My 7 month old nephew, Pip, was just diagnosed with FPIES. FPIES is a very rare, delayed onset, allergic reaction to even low allergen foods. Babies with FPIES react by having severe vomiting, lethargy, low blood pressure, diarrhea, and possible shock. It is a severe, life-threatening illness. Pip is requiring treatment by a specialist and they are working on figuring out how to nourish this baby. So far Pip reacts to yams, baby cereal, bananas, pears, milk, and soy. The doctor suspects that he is also reacting some to his Mama's breastmilk. Pip will require very costly elemental formula to eat at this point in time. Insurance should eventually cover this cost, but it could take some time. In the meantime, Amber, Pip's Mom, is overwhelmed with medical appointments, a recent move, recovering from a car wreck (that occured the day before Pip was diagnosed with FPIES), and taking care of her 3 other young children. I am requesting help to get this family back on their feet. Help with starting Pip on the elemental formula until insurance covers, help to cover babysitting while Amber takes Pip to specialty appointments, help to cover some household help while Amber cares for her sick baby. Any donation is helpful. Thank you so much for your generosity! Please check out the photo gallery to find a video that will teach you more about FPIES and the impact it has on the children and their famlies.
Since I origionally posted this fundraiser, Pip has developed other medical complexities. He will be evaluated for potential craniosynostosis (early fusion of plates in the skull) in Salt Lake City, UT on Wed, January 28. Even after having his FPIES completely under control with medical formula andn a feeding tube, he struggles constantly with nausea and vomitting. It is time to get to the bottom of what is causing the problem.
Amber keeps a blog where she posts pictures and updates as well: mirroringgrace.blogspot.com/2015/01/mildly-complex.html?spref=fb