Ben was born at 35 weeks gestation on October 11th, 2011, one minute after his sister, Ainsley. Ben was doing great initially and went to the regular newborn nursery. His blood sugars began to fall and he was transferred to the NICU. Other than the blood sugar issues Ben was termed a "feeder and a grower" meaning he had no major problems. He was breathing fine on his own. He didn't have jaundice. He just needed to figure out eating and get a little bigger before he could go home. After about three weeks of not getting the hang of feeding he had some testing done including a swallow study and a MRI of his brain. We found out on Saturday, November 5th that at some point around the time of his birth Ben had suffered a perinatal stroke. A large portion of the right middle part of his brain had been deprived of oxygen. We were left to wonder what Ben's life would be like. Would he be able to walk? Would he be able to talk? The only answer was "wait and see."
Well, as I type this he is walking back and forth from the closet where we keep the dog food to Daisy dish and giving her food, one handful at a time. And every time he tells me, "I feed Daisy!"
Ben has significantly limited use of his left hand and arm and was recently accepted into one of the leading constraint-induced therapy programs in the world. In January we will travel to Birmingham, Alabama for three weeks of intensive constraint-induced therapy. Ben's right hand, his "good" hand, will have a cast put on it basically making it non-functional. He will be forced to use his left hand and train his brain how to do it. It's going to be hard, both emotionally and physically, but it will be so worth it to improve the function of his left hand.
He'll never be a concert pianist or a surgeon or probably even a great typer, but his quality of life an be improved by learning to use the left hand in some manner and we'll stop at nothing to give that to him.
Thank you for your kind donation to help get Ben to Birmingham. Any money raised will go towards plane tickets, housing and food while we are there as well as the actual cost of the therapy.
God bless all of you!