Honestly, I didn't think I'd be writing another update.
I thought we'd fade off into the sunset and people would wonder what happened to Max as he jumped and played in his cancer-free new chapter.
Last Tuesday was supposed to be our "exit exam". We'd spent a very long day the week before getting images of his mid-section as a baseline for the next 5 years of watching for lumps and dots to show up. So far all the images had come up clear. I'd planned a big family celebration at the downtown aquarium for all 6 of us to end this chapter.
So when the doctor said, "Well... everything was mostly
good..." I knew what was coming. She said they'd found a 2 mm nodule in his lung. She said she wasn't worried about it. We'd continue with the plans to remove his port next week and we're not moving up his next CT scan 3 months from now. If she was worried, she'd keep the port in and we'd do the CT scan in 6 weeks. Well... I feel better. Thanks!
Actually, I just burst into tears. She was supposed to give us 100% clear news and slap us on the butt on our way out saying, "Get out of here you crazy kids!" She was raining on my parade. And now we had to wait 3 more months to see if this nodule grew. If it does grow... we start all over.
We. Start. All. Over.
To make things just a little worse, we got some really good news in a really bad way. A social worker was also in the room. She tells us (after the doctor leaves us) that "Max qualifies for Make-a-wish!" I know you're thinking, "What in the world is so bad about that?!" I can't really explain it. It just really made me more sad that my son "qualified" for Make-a-wish. It means he's really sick. It means he paid for it with months of tears and shots and barfs and being more brave than any of us. "You can go anywhere, do anything!", she says, "except ask for a house or a car." We could go to Italy. We could go to the Olympics. The whole family. It's like winning a grand prize! Until you realize how much Max had to pay. He literally gave up a kidney for this. Does it make sense that this amazing gift makes me so sad? I guess it would have been better if they said, "Make-a-wish would like to help him out" or something like that. To say he "qualified" just really put a sting on it.
Needless to say, we're pretty sure Max is Disney-bound. Apparently Make-a-wish kids don't have to wait in line. We'll get a lot of ugly looks from weary line-waiters. Should be fun! ;-)
So two things:
1) Please remember when you see kids cut in front of you at Disney that they may have paid a heavy price to piss you off.
and 2) For all the people who have supported and prayed for Max, we've made a T-shirt. They're $20. We get a small portion, so it's not as good of a fundraiser as THIS site. Mostly, we just wanted to see how many people we could get to walk around with "Beat Cancer Baby" on their back.
So if you would be so kind, please show your support with a donation on this site or by getting a t-shirt here:http://www.booster.com/supermax
hanks for your continued support and prayers. We are so grateful to you.
Kelly, Heather, SuperMax, Alex, Austin, and Jameson Duke.