Posted on March 30, 2014
Posted on March 30, 2014I am posting a video right as I type this. I took Scott to an infectious disease doctor and they have started at ground zero. He was stopped from the antibiotics that he was on and started on a new IV antibiotics. So a PICC line was inserted into him.
They just recently "re-certified" him for another two weeks' worth of therapy. He is doing well, but he has no strength in his shoulders. I took him this past week for MRIs of his thorax and lumbosacral spine on Monday, and bilateral shoulders on Tuesday.
The findings of the back MRIs revealed T11-12 diskitis and he is being referred out now to an orthopedic back specialist. That will happen some time this week.
His eye appt came back normal. That's good!! One less thing to worry about.
I am now just waiting on results of the shoulder MRIs. The therapists think he may have a tear of a muscle. If he does, then yet another referral outside. The best part of that would be that I could have him see the orthopedic surgeon that I work for, as he specializes in shoulder replacements.
Posted on February 28, 2014
Posted on February 28, 20142/28/14: (this is for 2/27) So for today's wrap up! I went up early for the care plan meeting and arrived with Scott dressed and in his wheelchair waiting for me outside of his room.
Social work reviewed how they go in and assess his level of depression (if any) and talk to him to make sure where he is at. I asked him just today if he was sad or depressed about being there and he said no. He realizes it is just what has to be done.
Activities coordinator said she has some car mags for him. I told her no need, he has like 14 that have come in since he has been hospitalized and has shown no interest in them.
Dietary went over his weight--they have it all wrong saying he is back to his baseline. I was like what? He's lost 66 lbs. She said no they have him documented on entry at 253 (that was his last weight a week ago), and that it went to 273 with the "water weight" and then to 319. I said you have it backwards. He came in at 319, as that is what it was at his PCP appt which I attended with him. She said "you know not all scales are right." I said "but they do not differ by SIXTY SIX POUNDS!!!" Do you know that she sort of "whatever'd" me?!? I don't take very well to being whatever'd. Just saying. I said you better go check your records because you are wrong. Hello? Who knows better? Mama Hen or the person who sees his chart once a day??? I also pointed out how big and baggy his clothes are. I said who in their right mind would be wearing clothes that raggedy? lol
The charge nurse on his floor was there and went over his status. One last day of antibiotics and then a chest x-ray to see if the pneumonia is gone. I told them to consider extending it as he has a boil now that they are draining. They reviewed ST/OT/PT and said that they hope to have him done with his speech therapy by 3/14 and physical and occupational therapy by 3/27. These are "guesstimates" and that it may be shorter or it may be longer, but that is what they are shooting for.
We then went to the CCU. Jose was there (who was one of his nurses) and Sabina the ward clerk. His speech therapist was there and chatted with us for a little bit as well. Jose remembered him and said "hey Scott, man you've lost a lot of weight! But looking good!!" and of course Sabina and I hugged and shed a tear. She was a great support by sharing her story with her son being in the same condition as Scott last year. It gave me hope, so I let her know that and how much I appreciated it. She said the next time we come, she wants him walking through the door
I then gave Scott the option of going the back way through the hospital (which connects to the long term bldg) or out the front, which would take him outside. He chose outside. We didn't stay outside for very long, just a few minutes, but he said it felt good to be out.
We then got him back in bed for about an hour before his PT appt. Amanda said she'd take it easy on him since Justin over-worked him in OT and he was in pain. I asked her about that, if she thought the extreme pain was because of the neuropathy or is it something I need to have looked at. She said Justin thinks he has a subluxation of both of his shoulders and that he is going to need a lot of work to strengthen his shoulder muscles back up. So he probably won't be back to work any time soon until he can work that out. You saw the video of one of his walks. He did it again, and then they did leg exercises using a band and then some to strengthen his quads and hamstrings. Amanda said she wanted him out of bed at least three times a day if not more. She said ideally one more time at night. So I guess after he digests dinner, then we need to get him up and out of the bed. She also wants him out of the bed over the weekends as well, exercising his legs and arms pushing his own wheelchair.
His orthopedist came and drained more fluid off the left knee and injected him with twice the dosage of medicine since he's a "big guy." Lol. It was very painful. Hated to see him like that. He says it now feels good.
So that's it. Justin wants him to start going to the bathroom on his own. No more urinal or bed pan. That will be challenging after a long hard day of therapy, but I guess again it is a case of no pain, no gain.
Posted on February 21, 2014
Posted on February 21, 2014I can't correct, but it is "tooth and nail", not bone. Geesh lol