Below is Jonnie's battle of her brain tumor, she evicted him on Jan21st 2014, in which her incision opened up two weeks later causing a major CSF(cerebral spinal fluid) leak. She contracted bacterial menegitis from the leak and was rushed to the hospital where she was admitted into ICU until she was stable enough to transport her back to LA for a 2nd brain surgery. After her 2nd surgery she was admitted into the hospital for almost 30 days due to the menegitis and mini strokes. Jonnie says she feels so much more alive but her body has some long term effects now due to her complications. She will be working with a neuro opthamologist to help her vision( as that takes the longest to heal) as well as with HIANN on exercises, meals, and natural supplements to help with swelling and healing of the brain. She will also have tests done to check her progress, so i ask that if you can please help Jonnie and her family in any way as this journey has effected then in so many ways.
Jonnie is a 26 year old mom and wife. Shortly after having her daughter, Jonnie started experiencing severe headaches. In addition to the headaches, Jonnie experiences blurry vision, white vision, tinnitus, blackouts, nausea/vomiting, irregular sleep, & dizziness. The headaches and dizziness are so bad most days that they leave Jonnie disabled in bed, on good days she's able to take lots of meds just so she can somewhat function like a normal 26 yr old. The blurry vision, blackouts, dizziness, and disorientation have left her unable to drive or go anywhere alone, (as Jonnie says she feels like a teenager again having to depend on everyone else, her freedom has been taken away. Jonnie's cyst has now grown enough to cause her spinal fluid pressure to be elevated so surgery is imminent.
Jonnie has seen several different doctors from primary care, ENT, Neurologist, Cardiologist, opthomalogist, etc....After several physician office visits, 2 EEG, 2 CT scans, 2 spinal taps, tons of lab work, echocardiagram, king of hearts test, vision exams, hearing exams, and 2 brain MRI, Jonnie was diagnosed with a 1.1cm(11mm x 10mm) Pineal Cyst with cystic pineocytoma characteristics. Jonnie requires brain surgery. This type of brain surgery is one of the most dangerous types of brain surgery performed! After seeing different neurosurgeons on the west coast,and being told time and again the because of the cysts location they won't perform surgery, Jonnie was fed up. God was protecting and guiding Jonnie and she found a Dr in Los Angeles who performs this surgery endoscopicly at the Skull Base Institute.Jonnie and her family will have to travel to California to have the surgery done. Dr, Shahinian told Jonnie her cyst is abnormally large and that removing it will help Jonnie get her life back. Jonnies cyst is pressing on her tectile plate, as well as causing spinal fluid pressure.The neurosurgeon is out of network for Jonnie's insurance plan and her share of the cost is several thousand dollars(upwards of $35,000). Every dollar counts and will help Jonnie get closer to having the surgery she desperately needs, if you can't help financially, words of encouragement and prayers are always welcome You can learn more about the pain that pineal tumors cause as well as watch Dr. Shahinian perform the endoscopic surgery by watching this video: http://www.youtube.com/watch?v=1Fbj2h3NrKM)
If Jonnie is unable to have the surgery the cyst can continue to grow causing seizures, and in severe cases, coma.