Round # 6 has begun! These last 2 chemo's have been the hardest on Mady's little body. Normally she handles the chemo pretty well with more fatigue than anything. This round is a little worse, she has been feeling sick to her tummy alot more so she hasn't been eating that much. Last night was the last (thank goodness) of her really hard chemo Cisplatin and today she has been sick a couple times and has said she is just tired and feels yucky. She really isn't used to throwing up like this and even said that she was scared! Still in all of this she remains positive and smiling-she truly is the bravest person I know!
We can hardly believe that this is the last chemo treatment, it seems like this has been a really long, hard road and we can't believe we are at the end of it! Mady's road to recovery is going to be a long one but she is a fighter and will WIN!
Thank you again for your support, your love and wonderful words of encouragement!
James, Dana, mady and Jayden
Happy New Year! Unfortunately for Mady the New Year holiday was spent in the hospital for 10 days fighting a staph infection in her port which ended up having to be removed. She was home for a week and then was re-admitted for round 5 chemo and surgery to place a new power port. Now as I write this we are back here in the hospital for a fever. Hope to be home by the end of the week. This New Year has been very trying and hard for us but we look forward to chemo #6 our last one around February 12th! Once Mady recovers from her last round of chemo and starts to feel better she has a list that she has started of all the things she wants to do to celebrate. Number one on the list is picking out a new friends for home a Teddy Bear Hamster! Number 2 is a 2 night stay at the Disneyland Hotel and the list goes on!
Thank you again for your support, your prayers, your positive thoughts and kind words of encouragement for Mady and our family. Words can't express our grattitude!
The O'Brien Family
Happy December! We have much to be thankful for this year and we intend to enjoy every minute of this holiday season. Our sweet Mady is such a trooper, she has endured 31 rounds of radiation along with daily low doses of chemo in July and August and as of November 19th she finished round 3 of her 6 high dose inpatient chemo sessions. She is doing ok, lost alot of weight which seems to be the real struggle at the moment. We are just hoping that she can stay above the weight requirement to avoid a feeding tube. Her spirits remain very high with all that she has been through in the past 6 months and we are just so grateful that our girl is a fighter and remains happy during all of her treatments.
To impart some happy news we received, Mady's dog Meko who was stolen on a trip to Arizona in July of 2012 was found!!! He was picked up wandering the streets in Prescott Arizona and taken to the Yavapai Humane Society who scanned for a chip and contacted us on November 12th, 2013. Mady declared that day as the happiest day ever and James traveled more than 500 miles each way to bring her best friend home. Meko has since then has resumed normal life sleeping each night with Mady and spending as much time as he can with her when he isn't teaching manners to our newest furry friend Joey who we adopted 2 days before Mady's diagnosis.
Our family has been through many lows since Mady was diagnosed and this was a very happy and joyus event which we hope to be the first of many.
Next treatment date is scheduled for December 13th, fingers crossed that she makes counts so we don't have to spend Christmas in the Hospital.
Thank you so much for the love, support and prayers for our little angel and family, we feel them every day!
We just wanted to start this update by saying thank you to everyone for the prayers, the support, the donations and positive thoughts for our sweet Mady. She is such a trooper, last round of chemo went ok, Mady wasn't too sick and other than alot of fatigue she did really well. We were out of the hospital for 6 days when Mady came down with a fever which put her right back in the hospital for another 6 days of antibiotics and 2 blood transfusions.
Since then she has been bouncing right back, has been feeling really good and her appetite is starting to come back. Just in time to start round 2 of chemo tomorrow Oct. 15th. Please wish us luck that Mady does well this time around also.
We did also receive positive news last week, Mady had a follow up MRI and got the all clear-both her oncologist and the neuro-radioligist say that the "spots" they noticied on her last MRI were gone and were most likely blood matter or clots from the surgery and radiation-bottom line: the tumor is not growing back at this point, many, many prayers have been said and are always made that this remains the case for the rest of her life!!!
Well, we made it through the 8 weeks of radiation treatments by mid august and Mady was cleared to go on a family trip to the Colorado River! We were there over the Labor Day holiday with grandpa, grandma and auntie (and Joey our puppy) and most of our good friends were there as well. Mady was so excited to be there and spent lots of time with her little brother, Jayden, and friends...swimming and playing games. Oh, and I can't forget to mention the whipped cream fight the kids had which was a big hit to say the least!
We were home a few days when the hospital called and said they wanted to start Mady's chemo treatments right away. The recent MRI showed a couple of white spots (one near where the tumor was removed and one near the base of her spine) and although the doctor's feeling is that they are most likely just scar tissue, they felt it was best to get the treatments started.
We've been at the hospital since Monday afternoon and Mady had one 6 hour treatment Monday night and is scheduled for her second one at 2 a.m. tomorrow morning while she's sleeping. So far, aside from a few bouts of nausea she seems to be doing fine so far. If all goes well after the treatment tomorrow, we're hoping Mady can go home on Friday.
Thank you all for the outpouring of love, support, donations and especially all of your prayers.
Love from the O'Brien Family
Mady is doing very well so far. Today is Saturday one of her favorite days since she has no treatments on the weekends-can you guess what her other favorite day is? :)
We have 3 days left of chemo/radiation therapy - which she is very excited about and then she gets a 6 week break from those treatments before we start high dose in-patient Chemo that is only once a month but she will be at CHOC at least 3-4 days each month for this part of treatment.
During her 6 week break it looks like we will be very busy making up for her lost summer as she already has a list going of all the things we will be doing-one of which is the Aquarium of the Pacific (as long as her Dr. approves) Fingers crossed she is doing good and gets the OK!
Thank you everyone for the prayers, support and positive wishes you are sending our sweet Mady and the family, we feel truly blessed that during this time we are not alone and are thought of and we feel the love all the time!