Help John fight hepatitis C1A, cirrhosis, house accessable

For: John Worley
Organizer: Mary Worley
$400
of $1,000 goal.
Raised by 3 donors
40% Complete
This fundraiser is closed. Thank you for your support!

The Story

Since having to leave work and finding out his Hepatitis C had turned into cirrhosis and an enlarged spleen our lives have drastically changed. We are doing fairly ok on his disability some months are very tight and after all the bills are paid there is nothing much left for day to day but we have been plowing on with the help of the local food banks and family. We have been lucky to have Dr. K who lest us get John's blood work done at the free clinic we finally got into and letting us make payments on his services. The same can be said with my cardiologist who said if you can pay $10 a month come in don't not come because of money. When John got his last blood work done his platelet count was down from 77 last October to 37 (Dr. K said for someone in his condition even 50 was livable) now he wants to send him to a hematologist to see if something else is causing it. So now we are asking for help with paying a hematologist and all the blood testing and whatever will go wit it. Before anyone ask we are NOT eligible for Medicaid because our state did not expand the rolls so we can't get help on our premiums (we are one of the over 400000 in GA caught in this situation). Dr. K wants him to be evaluated for a transplant but they won't even talk with you unless you can cover your treatment for the whole procedure and medications for the first few years. I put $1000 on the goal but I know it will take much more but anything will be a help.

We also need to paint the ramp and put down non skid on the floor of it and work on getting a doorway widened, a regular door for our bedroom and putting down flooring in the living and out bedroom so all the floors are level and then getting carpet in the bedroom and some kind of laminate in the living room and hallway so as he gets worse a wheelchair can go in and out easier. I would also like to get the post in our living room moved so that it is more open so we can work on getting him a recliner in here so he will be more comfortable. 

I am doing the best I can but I have to stay with him and we are doing all we can of what he want's to do before it gets where he can't drive (as everyone knows I don't drive very far). We plan on celebrating our 29 wedding anniversary the 12-16 of October at Blue Ridge with the winnings from a Twitter party I won and thanks to a lot of help from the sponsors John is going to get to compete in a competition BBQ contest the 24 and 25th of October. Over the last week he has decided to get rid of his chickens because he doesn't feel he can take care of them anymore. He would love to hear from folks he knows and have visitors just to stop and say hello and how you doing.

Fundraiser Updates

Posted on April 30, 2015

Posted on April 30, 2015

John is getting ready to start his last bottle of the Hep C med and feeling pretty good. The dr has upd his insulin but we are hopeing with good weather he can get out more and feeel better. One of the projects I want to do thos summer is a covered area by the pool so he can be out and not get sick in the sun also lots of fishing after we get another park pass (GA doesn't give free ones to the disabled like the Feseral parks do). On a bad note we finally got a deffinate date on his Medicare for November not May like we we thought. So thanks for all the thoughts Mary

Posted on February 23, 2015

Posted on February 23, 2015

Thanks James and Connie that will get office visits paid up and help with the work on the house. We got a letter today welcoming John into the Supoort Path Program so hopong that means Dr. K has gotten the paperwork in amd it won't be long before he gets on the new Hep C med. If anyone sees any coupons for Lowes let me kmow the 9th they will be here to start on wall and floor so the more we can save the better. 

Posted on February 19, 2015

Posted on February 19, 2015

Oh yeah anyone got any connections at Lowes where we might get some coupons or something to help us with the cost? @lowes #sharethelove #thankful 

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