Caring For Callie

For: Callie Carver
Organizer: Supporters of Callie
$6,305
of $10,000 goal.
Raised by 41 donors
63% Complete
This fundraiser is closed. Thank you for your support!

The Story

Callie was born September 2007 with an extremely rare, complex congenital heart defect. She has Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s & Hypoplastic Right Heart Syndrome. Up to this point she has had 8 heart surgeries,13 heart caths & over 30 blood transfusions. Callie and her family live in Florida and all of her surgeries are performed at Lucile Packard Children’s Hospital in California due to the severity of her heart condition.

In the past few weeks Callie's oxygen has dropped drastically and an echo revealed on Monday, Jan. 6 she is outgrowing her shunt she has which is her only source of blood flow to her lungs. California needs to see her ASAP and has her flying out to see them on Tuesday, Jan. 14 for a heart cath and her 9th heart surgery is on Wednesday, Jan. 22.  

Travel to California is a huge expense, on top of paying for lodging, transportation and meals. In these situations this family depends on the love and support of others around them. This trip is very unexpected and is happening very quickly for her family, please pray for Callie and this journey she is on.

You can read more about Callie's journey at www.caringforcallie.com

Fundraiser Updates

Posted on January 28, 2014

Posted on January 28, 2014

Callie moved from the CVICU to 3 West which is the step down unit. She had all her lines removed yesterday and not only has one IV for access in case we need it. She is back on all her oral home medications. Her blood pressure is still running a little high but seems to slowly be improving. Her chest tubes continue to drain which is the main thing keeping us in the hospital. You never can tell how long a chest tube might drain but we prayer not much longer. She is having some pain here and there but that is to be expected. 

Here is Callie and 1 of her nurses from the CVICU, this was the 1st time Callie had been out of the bed since her surgery....they were showing off their tattoos. Callie has been giving them to all her nurses, including Mommy and Daddy! Today, we were able to get Callie to the playroom in the afternoon and evening so tonight she is pretty tired. Tomorrow we hope to get her over to the school in the hospital here just to keep her active and learning as much as she can ;-) 


Posted on January 26, 2014

Posted on January 26, 2014


Think this picture says it all!
Callie is doing awesome to be just 3 days post op. The doctors are so pleased with her recovery especially since she got a late start off the ventilator compared to most glenn patients. She spent a whole extra day on the ventilator rather than getting off in a matter of hours like most patients. Callie's Glenn procedure was a very unique procedure it was not performed the conventional way and we are so thankful for surgeon who was able to successfully perform this surgery despite Callie's complex little heart. Dr. Hanley will never know how thankful we are for him and what a special place he holds in our hearts. 
Callie had some lines removed today and is back on all her medication from home, she has started back on her night feeds and she is only wearing oxygen here and there in hopes to help her heal faster. The oxygen isn't a requirement but the doctors believe that in glenn patients it help their recovery if they wear it as their healing. So, we try our best to keep it on her even though she hate it :-/ Callie still has her chest tubes and we are praying that they will stop draining so she can get those out ASAP. Her blood pressure is high right now so we are working to get that under control. So, the 2 main prayer requests are for her blood pressure issue to resolve and the chest tube drainage to dramatically slow down. At this point those are really the only things keeping her from being discharge.
I amazed when I look at her and just how resilient she is, the child seems to rock surgeries like a champ! She has more strength and determination than really anybody I know. I am thankful the Lord has allowed me to be a Mommy to such a special little girl. Again, thank you for the continued prayers, for all the financial contributions it has helped us out in ways that you can only imagine. 
Also, we finally got a room in the Ronald McDonald House as of yesterday. Praise the Lord! It feel like we would never get in...this is a huge blessing. 
I know I haven't been on top of my updates but I am trying. Callie has been very demanding this go around and she is wearing me out ;-) 

Posted on January 24, 2014

Posted on January 24, 2014

Today was a pretty good day. She is still intubated, they want to give her more time to rest and all the work she had done to settled and make sure it is healing before they extubate. Basically, they are just being extra careful with her. Her lungs look good on x-ray, her blood gases are good. Her blood pressure has been a little crazy and it has been a balancing act all day! She was a little wild earlier today but they seem to have her sedation under better control this evening :-) 

Tomorrow morning sometime they will try and extubate her and please pray that all goes well and there is no complications. She is doing well for having had such a big surgery but she has watchful eyes on her due to her complexity and passed issues. 

Until tomorrow, I will leave with this pic....

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