Hi im Hannah and im 15 years old! i have a cyst in my brain on a part called the Pineal gland. Everyday i have severe headaches that keep me from doing normal things teens do. I used to be a cheerleader and would have to sit out during games because of the pain. I need to raise money to get the surgery that will remove this little guy. I hate having to ask for help but i really need this and could give back so much when I'm better. Thank you allso much!
Hi I'm Hannah's mom. I have watched Hannah suffer for years with what we thought were migraines. They started when she was in 1st grade. We had been taking her to neurologists for a few years , but there had never been any testing done. In November 2011, she had three seizures in one morning. I saw this and it was heartbreaking and scary. Her pediatrician ordered an MRI. That is when we found out she had a "large cyst on her pineal gland" causing mass effect to the brain. Over the past year plus, I have been taking her to Cleveland Clinic Hospital for treatment. They haven't found one medication that can help her pain. On our first visit there, they also told us she has a tumor in her pituitary gland. The neurosurgeon told me neither one would shrink, but were unlikely to grow. However, her cyst has grown over the past year. Her pain has also grown so much worse this past year. I can't explain how terrible it is to watch her suffering get worse and worse. She also has other symptoms, such as worsening vision, temporary blindness, not being able to control her body temperature, feelings of dizziness and syncope.
Hannah has made the decision herself (with my approval) to have the cyst removed. This is a very brave decision, as the pineal gland is in the exact center of the brain. It is a very dangerous surgery. We have however, found two doctors that perform the surgery endoscopically and have decided to go with the one in the United States. This doctor is recognized world wide. We know of quite a few people from our Pineal Cyst group that have had him do the surgery. The cost is allot less than the doctor in Austrailia, and hopefully we can stay with friends in California for a bit after the surgery. They usually release you to travel in the first week when the brain is still swelling, which makes flying painful.
Our first goal is to raise 750.00. That will cover the consult and 6 months worth of pre and follow up phone calls. We could have this consult this Friday, and the surgery as early as April or May depending on our fundraising sucess.
Hannah has a very sweet soul. I am confidant that she would love to help others and pay it forward when she is pain free. She has expressed her guilt to me, about asking for help.
Thanks for now knowing, part of her story!