Baby Ivy's Fight to Beat Cerebral Palsy

For: Ivy Helmick
Organizer: Samantha Chian and Ryan Helmick
$42,277
of $70,000 goal
60% Complete
This fundraiser is closed. Thank you for your support!

The Story

From the moment we found out that we were gonna have a baby we were ecstatic. For 9 months Samantha ate healthy, exercised, and went to every baby class you could think of. We could not have been any more thrilled to welcome our baby girl into this world.

Then on Sept 18th, 2013 things got complicated. We went in for the 38 week checkup and the doctor told us that Samantha would need to deliver that day due to a possible ruptured membrane. The following morning she delivered our baby girl Ivy at Southern Hills Hospital here in Las Vegas, NV. However, our daughter came out of the womb completely lifeless and blue. The nurses rushed her to the NICU and ran several tests looking for answers as to what was wrong, yet nothing showed up.

The following morning doctors advised us to immediately transport her to a higher level NICU because they believed she was having seizures. 36 hours later, Ivy was transported by ambulance to Sunrise Children's Hospital also in Las Vegas where she was in isolation for weeks undergoing several genetic tests. They performed brain scans, ultrasounds, took spinal fluid from her and still they could not diagnose her. She displayed a stiff muscle tone, she couldn't swallow and there are many other neurological issues including doll eyes. Three weeks later the director of Sunrise told us they had exerted all their resources and needed outside help because they hadn’t seen a case like Ivy's before.

The next morning Ivy was immediately airlifted to The Children's Hospital of Los Angles for further testing. Two months later there is still no definitive diagnosis. So again we left another Children’s hospital without any answers as to what was going on with our daughter.

Once we arrived back in Las Vegas, NV (our home), we visited with a very well-known Pediatric Neurologists. This Dr. informed us that our daughter, now 5 months old is suffering from severe cerebral palsy which most likely stemmed from a cord injury at birth that caused a lack of oxygen to the brain.

It is believed that her only hope for recovery is through very advanced and demanding forms of treatment; treatment that she is going to need for many years. Right now she is doing the Hyperbaric Oxygen Chamber Treatment and the costs are $175 a session. She will need hundreds of sessions for her to get the most benefit out of it. Additionally, she needs constant physical, occupational, and speech therapy every single day. We are also looking into Stem Cell Treatment Therapy which can has high success rates for infants like Ivy and around her age. Costs of the treatment are about 35,000-40,000 and of course insurance doesn’t cover this. Our goal is to raise at least $70,000. This would help us pay for all of Ivy’s types of treatments that the insurance does not cover. It is so important to take action now before it is too late and her brain isn’t able recover from these issues.
 
As new parents we could not have imagined in a million years that our innocent baby would have to suffer so much. We look at her and every piece of us is shattered inside. We have had to dig deep into our faith and ask God to guide us. Our daughter is only able to eat through a feeding tube; we have to suction her mouth multiple times a day as she is not able to swallow. Ivy will need care for the rest of her life. To say we are heartbroken would be an understatement. Right now doctors don't know if Ivy will ever be able to eat by mouth, walk or talk without treatment. All we want is for our precious Ivy to have a better quality of life and this procedure is her only opportunity to do that.

Very Yours Truly, Samantha, Ryan, & Ivy

Fundraiser Updates

Posted on December 1, 2014 by Samantha Chian and Ryan Helmick
We just wanted to say thank you to all the people that have donated recently. It is greatly appreciated. Your donations have allowed our daughter Ivy to receive treatments and therapy that she otherwise would not have had. Thank you and happy holidays.

-The Helmick Family

Posted on November 6, 2014 by Samantha Chian and Ryan Helmick
We are having a fundraiser event for our daughter Ivy at Blue Martini's in Town Square on November 12, 2014 from 5-8pm. The event is being put on and hosted by 6 Degress Seperated. We will be raffling off multiple different prizes. Hope everyone can make it.

Posted on July 31, 2014 by Samantha Chian and Ryan Helmick
Ivy has been doing great at her new physical therapy clinic. The clinic is called the Anat Baniel Method. This treatment for Ivy has only been possible because of the donations we have received from Ivys supporters. We thank you and please keep checking in for more photos and updates. God bless.

-The Helmick family

Posted on June 26, 2014 by Samantha Chian and Ryan Helmick
Hi Everybody,

Thanks for all your support and donations. We just wanted to give everyone an update on what's been going on lately with our daughter Ivy.

Ivy has started the Hyperbaric Oxygen Treatement and so far is adjusting well to it. Lead doctors in this field say she will need at least 40 treatments of 1 hour sessions before we will began to see the effects of the treatment. Even then she is likely going to need 100's of them as they will only benefit her more each time she does them.

We are also taking her to see a very known Physical Therapist by the name of Anat Baniel. This lady deals with many kids with Cerebral Palsy and her method has shown good results.

Recently we discussed the Stem Cell treatments with a local doctor. He and his collegues have had extensive experience with the use of stem cells over the past 10 years, so he was able to educate us on some of there uses and the way to properly use them. We are still researching for the best facility to take her to as we have found out there are many scam doctors out there who claim to know what they are doing and end up charging people thousands of dollars for a treatment that didnt work. So as you can imagine we are going about this aspect of her treatment with the most caution.

Ivy is receiving physical therapy at the house still a few times a week but we are trying to increase the amount of therapy she gets becasue right now she is not receiveing enough.

We will continue to keep all of our supporters posted on the status of daughters fight to beat this condition.

Thank you all again; we are very grateful and without everybodies support Ivy would not have the resources that she has.

Very yours truly,

Ryan, Samantha and Ivy aka Ivy Bears


Posted on May 18, 2014 by Samantha Chian and Ryan Helmick
Hi Everybody,

Just wanted to fill everyone in as to whats been going on with Ivy. We have spoken with multiple different facitlities in Germany- University of Munich, Charite, and Dr. Peter Wehling (Kobe Bryants doctor) in Dusseldorf but none so far are willing to or claim they cant treat our daughter. However, we have spoke with another Dr. here in Las Vegas that is still looking into other possible facilities in Germany.

Ivy did get accepted into a faciltiy called the Stem Cell Institute in Panama but she cannot go there until she is 10 months old and the Navy General Hospital in Bejing, China claims that they may be able to help.We are being very cautious though as many of these facilities are commercialized and are for profit.

We did get a new lead on possible Stem Cell therapy that might be able to be done in California but we are still looking into this. Also, we have come into contact with a Doctor who has a more advanced MRI machine that may be able to help us pinpoint exactly where and what part of Ivy's brain has been damaged and to what extent. This finding will hopefully allow us to better treat her condition.

In our trip to LA a few weeks back, a doctor that we met with referred us to a world re-known Doctor of Osteopathic medicine up in San Francisco. Her name is Anat Baniel. She has treated many children with Cerebral Palsy through her special physical therapy treatment methods. We are taking Ivy up there to see her at the end of July.

Also Ivy will be getting her Ear Tube surgery done next week so she can hopefully start Hyperbarric oxygen therapy which we are hoping will help heal or re-new some parts of her brain.

So as you can see, we have kind of been in limbo with things, waiting on the right oppourtunity to give Ivy the best course of treatment possible.

We will continue to keep everyone updated. We thank each and everyone one of you that has supported us on Ivy's fight to beat Cerebral Palsy.
#Ivywillwin.



Posted on April 26, 2014 by Samantha Chian and Ryan Helmick
Ivy's doctor appointment went well yesterday in LA. We left with some good advice and referrals to see other specialty doctors. 

Posted on April 24, 2014 by Samantha Chian and Ryan Helmick
On our way to Cali to see a pediatric neurologist and a homeopathic doctor that specializes in treating children with neurological disorders. Hopefully we can get more insight on Ivy's condition. Her appointment is tomorrow afternoon. Check in later for updates! 

Posted on April 14, 2014 by Samantha Chian and Ryan Helmick
Ivy update : Ultrasound results were unclear so going to see a skull specialist on Tuesday.  After weeks of being on the wait list Ivy will have her first hyperbaric oxygen treatment on Wednesday. She also will be getting a new feeding tube this week.

Posted on April 2, 2014 by Samantha Chian and Ryan Helmick
Ivy's Fundraiser was a huge success this past weekend. We raised over $8,800 in donations! Special thank you to Collective Zoo who hosted the event at Poppy Den and to all the people that donated gifts for the raffle. Sponsors included Surrender Nightclub, the Beat Clan, Organelle Salon, Tonic Salon, Suite One Salon, Adrenline ATV Tours, Alex Castrovillari Photography, Marrakech, Vitner Grill, Greens and Proteins, etc. 

Posted on March 25, 2014 by Samantha Chian and Ryan Helmick
Saturday,  March 29th at 8pm we are raising funds for baby Ivy Helmick to help her beat cerebral palsy. Join us at Poppy Den in Tivoli Village for cocktails, music, and raffles from local businesses as we reach the goal  to get the proper stem cell therapy treatment for baby Ivy to have a better quality of life. We appreciate your support in advance. Hope to see you all there! 

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