Help Jonah Get the Best Treatment!

For: The Jonah Fund
Organizer: Patrick and Kelsey Allen
$9,001
of $30,000 goal.
Raised by 56 donors
30% Complete

The Story

UPDATE! 1/9/2015
Jonahs tumor has not grown over the last year and we have seen some shrinkage! Recently Jonah had two seizures and we do not know why! We are still in need of help to get Jonah the best care possible!



UPDATE! 4/2014
Jonahs Tumor is shrinking using cannabis oil! The tumor not only showed that it was smaller, but it is dieing off! We need help to continue treatment! Please help!

History

Jonah is 2 years old and was diagnosed with Hydrocephalus in Utero. We went through a lot of unknowns and we were very scared. Over the last two years Jonah has had a total of 3 brain surgeries 2 of which were shunt malfunctions. We recently decided to move to the Boston area to fulfill my wife's dream of living in New England. We went to Jonahs new Neurosurgeon and during a routine scan they found a brain tumor. They have a scan from last March that is a different kind of scan, where they can see the tumor in hindsight. They are pretty confident that it hasn't grown, but it does not mean that it won't. They are comfortable observing the tumor for 3 months before re scanning. This gives us a perfect opportunity to do this treatment in conjunction with medical advice. Jonah has been affected by the tumor because of where it is on his thalamus. Because tumors can grow at any time we are seeking this alternative treatment right away. We do not want to be faced with the decision to defy medical advice for cannabis oil treatment, even though we are confident it is a more effective and safer option.

Treatment

We decided to pursue alternative treatment for him instead of chemo therapy and brain surgery since his tumor is inoperable. We decided to go to one of the only places in the country that prides itself in working with pediatrics to save kids lives through the use of cannanbis oil. The Realm of Caring in Colorado Springs, CO is one of the only places that pursues being above board in all they do and keeps medical logs and good data of all cases. Although they try to make the oil as affordable as possible, because Jonah will need higher doses, the cost will rise significantly. They test and re-test all batches of oil made to ensure they are safe for kids. There have been a decent amount of isolated cases and studies that show cannabis oil is a viable treatment to reduce tumors. This fact is very important because his tumor is inoperable. Chemo will only stop tumor growth, and we risk side effects from the chemo. Our objective is to KILL this tumor! This treatment can get very expensive, very fast! We just moved across country and now we have to move back, this along with his medical bills and treatment cost a lot of money.

Why This Can Help Others!

Jonah will be one of the first kids his age with a brain tumor of this type to go through this treatment in a controlled setting. Cannabis oil is expensive to make and there have been a ton of isolated cases with no data gathered. A lot of families take it upon themselves to do this treatment from home and make it themselves and they are getting wonderful results! We are hoping for the same outcome and we are proud to let Jonah be a trailblazer in a treatment that has the potential to cure cancer, save lives, and does not have the same nasty side effects as chemo therapy!

What we will do with the money.

All of the proceeds for this fund will go to costs directly associated with Jonah's medical bills and getting the treatment he needs to eliminate his brain tumor. Secondly, if we exceed our goal, The Jonah Funds purpose is going to bring education, awareness and help to families who are suffering with similar situations.




Good Articles!

Why it needs documented

All Treatments cannabis can help with, Glioma/Cancer on Page 36.


If you would like to donate but would rather send a check, we will update the fundraiser on this end.

Please Make Checks Payable to:

Patrick Allen

Send To:

Patrick Allen

2301 Lincoln St

Longmont, CO 80501

Thank you for your support!

Fundraiser Updates

Posted on March 2, 2014

Posted on March 2, 2014

Thank you to everyone who has shared Jonahs story and shared this fundraiser! Thank you for all of the support both financially and for sharing! We have decided to extend the fundraiser for another 2 months to make sure that we can do the very best for Jonah! We still have a ways to go to reach our goal. Please continue to share with friends and family! After discussing his scan with his Doctor, we have decided to give the cannabis a few more weeks before we do a scan, we will keep everyone updated! 

Posted on February 23, 2014

Posted on February 23, 2014

Thank you everyone for your support and help in getting Jonah treatment. We appreciate it beyond words!!! Becasue we have not had to mental or phycial capacity to puch this fundraiser as hard as we needed to we are behind on our goal quite a bit. Becasue of that we will probablt extend the fundraiser. More details on that later. There was an article written on Jonah. If you know any new agencies or have another medium or platform to share this with, please feel free to share it with as many people as possible. A couple news agencies have picked up the story and we are hoping to get the word out as much as possible. Both for awareness and support in this fundraiser. Thanks again for all of the love!

http://www.prweb.com/releases/2014/01/prweb11513366.htm 

Posted on January 30, 2014

Posted on January 30, 2014

Thanks to everyone for your continued support and prayers! We are very blessed to have such a great group of family and friends who have rallied behind us. 

We are still pushing hard to hit our goal for support. Please continue to share Jonahs story with family, friends and people close to you. Thank you all so much!

We are almost a full month into using the oil and we are seeing good results still. We are not that far away from doing a scan to see what the tumor is doing. Continued prayers for it ti be gone! With Kelsey about to give birth any day we have a lot of emotions running high. 

Patrick, Kelsey and Jonah.

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