Posted on March 31, 2014
I want to begin by apologizing to everyone who has shown show much love and compassion in following Morgan's journey
in her battle against GBM for having not posted an update in so long. I am sincerely sorry.
If I remember correctly, and I hope I do, you all should know that Morgan's last MRI was not good news. She had a recurrence of tumor growth in the frontal lobes of her brain. Neither tumor is operable, so she has changed her approach in how her cancer is being treated. She is taking part in a clinical trial through Sarah Cannon Cancer Center
, in large part because St. Jude Children's Hospital
refused to return our phone calls. Thank you to St. Jude... Anyway, research indicates that cancer cells signal one another when it is time for the cells to divide and multiply, much like honey bees communicate with chemical messages. Doctors believe they have identified the neurological pathways used by the cancer cells in order to communicate. Sarah Cannon researchers are working to find a way to "block" or at least disrupt the neurological pathways used for cells signaling one another to divide. Mo is currently taking 60 mg a day of an experimental drug known as BKM 120. This is an investigational drug not yet available to anyone outside of this clinical trial.
The hope is that by interrupting the chemical messaging between cells, the cancer will at least show a slower rate of growth, and if highly successful, the cancer would die. She continues taking the Avastin, as her doctors at Duke University highly recommended she do. So, as things currently stand, she takes Avastin through IV every two weeks and 60 mg of experimental medication each night. So far she has tolerated the new medicine well. She has only been sick a few times and she is in her third week on the new chemo.
There is so much going on that I can't possibly get it all out. Although she seems to be holding her own physically, she is having a tough time with depression. Since my last post, we attempted to have eggs harvested so that Mo could experience motherhood. Unfortunately, the Avastin has damaged her ovaries making that dream impossible. Since learning that, I have noticed a difference in her disposition. She is not eating well which has resulted in weight loss
. She was 92 pounds last week. While she has never weighed more than about 110lbs, 92 lbs scares me. I will see that this is discussed a her next appointment, which is this Wednesday. She will have lab work, Avastin, and then a doctor consultation.
Mo has given me a "Bucket list" should she nor survive this fight. She has mentioned Niagara Falls, Yellow Stone National Park, and Disney World
. Soon, I also hope to take her hot air ballooning, skydiving, and a trip to the mountains, as she has never really seen much of Gatlinburg. We leave for the mountains April 4th, and we will begin working on the others as God provides a way and time allows.
A quick thanks to The Range, Inc., for hosting
a benefit competition shoot set for May 10th, and also to Kenny Bell
, former Alabama receiver who has stayed in touch with us even as he prepares for what will hopefully be a great NFL career. Also, I cannot even begin to count the letters, calls, and even people donating to her medical fund. Someone recently donated $300.00 to her, and did not give a name. All I know to say is THANK YOU ALL! Our friends, family, our Face Book family, and most of all, out Lord Jesus Christ. We would have never made it this far without you
Morgan's Dad and Mom...Richard and Sherrie