As you know, we had our first baby, a little boy we named Max. Through our skilled doctors, we learned that our son has Hypoplastic Left Heart Syndrome (see below for more info). The hospital in Flagstaff does not have the required resources to treat HLHS which necessitated a move to Phoenix so Max can receive care at Phoenix Children's Hospital. Without medical intervention, Max would not have survived longer than two weeks after birth.
His condition was so severe that his heart couldn't be repaired and when he was five days old, Max received a heart transplant, making him the youngest heart transplant recipient in Arizona. He's doing well but he has a long road ahead of him.
Put simply, we need help. We're trying to raise funds to help our family and to help cover some of our medical bills. We know that times are tough for so many of you but anything you would be willing and able to contribute would be gratefully received. Thank you for taking the time to visit our fundraiser page and thank you for your love and support during this time for our family.
For updates on our Mighty Max, you can check out our blog: http://www.mightymaxbannon.com
What is Hypoplastic Left Heart Syndrome?
Hypoplastic Left Heart Syndrome (HLHS) is a congenital heart defect that occurs randomly in 1 out of 6,000 births and essentially means that the left side of Max's heart is underdeveloped and is not functioning properly. In order to correct this, Max would ordinarily need to undergo a series of three surgeries but in his case, he is going to need a heart transplant as soon as possible.
Without medical intervention, Max's heart will not be able to function and he won't make it. We are very fortunate that the doctors were able to detect the HLHS when they did because otherwise, he would have died within the first couple weeks of life and it most likely would have been attributed to Sudden Infant Death Syndrome (SIDS).
Will HLHS Affect his Quality of Life?
No, which is wonderful news. Everything else is developing textbook perfectly and aside from the badass scar he'll have on his chest, there will be no other indicators that there's anything different about him. He will need daily medication but otherwise he should have a totally normal, healthy life.