Posted on June 5, 2014
Posted on June 5, 2014Hello all,
I would like to personally thank y'all for your kindness to my family. Going into a situation like this we were unsure of the road ahead, not only with the actual medical procedure but with our financial stability and ability as well. We were very much overwhelmed with your more than generous response to our family emergency!
I have responded extremely well to the transplant, so far! Praise God!! Of course, it will be some time still to determine long term success. I feel confident that my prognosis is positive. As of today, all tests are showing "negative" for BCR-ABL (protein marker that indicates presence of Chronic Myeloid Leukemia). Although my doctors tell me that "remission" is a fluid term, I am disease free for the time being. Further observation from mont to month and year to year will be ongoing. Only time will tell.
Today I am day +65 (post transplant). We still have 35 days to go until I can return home to Lafayette. It's a marathon. What a journey!
I have complete faith that we have taken the necessary steps and that I will remain cancer free!!!
Again, we thank you all from the bottom of our hearts for the outreach and support, whether emotionally, spiritually or financially. We could not have weathered this storm alone! Thank you for showing up for us!!!
Cory, Jeni, Lindsey & Asa Guidry
Posted on May 4, 2014
Posted on May 4, 2014Day +33 and counting! Last week Cory's appointments at the hospital have slowed down. He was able to stay home Saturday and Sunday with meds at home. He needs magnesium daily because one of the meds he's taking deminishes his own completely. The staff at MD Anderson had us watch a couple of videos and practice attaching a pump with with a nurse before they allowed him to skip some days at the clinic. It was scary at first, to go home without the help of the nurses, mainly because, uh, I had to flush his CVC line (catheter that is connected to a vein that goes strait to his HEART) then administer his magnesium. But no big deal, right?! Well, good news is, I haven't killed him yet!! The first day was rough, we were both very tense, but after doing it a few times we now have a system going. This week, he only had to return to the clinic 3 times. One of which was a bone marrow biopsy. In a couple of weeks his transplant Dr. will give us the results. This is really the only way they can tell if the transplant is actually doing what it is supposed to be doing. We'll know how many of the donor cells have taken over and how much of the Leukemia, if any, is remaining. The doctors are saying that Cory is doing fantastic:)
Finally, the boys got to come visit! We are enjoying our time together. Trying to stay healthy, clean and adjust to our life in Houston. We are so blessed!
Posted on April 22, 2014
Posted on April 22, 2014Cory's now on Day +22 and feeling well. He tends to tire easily, and food doesn't taste like it used to, but overall, these things are completely normal and will get better over time. He was released from the hospital the Saturday before Easter, which was so exciting!! Since then he's had daily labs where his blood levels are calculated. Results take about 2 hours, then he has to be put on fluids, usually magnesium, and depending on labs, he may need a unit of blood or platelets and sometimes Neupogen, which is an injection that boosts the white blood count. Cory loves it because it burns like fire going in, right into his belly, (that was a joke; he hates it!!) His appointments can take up to 6-7 hours. So the difference from being admitted in the hospital to where we are now is, we just don't sleep there anymore! This is like a full-time job! These appointments are daily and will continue for about 2 weeks. Hopefully then, he'll only have to go 3 times a week, and once his counts are where they're supposed to be, he'll have to go in once a week. He has to remain within 30 minutes of the hospital until day +100 in case of fever or any symptoms of infection or Graft vs. Host Disease and requires 24/7 care. Life is far from normal, but we are managing. Our boys were supposed to come and visit this week for Easter break, but Asa, our 3 year old has a cough and runny nose. Doctors made it clear that Cory can not risk coming into contact with someone who is sick. What a bummer!! Hopefully we can all be together soon. We miss being around our kids, especially hugs and kisses. But they are being well taken care of by their Nan. They even got to go camping with some dear friends for Easter and had a ball! We've learned to celebrate the small things and be grateful for simply "being able". Cory found out that he can eat fruits with a hard skin, that we wash and prepare ourselves. So we will stock up on a nice watermelon, avocado, and oranges today! Also, he is able to go to restaurants, grocery stores, even the movies. He just has to be very careful and not go anyplace during peak hours to avoid crowds.
Anyway, thanks for caring! We are lifted by your prayers and appreciate the love and light you've sent our way.