Day 26 of Recovery
The results from Jake’s first bone marrow biopsy came back late Friday night, June 14th. They were discussed by the teams of Doctors both here at Yale, and at Dana Farber in Boston throughout Saturday. The decision was made to wait until Wednesday, June 19th, and perform a second bone marrow biopsy to determine the best treatment path to follow. Those results came in late Thursday night, and on Friday morning, it was decided that a second chemotherapy infusion (similar to the first, but scaled back to 5 days) was the next step and would start later that day. This should hopefully spare Jake a much higher dosing later down the road as he prepares for a bone marrow transplant. The drawback is he will remain neutropenic (highly susceptible to infection) for an additional 4 weeks as he recovers, which means he cannot leave the hospital or begin to have visitors during this time. It also delays the moving to a dedicated rehabilitation facility for more aggressive physical therapy. Jake will continue his daily therapy with the hospital PT staff, to keep body parts moving, by both stretching and strengthening.
PT has continued to go well and shown significant progress. Initially, it took several people to stand Jake upright, having to support all facets of his body. After only 4 days, Jake is now able to keep his legs and hips steady with gentle reminders to hold his torso and head up. He has also shown that when he puts weight on his left leg, muscles are activating to keep him upright, which is great news as the primary goal has been to continue to teach and reactivate left side muscle control. With heavy coaxing, and lots of support, he has walked across the room twice which was very exciting. With Jake’s now ongoing PT, he also received a new pair of Vans yesterday and can officially retire his old pair, much to his therapist’s delight.
We want to thank everyone for all of the ongoing support, cards, notes, posts, tweets, prayers, thoughts, and conversations. It gives him and us the strength to keep pushing forward towards recovery. Jake will finish his second round of chemo Wednesday afternoon and will have another biopsy shortly after. Please continue to send positive thoughts and prayers his way.