As a local born Romford girl until moving to Rochford, Essex - we are appealing for your help.
Our beautiful 33 year old daughter Samantha and first time mummy to Rose Jasmine, was diagnosed in the 40th week of her pregnancy with stage 4 metastatic kidney cancer. Our perfect baby Rosebud was whipped into this world by c-section the very next day-27/07/2013 and my beautiful daughter left the maternity ward with a new born baby and kidney cancer.
A week after giving birth, our daughter Samantha was put on a drug called 'Sunitinib'. A type of chemotherapy drug designed to stop the spread of cancer - it works until the body becomes used to it, then it stops. Until 2/3 weeks ago there were many similar drugs on the NHS that would have been her next line of treatment. 'Yo yo'ing' between these drugs can enable people to live longer and better quality lives. There are many people living their lives because of these drugs. They are not a cure...yet!
Samantha has a genetic variant of kidney cancer, HLRCC papillary type 2. She has taken Sunitinib now for 18 months and during this time has endured various illnesses associated with her cancer, but because of her will and determination to mother her darling baby Rose, she has prevailed.
Last July, as the sunitinib had worked so well for her, she was given a radical nephrectomy, double adrenalectomy, and lymph node resection- a massive and frightening operation. Whilst on a 6 week break from treatment due to healing, the cancer spread to her sacrum. She was immediately put back on sunitinib.
At her last scan/MRi (19/01/2015) it showed that sunitinib was no longer working - so time to move on to another drug. The drugs previously available - including one called Everolimus (which had evidence showing a benefit to people with papillary type 2) would have been given next. But, without warning, this drug and many others have been withdrawn from the NHS funding list. The cost of this drug, if and when Samantha needs it, will be £40,000 per year.
She is unable to work full time now and although very able bodied in the first half of her 6 weekly treatments, she finds her lack of energy and ability to get around in the later half, would make holding a job down a dream. Therefore this is an unreachable cost to her, her husband and us.
With all the previous trips to The Royal Marsden in London and the care required for their baby girl, funds are running out. This would bring most healthy people to their knees. But it's not this that's bringing her down. It's the terrifying anxiety of not being offered drugs and treatments that will keep her alive, that is causing her the most distress. If there were a 'contingency' plan of treatments and drugs set out in front of her for the immediate future, it would bring her renewed hope and strength. She would not have this massive extra anxiety to deal with on top her already unbearably stressful situation.
Please please help my brave and talented daughter to stay around for as long as possible to be mummy to her baby Rosebud. These newer drugs may well even bring about 'NED' (No Evidence of Disease.) Something very close to a CURE.
There should be no price on life, but for Samantha that's what this feels like.
We all want everyone who donates to know that if Samantha does not need or use all of the monies donated to her treatment fund, it will all be given to kidney cancer and HLRCC research.
Please give what you can and share with anyone and everyone to help alleviate an already unbearable situation.