Help Lucas Crush Cancer

For: Lucas Harashima
New York, NY
Organizer: Sansan & Hide Harashima
Help Lucas Crush Cancer (Lucas Harashima)
$197,941
of $300,000 goal.
Raised by 1041 donors
65% Complete

The Story

On September 17th, 2016, our little boy Lucas (age 5) was diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma). DIPG is a terminal cancer residing in the brainstem - and one doctors hate because it in inoperable. We are doing everything we possibly can to combat the cancer and chase new science, light and hope for Lucas.

As parents going through this, we can assure you there is no greater heartbreak. When something like this happens, you understand in an instant what truly matters in life. All that is important to us now is giving Lucas stability, comfort and more love than his little heart can hold.

While we are still figuring out this unimaginable situation we find ourselves in, we humbly acknowledge that we cannot do it alone. More importantly, we know we won't have to. As unlucky as we are with this diagnosis, we've been equally and oppositely blessed with amazing friends, family, colleagues and communities both new and old. We've realized that we have people in our lives who don't share our DNA but who are undoubtably part of our family.

You have been sending love, food and thoughtful gifts our way since the initial shock of diagnosis, offering companionship for our older son, Kai, who isn't getting equal time or attention lately, as well as keeping us in your prayers, giving us extra tight hugs and sending daily encouraging messages - and still you ask what more you can do.

It isn't easy for us to ask but any funds raised would allow us to stress less about uncovered medical expenses, travel and caregiving needs, and time away from work to focus on our family at this critical time. Your gift to us is time and as many happy moments with our boys as we can squeeze in. There are no words to express our gratitude in return.

We have created a group on facebook called Lucas Harashima Cancer Crush. Please join if you'd like to follow our journey and see updates about Lucas.

Thank you for all your compassion, prayers, support and love - reminding us that love is always the answer. It is the only answer.



The Harashima Family
Sansan, Hide, Kai and Lucas

If you'd like to follow our journey and see updates on Lucas, please join Lucas Harashima Cancer Crush on facebook.

Fundraiser Updates

Posted on June 18, 2017

UpdateImage

Posted on June 18, 2017

A glimmer of hope.
Hide's persistence has resulted in Lucas' acceptance into a relatively new treatment option in Mexico; the one we were turned down from recently. It seemed open to us several months ago, but during the 4 weeks Lucas spent participating in the Panobinostat drug trial, the Mexico option gained 'popularity' as patients we, in the DIPG research community, follow started reporting promising results from initial treatments there. 25+ families from various parts of the world are now being treated so space is limited and we essentially lost our spot in line. Thanks to Hide's (out-of-character) pushiness and the advocacy of fellow DIPG parents in Mexico (thank you!), the doctors reconsidered Lucas' case and finally gave us the go ahead to participate.
We will be heading to Monterrey, Mexico in early July for a week to have our consultation with the doctors and, if all goes well, initiate Lucas' first treatment. Each child is treated as an individual and prescribed unique drug "cocktails" and delivery methods accordingly, but it's likely that Lucas will undergo some combination of immunotherapy, intra-arterial and chemotherapy as part of his treatment plan.
Let me be clear, this is not a clinical trial but compassionate care therapy. It is not one that is recommended by our medical team at MSK. They have run out of scientifically proven treatments or well-controlled studies to offer Lucas apart from palliative (quality of life) care. The doctors in Mexico are up against the same dismal disease but their mindset is different. They say to parents, "We want to save your son." It's not a promise. It's a simple statement that conveys compassionate intent and instills cautious hope. While results have varied, understandably, kids who are being treated have generally shown positive signs of improvement. One boy who struggled to walk, like Lucas, was recently videotaped by his parents running and pushing his brother in the stroller for a change. What we wouldn't give to see Lucas walk or - dare we even dream it - run again...There are still many questions and controversies around the efficacy of this option but Hide and I have decided to take this leap of faith based on our research and the truly promising results from current patients there. When your back is to the wall and someone offers you a possible lifeline, no matter how fragile, you take it. With DIPG, there is no time to wait for full proof of concept. Whether the doctors in Mexico are getting closer to a cure or simply prolonging life remains uncertain, but we will take hope over no hope, nimbleness over proof, trying over waiting, action over inaction - any day. As Gerry Tye, a fellow DIPG parent and advocate says, "You have to make choices that are not in the normal medical sphere."
It was our hope that we would find this type of option stateside to manage convenience and cost. Because this treatment is in Mexico, US health insurance will not cover the hefty medical expenses. The out-of-pocket estimate for each intra-arterial treatment is $17,000 and immunotherapy is $15,000. It's impossible to predict how many treatments he will need but If he is showing continued signs of improvement after the initial course, we will return to Monterrey every 3 weeks for additional therapy. While the financial burden is steep, we just can't let money stand in the way of Lucas' chance at life. He's worth the fight.
Many of you have supported us so generously to allow both Hide and I to stay home and care for Lucas, pay his medical bills and fund his voracious sushi habit - we already owe you a huge debt. Any donations that arrive for Lucas now will go directly towards his medical costs and travel expenses in Mexico. We are also open to all suggestions around fundraising ideas if you have them. 
Above all, we ask for your continued prayers and positive thoughts as we embark on this harrowing but hopeful journey to Mexico. We thank you for all the love, generosity and support you have shown our family and Lucas. During the worst time in our lives, we are blessed to see the very best in people.

For anyone who doesn't know about our facebook page, it is where we post regular updates on Lucas' condition. Please follow our journey here:
https://www.facebook.com/groups/lucascancercrush/


Love,
The Harashima Family
Hide, Sansan, Kai and Lucas

Posted on October 6, 2016

Posted on October 6, 2016

Still speechless. We are sitting here together trying to figure out how to express our amazement and immense gratitude for this community that has helped us exceedour goal in less than 2 days - and we just can't find the words.

To our family, friends, colleagues and communities - your love is literally lifting us up. Your kind messages, hopeful prayers and generous actions are getting us through the toughest time of our lives. To friends of friends, those who haven't met us - we feel honored to have moved you with our story.

These funds, and any further raised, will help give us financial peace of mind so we can focus on fighting for our little guy and giving him the best care, chance of success at beating cancer and opportunities to bring him and our family precious moments of joy. 

We know all of you gave directly from your hearts and that is why this is so touching. Please accept our simply put, most heartfelt, THANK YOU.

All our gratitude,
The Harashima Family


If you'd like to follow our journey and see updates on Lucas, please join Lucas Harashima Cancer Crush on facebook.

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