A Gift for Dylan

For: Dylan McKee
Organizer: Dyan Stephens Brown (mother) and Chris Hansis
A Gift for Dylan (Dylan McKee)
$1,000
of $30,000 goal.
Raised by 26 donors
3% Complete
This fundraiser is closed. Thank you for your support!

The Story

The Tragic Event

On Mother’s Day, 2012, Dylan suffered from a severe asthma attack that led to cardiac arrest and the loss of oxygen in her brain. Although Dylan survived the incident, her brain was severely damaged. She was diagnosed with an anoxic brain injury and is now at the Elizabeth Seton Pediatric Center in Yonkers, New York in constant care.


After the Accident

Unfortunately, Dylan has not gained any control of her extremities since the accident. She cannot see or speak, she is fed through feeding tubes and she breaths through a tracheotomy tube. She requires 24-hour hospital and nursing care, with someone constantly at her side. Fortunately, Dylan has responded well to the treatment provided at the Pediatric Center. She loves music therapy as well as treatment that allows her to interact with other children. Most importantly, she loves being with her mom, family and friends whenever possible. Even with her severe disability, Dylan is a kind, fun-loving child who enjoys every second of her life.


The Road Ahead

Dylan’s family has contacted Dr. Chris Hansis, a doctor at NYU Langone Medical Center, to help her search for a cure for both asthma and Dylan’s anoxic brain injury. Unfortunately, the research is very costly and Dylan’s family cannot support the cost alone. Any contribution that you make will help Dylan and other children suffering from asthma. Donations are greatly appreciated! Your donation will help both Dylan and her family overcome the physical, emotional, and financial challenges ahead.  


A Message from Mom

I miss her most in the morning. I miss her smile, her laugh, her hug, making her oatmeal, telling her to remember to brush her teeth, asking her if she finished her Life's Work, asking her to check if I signed her Reading Log. Deciding together if we should take the train, the bus or if we're running late, a cab to school. Watching her run down the block with her fellow scholars to the line. Giving her a kiss before I head back home to start work. I miss everything about her. 
Dylan is my joy. She's my joy and provides joy to so many others.  From the bus drivers to a train's conductor, to the people we see during our daily commute, Dylan's presence touches everyone. She's kind, witty, observant, inquisitive, considerate, caring and loving. And, yes, I'm her mother so I'm biased, but ask any family, friends or the teachers she's had in her 7 year old life and you'll hear similar sentiments.” –Dyan

Fundraiser Updates

Posted on April 24, 2014

Posted on April 24, 2014

Dylan is receiving her new braces and splints this week so I'm excited about that.  And I'm also excited that she's getting fitted for a body brace as well.  But what this reminds me of is the fact that her tone and spasticity continue to be a huge issue for her.  Just imagine clenching your fist non-stop for 24 hours.  That's the kind of pain and discomfort Dylan lives with daily.  Please help by donating or by spreading the word about this fundraiser.  Dylan needs Dr. Hansis' help so that she can have a life without pain.  Asthma sufferers need Dr. Hansis' help so they can have a life where they're not worried about being able to breathe.

Posted on April 17, 2014

Posted on April 17, 2014

Hello all!

I want to thank those of you that have contributed and have spread the word. Letting others know Dylan's story and the work Dr. Hansis is doing is SO important.  We both believe that raising awareness about asthma, that it is a dibilitating disease and how catastrophic an asthma attack can be is just as important as finding a cure.  We believe that setting the record straight on stem cell research is just as important as finding a cure.  So for the remainder of this fundraising cycle - there are 28 days left!! - please spread the word to family, a friend, a neighbor, your church.  Just spread the word!

Thanks again for your help and support!!

Dyan

Posted on April 2, 2014

Posted on April 2, 2014

Thank you all for your thoughts, prayers and support!  Because of your help we are on our way toward reaching our financial goal so that Chris and his team can begin working on a cure for asthma and Dylan's anoxic brain injury. 

Dylan is doing well overall, however, her spasticity and tone continue to be an issue. Although she is now wearing arm and leg splints 3-5 days a week, it can only be done during her therapy sessions so are limited to a total of 1.5-2 hours a day. Unfortunately, they will continue to be an issue and deteriorate and Dylan will eventually lose use of her limbs. It's important now more than ever for funds to be raised so that research can begin.

Please spread the word on our efforts.  Become aware of facts you may not know about asthma and stem cell research and treatment by following me on Twitter, Facebook or Instragram (@bedstuymommy).  Together, we can bring an end to this dibiltating disease so no one else experiences what Dylan and I have.

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