From the moment we found out that we were gonna have a baby we were ecstatic. For 9 months Samantha ate healthy, exercised, and went to every baby class you could think of. We could not have been any more thrilled to welcome our baby girl into this world.
Then on Sept 18th, 2013 things got complicated. We went in for the 38 week checkup and the doctor told us that Samantha would need to deliver that day due to a possible ruptured membrane. The following morning she delivered our baby girl Ivy at Southern Hills Hospital here in Las Vegas, NV. However, our daughter came out of the womb completely lifeless and blue. The nurses rushed her to the NICU and ran several tests looking for answers as to what was wrong, yet nothing showed up.
The following morning doctors advised us to immediately transport her to a higher level NICU because they believed she was having seizures. 36 hours later, Ivy was transported by ambulance to Sunrise Children's Hospital also in Las Vegas where she was in isolation for weeks undergoing several genetic tests. They performed brain scans, ultrasounds, took spinal fluid from her and still they could not diagnose her. She displayed a stiff muscle tone, she couldn't swallow and there are many other neurological issues including doll eyes. Three weeks later the director of Sunrise told us they had exerted all their resources and needed outside help because they hadn’t seen a case like Ivy's before.
The next morning Ivy was immediately airlifted to The Children's Hospital of Los Angles for further testing. Two months later there is still no definitive diagnosis. So again we left another Children’s hospital without any answers as to what was going on with our daughter.
Once we arrived back in Las Vegas, NV (our home), we visited with a very well-known Pediatric Neurologists. This Dr. informed us that our daughter, now 5 months old is suffering from severe cerebral palsy which most likely stemmed from a cord injury at birth that caused a lack of oxygen to the brain.
It is believed that her only hope for recovery is through very advanced and demanding forms of treatment; treatment that she is going to need for many years. Right now she is doing the Hyperbaric Oxygen Chamber Treatment and the costs are $175 a session. She will need hundreds of sessions for her to get the most benefit out of it. Additionally, she needs constant physical, occupational, and speech therapy every single day. We are also looking into Stem Cell Treatment Therapy which can has high success rates for infants like Ivy and around her age. Costs of the treatment are about 35,000-40,000 and of course insurance doesn’t cover this. Our goal is to raise at least $70,000. This would help us pay for all of Ivy’s types of treatments that the insurance does not cover. It is so important to take action now before it is too late and her brain isn’t able recover from these issues.
As new parents we could not have imagined in a million years that our innocent baby would have to suffer so much. We look at her and every piece of us is shattered inside. We have had to dig deep into our faith and ask God to guide us. Our daughter is only able to eat through a feeding tube; we have to suction her mouth multiple times a day as she is not able to swallow. Ivy will need care for the rest of her life. To say we are heartbroken would be an understatement. Right now doctors don't know if Ivy will ever be able to eat by mouth, walk or talk without treatment. All we want is for our precious Ivy to have a better quality of life and this procedure is her only opportunity to do that.
Very Yours Truly, Samantha, Ryan, & Ivy