Believing for Desi

For: Desirae Cechin
Organizer: #TeamDesi
$104,939
of $300,000 goal
34% Complete

The Story

Desi was diagnosed on April 16th, 2014 with Stage IV High-Risk Neuroblastoma. She has been undergoing chemo treatments at Loma Linda University Children's Hospital and is currently a week away from treatment #3.

Desi's family would like for her to be seen at Memorial Sloan Kettering Cancer Center (MSKCC) in New York. They specialize in Neuroblastoma and have a higher percentage rate of survival with Neuroblstoma than any other hospital in the US.

They also have a resection surgeon there who performs 2-3 surgeries a week. He has a signature way of being able to remove 100% of the tumor.

The hospital is also the ONLY hospital in the US that uses the 3F8 Monoclonal Antibody (MAB). This MAB uses a radioacitve isotope to guide the medicine to the protein on the outside of the cancer cell, latches on and then communicates to the cancer cell that it is "OK" to accept the chemo and then the cell dies.

Cancer cells are very intelligent and 3F8 has found a way to out smart them!

Why don't her parents just take her there? Good question! They can't! Desi's insurance does not cover her going to to MSKCC, they only cover her at hospitals that are part of the Children's Oncolog Group (COG).

But, COG has a MAB too Ch.14-18... why not just use that? Ch.14-18 does not have the radioactive isotope and has been proven to be not as effective as 3F8.

This is the reason why we are aggressivley fundraising for Desi, she MUST get to MSKCC. There IS no other option. In order to give her the best odds at survival she must make it there!

Did you know that just by you sharing this site you are helping? YES! Share, Share & Share more; the beauty of social media is that it spreads and grows!




If you need to reach someone on the team please feel free to email BelievingForDesi@gmail.com or fightlikeaprincess@yahoo.com

Fundraiser Updates

Posted on February 17, 2015 by #TeamDesi
On February 6, 2015 the family sat down with Desi's team of doctors to go over her scan results.  Mom & Dad were looking forward to finally hearing those words that Desi has worked so hard for, NED (no evidence of disease).  Unfortunately, they heard the exact opposite.  Desi's cancer was back with a vengeance & spread.  She had as much cancer as she did at diagnosis, minus her tumor.
Desi was immediately admitted into the hospital.  She started a round of ICE chemo and has finished that.  
She is due for another round of ICE chemo & scans to see if the chemo is attacking the cancer.

Please continue to hold Desi in the light.  This is the first time doctors have mentioned not being able to do anything.  As you can imagine the family is heart broken over this news.  

Thank you for your continued support.

Posted on January 30, 2015 by #TeamDesi
A lot has been going on the last couple days. Yesterday was deflating. There has been a roadblock in Desi's treatment and we are now looking at a new plan of action to get back on track. I will get into that later once we have all the information from her team in NY. But for now, Desi has to have her tooth extracted. We found out on Tuesday at her dental cleaning that she has an infection and any ...infection in her body is bad news so it has to come out immediately.
Please also pray for guidance in all these future decisions that are in the works for her treatment.


Please follow her updates at www.facebook.com/believingfordesi 
You will find the most up to date info on treatment & how Desi is doing there.

Thank you for your continued support, love & prayers. 

Posted on June 18, 2014 by #TeamDesi
Desi made John Chapples's blog!

http://www.johnchapple.com/2014/06/believing-for-desi/

Posted on June 15, 2014 by #TeamDesi
Desi is one week into her 3rd treatment and has felt the effects of this round more than ever. She is unable to hold any food down and has been on 'round the clock anti-nausea meds. Please keep her in your prayers, she has one more round of the same chemo in two weeks, then round 5 will be different chemo's again.

Posted on June 12, 2014 by #TeamDesi
Desi is still very sick from the side effects of her 3rd round of chemotherapy. Please continue to pray for her. She is a tough cookie, but she is really feeling this round.

Thank you!

Stephanie Roose

Posted on June 10, 2014 by #TeamDesi
All of us at #teamdesi would like to personally thank everyone that's helped us so far. It goes to show you that every little bit helps. People have donated amounts ranging from $5 to $2,500 and we appreciate every single cent. Our goal is $300,000 for her specialized treatment in New York and we're nearly 1/2 way there!! NONE of this would be possible without YOU!! Thank you, from the bottom of our hearts. Please continue to share Desi's story and her funding site.

We are at $117,000 to date between the Wells Fargo account (used for checks and money collected from fundraisers), and this you caring account- so exciting!!! Please reference the photo that I uploaded of a bar graph :)
 - See more at: http://www.youcaring.com/medical-fundraiser/believing-for-desi/177969#sthash.7dY9i2EW.dpuf

Posted on June 9, 2014 by #TeamDesi
For those of you who prefer to send a check, or walk one into the bank:

You can go into any Wells Fargo and make a contribution to DESIRAE CECHIN DONATION ACCOUNT.

You can 
also mail them a check to:
Wells Fargo
P.O Box 3488
Portland OR 97208-3488
Attn: Desirae Cechin Donation Account

Posted on June 9, 2014 by #TeamDesi
I wanted to address a concern that was just brought to my attention. A few people have asked, "What happens to the money if we don't raise the entire amount?"

1. We will raise the entire amount- there is no other option.

2. If we do not raise all $300,000, Desi's parents will still send her to MSKCC and give up their home and any other thing that they have to, in order to pay for her medical treatment.

3. MSKCC is her only chance at LONG-TERM survival, that being said she will get there no matter what.

Thank you for your concerns, please feel free to reach out to me at anytime, if I do not pick-up my phone- please leave a message and I will call you back.

~Stephanie



Posted on June 8, 2014 by #TeamDesi
Hi everyone! Desi is currently on day 2, of chemo number 3. She has been admininstered Cisplatin & Etoposide and has had extreme nausea and has been very sick. Her parents opted for a small dose of steriods to curb some of the nausea and have been using a few natural products as well (peppermint & orange oil & sea bands).

Please keep her in your prayers as she gets through this 3rd (very tough round).

Thank you,

Stephanie

Posted on June 5, 2014 by #TeamDesi
Desi made it into the local newspaper here in the Coachella Valley today, here is the link for further reading!

http://coachellavalleyweekly.com/believing-for-desi/

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