Posted on May 11, 2012
Wade and Lexus are doing great all things considering. Wade has a failure to thrive diagnosis meaning he cannot grow sufficiently on his own. He had blood work today where he was poked three different times, but he acted like a trooper! Wade smiles at everyone and everything; he is a very happy, joyous little boy. Nothing deters him. Doctors suspect that his lack of proper weight gain (about 1 ounce a week or even loosing an ounce a week) may be due to the small bowel resection he had done at only one month old due to necrotizing enterocolitis. He may not have sufficient amounts of small intestine left to effectively absorb enough nutrients into his body from what he eats. Some infants can actually die from this syndrome as it can affect their growth poorly. Wade however remains in high spirits and is constantly moving and grooving with that toothless grin on his face.
Lexus hit a small step backwards last week as she either has an infection form the bacteria in her trach tube, or she couldn't handle the weaning from her respiratory support settings and responded poorly by backsliding to higher vent settings. She is now still on CPAP through the trach but on full support settings other than her oxygen (FIO2 level.) She is only at about 36% FIO2 which is fantastic! The hope is that they can get her over this infection or slump in vent weaning process and get her home this summer either on straight oxygen through her trach or on a home CPAP ventilator for her trach. Either way, we are hoping that she can be released home to us this summer!
This brings me to the point of what home Lexus can be released unto. Currently, my husband, Mark, Wade, and I are currently living in one room in my parents’ home. It is a 10 by 14 foot room that barely accommodated Mark, myself, and Wade with all of his equipment and monitors. There would be no room for Lexus were we currently are not to mention our current home could not handle the electrical needs that Lexus and her home health equipment would need in addition to Wade's. We are currently attempting to rehab a pole barn building into a home for Wade, Lexus, Mark, and myself. Polk County has bent over backwards trying to help us in any way that they can, but we are still in need of assistance. Most of the construction work done in the pole barn so far as been from my two disabled parents, and my disabled husband and myself. Over $32,000 has been donated so far, but we still need $25,000+ to complete the project and get Lexus home with the equipment she needs to be as healthy as possible and to simply survive at home.
The struggle our little family goes through is an extensive, complicated one that involves three generations of disabled, strong-hearted people who will do whatever is necessary to ensure the best possible future for two micro-preemies, Wade and Lexus Brady, who deserve the best possible chance at life and a happy one at that! Wade and Lexus need supporters and sponsors; please feel free to sponsor them through this website via PayPal or locally at any Veridian Credit Union: Just make out a check or donate a cash amount to Veridian Credit Union in Wade and Lexus' behalf. We think you for all of your help and support. Our community is worth saving every citizen, even the tiniest ones! Thank you and God Bless!