Posted on March 28, 2017
Posted on March 28, 2017I had this terrible dream that I had cancer. l o l
I'm settling into the routine of chemo. That involves quite a lot of hospital trips, for IV fluids. Turns out I feel pretty rotten without them. But with them, I have a decent appetite, way less nausea, and my mind is significantly clearer. So, it's worth it.
Slight correction to last update: I'm not getting chemo every week (YET. that will come with the Herceptin), I'm getting fluids every week. The hospital is not always super clear on WHY I'm going to infusion.
I'm going to have my third dose of AC on Friday. One more to go after that, for a total of four. Then I start on a Herceptin cocktail to target my particular cancer, which is HER2++++. HER2 has pluses on a scale of 1 to 5. I have 4.
My hair has half-fallen out. But only half, which is annoying. I shaved the rest of it so I wouldn't have weird bald patches. Now instead I just look weird and bald, and kind of patchy anyway. Aesthetically, it ain't great.
Here's a picture of me today. All those markings on my chest are scars from the dressing tape the surgeon used when I had my port implanted. That was over a month ago and they're not healed yet. You'd think dude would listen when I told him I'm allergic to tape.
We're trying to make a decision on whether we should purchase secondary insurance for me, and that is extremely expensive. Please donate to me. Absolutely anything helps. Five dollars. One dollar. Please help me out!
Posted on March 17, 2017
Posted on March 17, 2017My MO tells me that I have "probably" a 50% chance of being fully cured. That's not too bad I guess!
I had a fever this week--called the on-call, who told me to go into the ER. I did, and everything checked out. Mysterious fever. MO thinks it had to do with not enough fluid intake.
However, the cancer's become visibly worse. So now I get to do chemo every week instead of every two weeks.
I've started up talk therapy again. As you might think, I have a lot to process.
Here is a picture of Yr Chemo Patient looking out the window.
Posted on March 13, 2017
Posted on March 13, 2017I just learned that I can't get disability benefits in any form. Since I haven't worked for income in years, I'm no longer "insured" to get disability. I've spoken with two reps this morning from Social Security, and I don't have the emotional energy to go into it here, but: I can't get it. In order to requalify, I would have to work for four or five years, making a thousand dollars a quarter. For most people, that's more than doable. For me...it's not.
Your donations are needed more than ever. I was expecting to be able to get on Medicaid, but that is not going to happen. I don't qualify for that or for the cash benefit of SSDI. Why is it that someone as disabled as I am, who can't work, can't get anything at all?
I'm kind of ugly crying today.
There is some good news: I had my breast MRI, and it came back with nothing new. Here's some pathology for those who are interested:
----Pathology starts here----
Right breast: In the lower outer quadrant from 8:00 to 9:00 there is a large area of both multifocal mass and nonmass enhancement with AP extent of 10.5 cm. There is a dominant irregular 2.5 cm heterogeneously enhancing mass far posterior 9:00 position, as well as a 1.2 cm mass at middle depth 9:00 position and a 2 cm mass posteriorly at 8:00. There is assosciated parachnymal and skin edema. There are multiple abnormal right axillary lymph nodes. There is no internal mammary lymphadenopathy.
Findings consisten with known inflammatory breast cancer with multifocal mass or nonmass enhancement consistent with both invasive and noninvasive malignancy involving the lower outer quadrant from middle depth to posterior depth at 8:00-9:00. AP extent of this is 10.5 cm. There is a dominant mass posteriorly at 9:00 measuring 2.5 cm. Multiple abnormal right axillary lymph nodes suspicious for metastatic disease.
----Pathology ends here----
Basically that all means that my right breast and armpit lymph nodes are full of cancer. However, the really good news is: everything else is clear.
Inflammatory breast cancer is known for being a stage 4 diagnosis when it's caught, but mine, through the grace of the gods, was caught literally as it was starting to grow.
Here's a sideways picture of me, looking about how I feel.