Posted on April 23, 2015
Posted on April 23, 2015We will be leaving for Boston on Monday. The details of our Med flight are being arranged. Hudson will be transported via ambulance to Raleigh Durham airport and Shane will be flying with him and a team of medical professionals to Boston Children's. There is limited space on that plane and because (as a woman) I have all of the luggage..I will be flying in to Boston commercially and meeting them there. We are estimated to be there for 3-4 weeks , possibly longer if complications arise. For now Emerson will be staying with my sister, Mom and Dad here in Fayetteville and continue going to school. I'm going to miss her so much....so she may come up for a while, I just always struggle with the appropriateness of her living the hospital life. I want what's best for both babes...even though I want to be with them both.
For now he's fast asleep after some floor time and I've gotten some pretty great hugs from our favorite nurses to carry me through the days.
Posted on April 23, 2015
Posted on April 23, 2015During rounds this morning our team revealed what I was hoping not to hear. That they think this is his heart telling us it's time for surgery. We definitely weren't anticipating this.
He has already had another IV placed, a non-heart related bloody nose, and we have only somewhat started discussing surgery options. Thankfully, we are really close to our cardiac team here and they seem to be on board with whatever we want to do. We have made some med changes in hopes of lowering his oxygen requirement. Right now he sits pretty much at the max before he needs to go to the ICU for high flow. We need to lower it enough to create some room to bump him up if need be. That would allow us to be discharged and immediately head up to Boston (on our terms, though). He also expressed that if we cannot make any headway and have him healthy enough for discharge we had the possibility of doing a transfer from hospital to hospital and that wouldn't be an issue. My main concern now is that Boston has to determine he is still a good candidate for the melody valve. Fingers crossed and I will keep you updated.
Posted on February 7, 2014
Posted on February 7, 2014https://facebook.com/HealingHudson
Unfortunately we find ourselves back here. I thought this was in our past...I thought Hudson was healthy. During a routine surgery for a gtube, post op blood work raised a few concerns. After a bone marrow biopsy on Tuesday it was confimed that he has leukemia. He was admitted yesterday (Wed.) and had his first dose of chemo today.
Visit Hudson's fb page for regular updates and pictures. It's definitely easier to update this way. Thank you. For joining us in this new fight. Hudson's got this......he will be home again.