Fanconi anemia. My entire life I'd never heard of it but now it's become my life. A disease so rare only 1 in 160,000 people are affected, yet both of our children have it. Brandon's bone marrow is failing and currently there are no good donor matches. Brianna isn't symptomatic but doctors predict she will experience bone marrow failure within the next few years. There are only two centers in the country that specialize in this syndrome and we have chosen to take them to the Fanconi Comprehensive Care Center at the Cincinnati's Children's Hospital. All funds will be used to cover medical expenses and travel/lodging expenses in order to provide our babies with the best care possible. Thank you, thank you, thank you for your donations!
HOW CAN YOU SIGN UP TO SAVE SOMEONE’S LIFE? Blood type does not matter. The test is a quick and painless cheek swab and you can opt-out at any time. The test takes less than 5 minutes and you, yes YOU, could save someone's life! Here's how you can register...
* Order a test kit! You can order a FREE kit online at www.bethematch.org/join. Click "Join Online" and when prompted, enter the promo code "Family" to receive a free kit. The online drive is open only through 3/31/15. Request your kit today!
MORE WAYS YOU CAN HELP BRANDON & BRIANNA
* Follow & share our story.The more awareness we can raise to this terrible disorder, the better our chances of finding a cure. Please follow and share any of our links:
Facebook - facebook.com/bowandarrowbabies
Instagram - instagram.com/bowandarrowbabies
Please email [email protected] with any questions.