Posted on July 28, 2014
Bijou's Big Day
By Cara Leger— Jul 17, 2014 8:23pm
We have been waiting for today's appointments at Cincinnati Children's Hospital since the end of May. It was a long wait to see the Cardiologist and Pulmonologist, but well worth the wait! We met many new doctors today, and though it was a long day, it was a good one!
Our day began with an echocardiogram followed by an EKG. Both of these tests check Bijou's heart function. They are non-invasive tests that she has had dozens of times. Today, like every other day, Bijou did great! After the tests we met with the doctors. In Hong Kong any time we were in a room with more than 2 doctors, it was always followed by awful, horrible news. Today we had several doctors in our room, and only good news was shared! God is so much better than good! The doctors today concluded that Bijou DOES NOT have pulmonary hypertension AND her heart is "NORMAL." Normal is in quotation marks because it is a direct quotefrom the doctor! John and I recall hearing her HK doctors telling us (many times) that Bijou's heart was as good as it could get back in April and May - that it wasn't normal, and would not get any better than it already was. True healing has certainly taken place! It is the only explanation. Her heart was not normal before, and in the opinions of multiple experts, it would not get better. Today it did.
Over the next few weeks Bijou will take part in some lung function tests, this is a really crucial piece of the puzzle. We covet your prayers as these tests take place. They will include another CT scan, a 6 minute walking test, an overnight sleep study (IN our home!!!) and some breathing exercises. All of these tests are also non-invasive, and things we are confident Bijou will be able to do without trouble. We are praying that her results will continue to show improvement beyond what any medication or human doctor can do! Please pray with us about Bijou's diagnoses of pulmonary fibrosis and interstitial lung disease. Pray that the damage done to her lungs is reversible, and that these test will prove her complete healing.
After the tests and visits with all of her doctors, Bijou had some blood taken, x-rays, and went to physical therapy. Once again, Bijou performed like a rock star during her stretches and exercises. The physical therapist had to keep coming up with more and more difficult activities for Bijou to accomplish. Her favorite part was riding the bikes through the hallways! I was having so much fun watching her, I forgot to take pictures! We were at the hospital from 8am - 4:30pm. It was a really long day, but such a short day in comparison to some of the days we have had since the end of February.
Each day with this girl is an amazing miracle. It is a miracle to have her alive and breathing. It is a miracle for her to not need to be on oxygen or any other machine or support. It is a miracle that she has been steadily gaining back muscle and strength. A few months ago, my little BumbleB was confined to a hospital bed, was breathing artificially, and had multiple organ failure. Today Bijou sings, Bijou giggles, BIjou swings, Bijou climbs, Bijou plays, Bijou crawls, Bijou dances, Bijou walks, Bijou hugs, Bijou talks, Bijou rides, Bijou lives.
Our family is so thankful for the prayers of our family, friends, and numerous strangers. There are so many of you that we don't know, but we are so grateful to you for your faithful prayers and encouragement. Please remember Bijou and our family in your prayers.