Posted on May 16, 2013
Greetings from the Graham family,
It has been awhile since our last update. Boyd intends to write to the wonderful people supporting him, but he is very often too exhausted. When he isn’t exhausted he tries to make the most of the time – spending it with me, playing with our baby, or going to his older son’s little league games. It appears that his “new normal” is to have energy in the beginning of the day, say from 8 to 11am, and then he is completely wiped out (napping) until evening. We learned several weeks ago that I need to wake him up for more food at around 1pm or else he won’t get that evening energy.
Yesterday, Boyd had a CT scan of his abdomen to see if these past 6 weeks of chemotherapy have been working. The news we get at our follow-up appointment next week will be one of three possibilities: 1) it hasn’t been working at all, the tumor is bigger, and we need to find another treatment and again hope to make progress before it is too late; 2) It has been working; the tumor is smaller, and he needs to jump right into another 6 weeks of treatment; or 3) stalemate, the tumor is the same size and the doctor can decide to keep with the same drug cocktail or try something different.
Boyd has run out of his accrued leave from work. Luckily his employer does have a sick bank that Boyd was a part of, so we may still count on a couple more paychecks for him. I am unpaid until I can return to work. This fundraiser is a huge help so we don't have to worry (just yet) about losing the house, or being able to pay all of the incoming bills.
We are struggling to stay positive. Boyd has abdominal pain all the time that is managed by medication. It has been with him since January. Long term pain can be demoralizing; an uncertain future certainly is. But he has promised me and stated plainly to the doctors that no matter what the scan says he is going to keep fighting. He is not ready to give up.