have watched Jason suffer for so long, that at the end I begged God to take him  away and make him the once strong young happy man I once knew him to be.  This was not Jason anymore and My grieving started a long time ago. The funeral was not the hardest part for me, because God had answered our prayers. 
The morning after Jason passed I woke up surrounded by my boys in bed.  It felt like a weight had been lifted and my anxiety disappeared. I am sadden beyond comprehension , but Jason and I are no longer in limbo.  We both can move on.  My obsession with counting down... gone.  Time is not the enemy anymore and Jason is no longer suffering.  His suffering was my suffering and now his death is my salvation.

During the service I was looking up at Jesus hanging on the cross , but I was paying more attention to Mary's face.  I saw the horror and helplessness in her face looking up at her son and I finally got it.  I have seen images like this many times, but I never understood the emotion behind her eyes.  To watch someone you love suffer in my opinion is the hardest thing a person could ever endure. 
That is why I was so at peace at church.  God  had finally lifted that heavy burden off of our shoulders.  The hard part was over.  I was ready to celebrate his life.

Thank you to everyone who came out.  I am blessed.  And this is not the last time you have heard from me because I am also blessed with the gift to gab. 

Kids are still doing very well.  Emilio is upset he does not have a dad anymore and has expressed to me that he would like a new one.  It broke my heart, but I had to explain to him the reality of our lives.  I am going to take the next 2 months to focus on them.  I was not able to spend a lot of time with them and they deserve every second. 

Love you all,
Marissa

Posted on December 7, 2013 by Joyce Ruisi Chmel

Hi I just wanedt to say thank you for all of your kind words.  I am sorry I can not respond to everyone at this time, but please know I read everything and I am touched. 

The viewing and the funeral BOTH take place at Our Lady of Guadalupe Church.  No traveling is involved between the two events.  Events following  the funeral will be held privately. .


Posted on December 4, 2013 by Joyce Ruisi Chmel

A friend recommended a hotel for anyone who is coming from out of town.

Hampton Inn Doylestown
1570 Easton Rd (611N)
Warrington, Pa 18976
215-343-8400

It is about 20 minutes away from the church


Posted on December 4, 2013 by Joyce Ruisi Chmel
http://fluehr.com/obituaries/jason-alan-chmel 

Here is all the information for this Saturday.

Posted on December 4, 2013 by Joyce Ruisi Chmel
Relatives and friends are invited to attend Jason's viewing Saturday, December 7,2013 from 12:30PM until his Funeral Mass 2:30PM at Our Lady of Guadalupe Church, 5175 Cold Spring Creamery Rd., Doylestown, Pa 18902.  His interment will be held privately.

Obit will be coming out on Thursday.  I will post a link as soon as possible.

In lieu of flowers, the family request contributions in his memory be made to the Jason Chmel Fund.


About the Organizer


Verified by:

Verified by:

Verified by:


Comments

Supporters

Add Our Donation Widget to Your Site
Grab Our Widget

Jason's Battle

Grab Our Widget