Posted on May 10, 2016
Posted on May 10, 2016First let me start off by saying I'm sorry I haven't updated yall in a really long time! As you can imagine it's pretty busy in our house! But I'll try and recap the last few months in this update. So the girls are doing great, since we moved back home Faith has been battling ear infections every week it seems. She got tubes put in her ears in January then at our six week post-op check up we learned the left one fell out. Bummers! But doc decided to see how she did without it to hold off another operation but she's already has three so looks like she'll be getting it put back in pretty soon! When we came home last July Addy (faith) was on the vent 24/7, now she is able to be off her vent while she is awake and only using 1-2liters of oxygen which is amazing! She's scooting around on her bottom and pulling her self up to a standing position, she walks with assistance but is still very stiff and you can tell her legs are weak! But she tries hard! We're hoping to start weaning her off the vent at night too, after a sleep study is done to tell us if she can! So please send your prayers for Faith! Now on to Hope! Well my little wild one is EVERYWHERE! She's walking, climbing, trying to run! She's still on very little oxygen at night and she too will have a sleep study done to determine if she has sleep apnea which I'm pretty sure she does but who knows God works in mysterious ways! She's had a few ear infections not to many and we have managed to keep both girls out of the hospital! Yay, that's huge! They both still get feeds through g tube but they both eat baby food also a very small amount! They will taste just about anything you give them which is great cause before they wouldn't even let you near their mouths! They are great sleepers, they love to snuggle and give kisses! We have learned patty cake, working on itsy bitsy spider and love to clap to music! They are so much fun to be around! Both girls are silly, smart, determined to do everything and very loving! We welcomed another baby girl in September of last year and she's about 8 months old now and loves her sisters! Hope loves Mia but Faith, not a big fan! Lol! Pretty soon I'll have three munchkins getting into stuff, once Mia learns to crawl we'll be in trouble! Big brother is also doing great, he has had a wonderful first year at his school! He had a hard time in kindergarten and was kind of behind when he started here but now he's advanced and now testing above where he should which makes him very happy! His teacher is amazing and has been absolutely wonderful with him! We're very grateful for her! He's playing baseball right now, we did football in the winter and he's looking forward to playing basketball! Please continue to send us your prayers, they are definitely being heard and answered! I'll try to be better about updating maybe every couple of months since not much is going on! I'll post pics for you guys too! Thank yall so much for your support, we love yall!
Posted on August 10, 2015
Posted on August 10, 2015Well we have been home for a little over a month now and it has been great! Both girls have adjusted very well to the difference in climates aside from having to take allergy meds! Faith has had two ear infections since we've been home but I'll take that over a lung infection any day! She's started rolling over which is very exciting considering she's got a trach and she's on the vent 24 hrs a day! She's growing and growing and getting stronger and stronger every day! Hope had started "crawling" she's every where now including getting into cabinets, the trash, trying to escape out the door! She's loving it! They are so happy to be home and be able to play with their big brother, it's nice to be able to wake up and have all of us together in one place! The nurses have been awesome they have pretty much become part of the family! We want to thank everyone who has prayed and supported us through this whole journey! We love yall so much!
Posted on June 12, 2015
Posted on June 12, 2015Wow what a busy month it has been! Knatalye Hope was discharged last month and has been home for a month now! She has done amazingly well adjusting to life out side the hospital! Our Adeline Faith was discharged Tuesday to join us at home and she has been doing amazing as well! She is so happy all the time and seems to be at peace being here with us! Azariah is the best big brother they could have, he loves them so much and they know it! They both light up when he walks in and addy gives him the biggest sweetest hugs! It feels so good to have both of our miracle babies with us all the time, to wake up and just walk up to their beds brings us so much joy! Not having to say bye every night is such a relief! We want to thank every one who has supported us through this long 15 months! All the prayers encouraging words and donations have made this journey easier to get through! God has blessed us and continued to bless us, he shows us what he is capable of doing! Please continue to pray for us as we prepare for the journey back to Lubbock, it won't be for a few more weeks but it's getting closer and closer! Thank you all so much and we love yall! I'll be posting pics so check them out!