baby Ryder

For: ryder cannon
Organizer: kendra ware
baby Ryder (ryder cannon)
$9,538
of $10,000 goal.
Raised by 163 donors
95% Complete
This fundraiser is closed. Thank you for your support!

The Story

Hi my name is Kendra.   I met Ryders amazing family at primary childrens hopsital.  I have never met such a strong family and my heart breaks for them as i watch all they have had to endure.  Having a medically fragile child is more expensive then just medical bills (which by the way are daunting).   Its all of the little things that add up, driving the hour to primary childrens everyday.  Meal after meal in the hospital cafeteria, trying to still have some sort of normalcy with there other 3 children.  Then you add in all of the medical bills, oxygen, feeding tube supplies, medications, the list goes on and on.  I am starting this site in the hopes to help this wonderful family relieve some of the debt they have accrued since beautiful baby Ryder was born.  Please share, send prayers and if you can and would like to, donate.

here is Ryders story as told by his mom

Ryder was born Dec. 2, 2013 and diagnosed with a severe Congenital Heart Disease called mitral valve and tricuspid regurgitation and stenosis. He also has broncho and tracheomalacia, which means his airways collapse when he breaths. Not only is his heart sick, his lungs are weak too. At two months old Ryder underwent his first open heart surgery to try to repair his mitral valve. The surgery was unsuccessful as they discovered he had no leaflets within his valve. We then made the difficult decision to go forward with an experimental and high-risk surgery to replace his mitral valve. It had never been performed at our hospital before, but our surgeon had researched it and felt confident he could do it. About a month later Ryder had his second open heart surgery. The surgeon was able to successfully remove his mitral valve and replace it with what is known as a melody valve. After recovery and over 100 days in the ICU we were finally able to go home. Two months later Ryder ended up back in severe heart failure due to his melody valve blocking his aortic valve. After an unsuccessful attempt to adjust it in cath lab Ryder underwent his third open heart surgery in his short six months of life. The surgery was very risky and although the medical team was hopeful his outcome looked uncertain yet again. The surgeon was again successful and Ryder is currently recovering from this procedure.Although he has had MANY scary moments in his short life, the thing keeping us going is the prospect that he does have a promising future ahead of him. Once he is big enough he will need a more traditional valve put in. 

Fundraiser Updates

Posted on August 24, 2014

Posted on August 24, 2014

I am writing this update with a heavy heart. On August 20th Ryder grew his wings and joined his fellow heart friends in heavan.  This beautiful little boy is no longer in pain, while his family is left heart broken.  He spent 8 months on this earth enduring 3 open heart surgeries and waiting ever so patiently for a new heart to arrive.  We love this family so much and wish that there was something we could do to help ease their pain.  The one thing that i can do is help with the still daunting medical bills and now funeral costs.  Please pray for the Cannons and their other 3 children as they grieve losing their baby brother.  If you feel moved to donate to help allievate the financial stress that is also much appreciated. 

Ryders funeral will be on August 25th at 11 am in Orem (60 east 1600 north). He will be laid to rest in the Pleasant Grove cemetary. 

Posted on August 23, 2014

Posted on August 23, 2014

Here is a tribute to Ryder from Crystal Spencer photography who so graciously took pictures the day Ryder went up to Heaven.

http://photographybycrystalspencer.blogspot.com/2014/08/the-heart-warrior-ryder-cannon.html?m=1

Posted on July 15, 2014

Posted on July 15, 2014

Baby ryder made it through is mitral valve surgery successfully! Unfortunately his other valves have started to fail and he was placed on the active heart transplant list last night.  His mama could use some good vibes sent her way as the hospital becomes their home until sweet ryder can receive the gift of a new heart

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