Posted on June 21, 2014
Day 31 Update-
Today was a busy day for Ashton. It started out with a seizure. It was nice because the Neurologist was there to witness it and look at the EEG at the same time. They did also see that he was having some seizure activity throughout the night. They gave him another bolus of one of the seizure medications as well as increasing the dose of one them. They also increased one of the medications that he is getting to help him relax. He continued to smile throughout the day and have his increased periods with lots of movement!
Lungs- Today his lungs continue to look the same!!! Such great news!
Pancreatitis- One of the labs that they really monitor was slightly elevated from yesterday. They are still treating him as they can for it!
Temperature- He has continued to have have a low grade temperature all day. They still don't know the exact cause for it, but are keeping a very close on it and treating the symptoms. All blood cultures that have been done, all the final results are negative for infection that could be causing the fevers.
He did also have his MRI today. The Neurologist came in late tonight to discuss the results with Dustin and April. (That's why this post is so late, I'm really sorry!) I'm not sure how to post this because I know we all don't want anything to be wrong with Ashton, but in a sense we do because then we would have an answer and know how to treat him...So I feel we received very good news, because we received a diagnosis. His MRI showed some changes that were abdormal. These changes are indicative for the diagnosis of ....Drum roll please.........
"Autoimmune Limbic Encephalitis".
Now what is that and what is the treatment?
It is inflammation in the brain in which there are different causes for the inflammation, but as the doctor explained it, the body produces antibodies against itself. There are different causes for this that are more commonly associated with this diagnosis. One is cancer and the other is a tumor, both of which the Neurologist assured use that he DOES NOT have. The diagnosis of Limbic Encephalitis is extremely difficult and the diagnosis usually doesn't happen for weeks. He also said that most people diagnosed with Limbic Encephalitis are initially diagnosed with HSV Encephalitis ( herpes simplex virus Encephalitis). The reason is because clinically the difference cannot be distinguished. There are different treatment options and of course they are going to start with the the safest treatment options first and then work their way down the list, if needed. So they are going to start with the first treatment in the morning. That treatment will consist of high dose steroids for 3-4 days and then they will go from there.
I have not had the opportunity to research to find a good article to post a link to for you all to read and I'm sure by the time I find one you will all have searched and found the information you are needing. Please feel free to ask any questions...As always:)
We have such an amazing support system and amazing prayer warriors! Thank you all so much for your relentless prayers! It's obvious...they are working!!!
"Stay strong because things will get better. It may be stormy now, but it never rains forever." Author unknown
God is so so good! God bless you all and Goodnight!