Help Will continue his recovery from an Anoxic Brain Injury

For: Will Gomez & Family
Organizer: Team Will
$15,789
of $100,000 goal.
Raised by 137 donors
15% Complete
This fundraiser is closed. Thank you for your support!

The Story

Our son Will was born with a heart disease, Hypertrophic Cardiomyopothy.Will has struggled with HCM his entire life limiting his physical activities and taking multiple medications. After genetic testing was completed and the gene mutation was confirmed, Will was officially diagnosed with Hypertrophic Cardiomyopathy at 2 years old. After research and visits with HCM specialist at Stanford Children's Hospital we were convinced that an AICD should be placed in Will. After months and months of debates it was decided the risk of sugery to place an AICD was greater than the risk of Will having an incident (Cardiac Arrest). Will was an otherwise healthy boy. A very loving, playful, and happy little boy.

Unfortunately against the odds on October 23, 2013, while at school, Will suffered cardiac arrest. After being airlifted to Children's Hospital Los Angeles and placed on a ventilator, we were informed that Will had gone without oxygen for an extended period of time and had suffered an Anoxic Brain Injury. Will has been hospitalized since October 23, 2013 and our family has been split apart with my wife Anne living with Will at the hospital everyday since October 23.On November 22, 2013 Will had sugery to place an AICD. Will has been at Healthbridge Children's Rehabilitation Hospital since December 20, 2013 and has been making incredible progress. We were told our son would not walk, talk or be able to eat enough calories on his own to be healthy. Will is begining to talk, take some steps and is eating 3 meals a day. Will has a very long road to recovery ahead of him with lots of physical therapy, speech therapy and occupational therapy. We have faith that our boy will recover and have a very good quality of life. Our insurance will only cover so much outpatient therapy once Will is discharged from the hospital and we will need to pay large fees for additional therapy out of our pocket. We want to give Will the best chance at full recovery with intensive rehabilitation.

We truly appreciate any and all support for Will and our family!

Love,

Team Will!

Fundraiser Updates

Posted on October 6, 2014

Posted on October 6, 2014

Will is home day 201!

I also wanted to let everyone know that October is National Sudden Cardia Arrest Month. Imagine a world where every school has a portable Automatic External Defibrilator (AED) on site with staff trained to use it? It could save a life. 

Zoll Medical Corporation the manufacturer of the AED Plus device is having a contest on there website this month. No obligation at all just simply register and you will entered to win the AED PLUS to donate to a charitable organization in your community. We would be so thankful if you could register for this contest in honor of Will donating the device to (Will's school) New Horizons Child Development Center - Parents Auxilary. You just never know when something tragic could happen. Thanks to prepared and brave teachers and a parent our little boy is still with us. Please contact us if you have any questions. 

www.zoll.com 
Contest button is on the bottom of the home page.

New Horizons Child Development Center - Parents Auxilary


Love,

Team Will!





Posted on October 6, 2014

Posted on October 6, 2014

Will is home day 201!

Hello everyone, it has been a very long time since our last update.We are very sorry for that. It has been very busy with Will's schedule between therapy and school he is busy Monday through Friday. Anne and I are both back to work and we are still working on getting back to our normal. 

On September 2, 2014 Will celebrated his 5th birthday! What a huge milestone for so many reasons. It was a very emotional time for us because we are so thankful that Will is here with us.He is asuch a fighter!

Will and Paige are both back to school for the new school year. Paige is in 3rd grade now and Will has moved up to a new class. 

Will is continuing to make huge strides in his recovery. He is doing so well that we have reduced his therapy from 3 days a week 3 hours each day to 2 days a week 3 hours each day. Will goes to school 3 days now staying the entire 4 hours. 

It was a busy summer with lots of doctors appointments. We also took will to Minneapolis, Minnesota to visit Dr. Barry Maron the world expert in Hypertrophic Cardiomyopathy. It was a good visit with a doctor that has more experience and has more patients with Hypertrophic Cardiomyopathy than any other doctor in the world. We talked for hours with him and other medical staff and the what we learned ws that "Will has the most aggressive case of HCM that I have seen" to quote Dr. Maron. Good news is that Will has a very strong team of specialist including Dr. Maron handling his care. We have so much hope that Will is going to continue to do very well. Between his amazing therapist and his amazing school filled with amazing techers and friends and familes, Will is destined for greatness!

We coming up on one year October 23, 2013 from his cardiac arrest and that brings up an array of emotions for myself, Anne, Paige, Will, friends and family. As we have said to many of you in person and others through this site, we would not have madei t this far without you and your continued love and prayers. Will has 500 plus students praying for him everyday at Paiges school Holy Trinity as they have prayed out loud for him at morning prayer since since his cardiac arrest. The school principal promised me that Will would be prayed for at morning prayer until we decided to end it. Dr.Wiley has been so supportivein many different ways and we cannot express ourlove and thanks enough to her. 

I have posted a video from last Thursday at therapy. Please enjoy this video as Will continues to beat the odds. I have said this before if you are ever feeling sad or down on yourself just watch these videos. They will absolutely make you smile again!

I promise to have updates more frequently form now on.

Love,

Team Will!

Go Irish!



Posted on May 22, 2014

Posted on May 22, 2014

5/21/2014

Will is home day 63!

I am also posting some new pictures of Will. He has been a busy boy with therapy 3 days a week, 3 hours each day. Watching his daily progerss is amazing. The best part is knowing how hard he works and how he does it with the biggest smile and the loudest laugh! We cannot say it enough, Will is truly a miracle!

Love,

Team Will!

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