It has been a long time since an update and we apologize. On 5/22/14 after undergoing various tests, ordeals and working on gaining weight, getting his strength back and coming to the realization of what a devastating injury he had happen to him, Brett was dicharged from Mass General but stayed in Boston for close to a month with his parents to continue his therapies and see the surgeons frequently to monitor his condition. Although he has his ups and downs we are very proud of Brett for his overall determination. He attends all of his appointments even when he is not up to it, he pushes through to the next level of healing even when he is frustrated and down. Brett's high school worked with him to finish his studies and he was able to graduate with his class on June 28th and even though he will continue to have many Dr. appts, therapy appts. and future surgeries, Brett has started the process of applying for college.
Since returning home mid June, Brett has been going back and forth to Boston for his Dr appointments. The first few weeks it was weekly, now it is every 2 weeks. He attends Occupational therapy 2 times weekly and does his own OT therapy 2 to 3 times daily as he has to keep all his joints loose and moving. Brett does not have feeling or tendons in his right arm below the elbow. Next weeks Boston appointment will entail discussion of his next surgery of a tendon transplant and a tentative date. He will also have to undergo future surgeries for reshaping of the arm.
At this time hospital bills, medivac and medical expenses copays are tens of thousands of dollars. Frequent travel expenses to Boston and future stays in Boston for Brett's future surgeries are overwhelming. We are asking for donations for Brett and his family for these expenses to lesson their burden during this time. All thoughts, prayers and donations are greatly appreciated.
For the first few days of being off the ventilator Brett was oriented to his family and the fact that he was in a hospital, however he had no idea what had happened to him. After reading some greeting cards that many people had sent to him he had a flashback of the accident which was very difficult for him and since then has been coping and trying to process this as well as he can. He is eating a regular diet at this time which took several swallowing evaluations to get to this point because of being on the ventilator so long. He has lost a lot of weight and stamina during this time and is being given high protein and calorie intake to make up for this. Brett was a naturally thin person anyway so this has really taken a toll on his body. On Monday he underwent another surgery to wash out and debride the wound which overall went well. At this time the concern is that he continues to heal without infection. We are very thankful to everyone for keeping Brett in their thoughts and prayers.
Brett has been moved to Ellison 14- Room 1430.
Brett was taken off the ventilator today and is being sedated at this time to prevent him from injuring himself. He has been on a lot of medication and they feel it will take time for him to be able to realize he is safe and be able to be calm. Brett did have some complications with his lungs since the last update and underwent a procedure to help this which is why getting him off the ventilator was delayed.
April 30, 2014-WOW- Alot has happened since the last post. Brett has been through two lengthy surgeries since then. His second surgery on April 28 lasted approximately 6 1/2 hours and the surgeons were able to reattach 2 out of the 3 nerves that they intended. They were unable to make any progress with the tendons. A third surgery was planned for the next day in the afternoon to do a muscle and skin graft. Brett developed increased bleeding from the operative arm and hand swelling and was taken emergently into surgery in the morning. He had developed clotting in a vein which was remedied along with putting another vein in place. After this, the originally planned surgery was performed and lasted approximately 12 1/2 hours. The surgeons are "cautiously optimistic" that the surgery will be successful but there is still a chance of clotting and infection and again taking it "minute by minute". Brett remains on a ventilator at this time with the intent of waking him tomorrow. This update is only a part of what Brett has been through-it is overwhelming to think of all the care and treatment he has received to keep him safe and stable.
We thank you all for your overwhelming support, your kind words, your prayers and for lifting us up when we fell. We are so grateful.