HEART BEATS FOR CASTAN, A CHILD WITH HLHS

For: Castan Schisel/ Ron and Marlena Schisel
Organizer: SHELLY SCHISEL KAUTZA
$17,088
of $20,000 goal
85% Complete
This fundraiser is closed. Thank you for your support!

The Story

My nephew Castan Schisel was born on May 21st 2013 at the Milwaukee Childrens Hospital with a heart condition known as Hypoplastic left heart syndrome. This rare disorder is the underdevelopment of the entire left side of the heart which results in blood not being pumped properly and needs to be treated with a 3 stage surgical process.

( Update as of July 19 th 2013) 
Castan has now been put on the Heart Transplant list , priority 1. He could get a heart tomorrow or a month from now, just hoping for a miracle that he becomes strong enough on his own! So please keep,this in mind as you read on. 

One week after Castan was born, which was a scheduled C-section,  he underwent the first procedure called the Norwood and is currently recovering from the initial surgery and hoping to be coming home soon! Unfortunetly it will be a short time home and he will have to make the journey back to Milwaukee for the next procedure which usually occurs at 3-6 months of age and the final at 18 months to 4 years . Even if successfully treated , children with this conditon have a high chance of health problems for the remainder of their lives..

Castan, as well as his parents, Ron and Marlena Schisel, and 3 older sisters, Mekenzie, Morgan and Maddie, have been close by his side helping him along each and every day, 3 hrs from their home in Antigo. Until he can be strong enough to come home they have been extremely focused on staying together as a family, they have been living at the Ronald Mcdonald House located directly accross the road from the hosptial. Being there a few times myself it is a live saver for families like theirs in need, they are extremely greatful for this but without Ron and Marlena being able dedicate time to the business they own together in downtown Antigo , they do not have the income they once had. I have seen first hand how their entire life has been completly turned upside down and even though we can not take away the stress and only image what they are having to endure, there are ways to help with donations to make this uncertain road a little easier for them to travel!

Please take time to look at the pictures of Castan, read up on his condition and do what you can to help him and family out!

Donations can be made directly on this website with debit or credit by clicking on the blue "Give Now" icon on the right side of the page

or 

  you can contact the Covantage Credit Union (Castan Schisel Benifit- Act#99911)
If you choose to call the bank directly please still make a note/comment on this page knowing , with your name or if you choose to remain anonymous, just so we can keep a tally of donations earned!

723 6th Avenue
Antigo , WI 54409
Phone : 715 627-4336

Thank you!
~Auntie Shelly

Fundraiser Updates

Posted on December 15, 2013 by SHELLY SCHISEL KAUTZA
Today I will extend our goal, many prayers needed... Feb 2014. X fingers.  

Posted on November 22, 2013 by SHELLY SCHISEL KAUTZA
What an awesome day at Antigo middle school! Shirts were made in honor of Castan and Mekenzie got to do a little speech:)   What a great little lady! Morgan was also there to support !  

Posted on November 19, 2013 by SHELLY SCHISEL KAUTZA
Well it's again been awhile since a new post, but that's due to no changes.. Well untill the past couple days!  Castan went I to have a procedure done to try and find yet again were the drainage was coming from that bad stalled him in being put back on top of the heart transplant list.  For some unexplained reason even though nothing was performed, Castan has been drastically improving and drainage is stopping.  We are hoping this is a good thing and it is I fact gone vs some sort of a blockage. Drs will look to hopefully take out tubes in the next day or so and continue to ween him of meds. This is just of course all to be taken with the possibility of false positives so please pray this is step ahead for him yo come home. The goal was September, since moved to Christmas.. with the slowing of his healing process I now say February 13 th will be a good day to bring him home! Please continue to pray for Castan who come This Thursday will be a half f a year old.. And never left the hospital .   

Posted on November 19, 2013 by SHELLY SCHISEL KAUTZA
Well it's again been awhile since a new post, but that's due to no changes.. Well untill the past couple days!  Castan went I to have a procedure done to try and find yet again were the drainage was coming from that bad stalled him in being put back on top of the heart transplant list.  For some unexplained reason even though nothing was performed, Castan has been drastically improving and drainage is stopping.  We are hoping this is a good thing and it is I fact gone vs some sort of a blockage. Drs will look to hopefully take out tubes in the next day or so and continue to ween him of meds. This is just of course all to be taken with the possibility of false positives so please pray this is step ahead for him yo come home. The goal was September, since moved to Christmas.. with the slowing of his healing process I now say February 13 th will be a good day to bring him home! Please continue to pray for Castan who come This Thursday will be a half f a year old.. And never left the hospital .   

Posted on November 5, 2013 by SHELLY SCHISEL KAUTZA

It has been a little while since I have updated but not much has changed. Castan is still awaiting to be transfered back onto the heart donor list by regaining his health.
It just seems to be a waiting game but we are all so happy he is fighting:)

Today Booster.com made the transfer of $280.00 to Castans account from the Mudding for Castan tshirt sales.. Thank you all so much!


Posted on October 21, 2013 by SHELLY SCHISEL KAUTZA
Catan did well during Thursdays procedure and drainage is down but not like the Doctors were hoping.. Let's pray it keeps going down. They did find were they were assuming the problems were but it will takes some time to know for sure .

Posted on October 17, 2013 by SHELLY SCHISEL KAUTZA
Today will be yet another surgery for Castan to try and locate and stop the drainage.

Around 7:30 he will be getting an MRI and hopefully the doctors will locate where the drainage, unfortunely options are running out and this needs to work!

This procedure is called a therasic duct ligation.

Lets hope the cause of this is found and fixed today!

Posted on October 11, 2013 by SHELLY SCHISEL KAUTZA
Well i have a new update that Castans mom would like to share-

WELL I WAS HOPING TO GET TO HOLD LIIL MAN TODAY BUT HE HAD A ROCKY NIGHT SO THAT WILL NOT BE HAPPENING TODAY:(
HIS TEMP AND HEART RATE WENT UP AND HIS STATS WENT DOWN.. WAS GIVEN SADATION BUT THAT DID NOT HELP SO THEY HAD TO VEX (PARALIZE) HIM AND COOL HIM CAUSE HIS TEMP WAS SO HIGH.
TODAY HAS BEEN GOING A LITTLE BETTER HE'S OFF THE COOLING PAD AND TEMPS BEEN STAYING LOWER HIS BP AND HEART RATE IS BACK TO NORMAL AND COLOR IS GREAT,ALTHOUGHHE IS STILL VEXED. THEY ARE RUNNING BLOOD TO SEE IF HE'S GOT AN INFECTION  AND ALSO DID SWABS TO SEE IF MAYBE HE'S GOT A VIRUS. SO THAT MEANS WE GET NEW OUTFITS! MORE FAMILY PICS TO COME AND STAY TUNED,
MARLENA

Posted on October 11, 2013 by SHELLY SCHISEL KAUTZA
Well I know it has been awhile since I have made a post but not much has changed.
Castan is slowly getting stronger but he still has a high amount of drainage that they are hoping gets better on its own before they have to do another surgery. His chest was closed a few days ago and he is going down on his meds. If the drainage can go away ( most important) he can be back on the road to being put back on the heart transplant list.

Posted on September 20, 2013 by SHELLY SCHISEL KAUTZA
Well it has been a pretty good, stable few days and all and all a better week. Castan is still heavily medicated but about 3/4 awake. Hoping for more good days ahead.  The last two weeks have been the most stressful yet remarkable, he is still with us today and we thank the drs, nurses , staff , god and everyone's prayers for this. He's come so far no turning back!  

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