3rd Annual Ed Montie 5k Race to Cure Kennedy's Disease

For: Kennedy's Disease Association
Lincoln Park, MI
Organizer: Heather Montie
3rd Annual Ed Montie 5k Race to Cure Kennedy's Disease (Kennedy's Disease Association)
of $7,500 goal
100% Complete
Raised by 68 donors

The Story

When: Sunday, September 17, 2017 at 10am 


Council Point Park

River Drive & Stewart

Lincoln Park, MI

(for directions click here)

Entry Fee: $35 (includes shirt, water, and snacks)  

To Register: Please donate $35 here and put your name in the comments and then send Heather Montie an email to tell her the size you need for your shirt (or include your shirt size in the donation comment): [email protected] Additional donations (if you cannot make it to the race or would like to give more) will also be happily accepted here. Additional registrations and donations will be accepted onsite the day of the event beginning at 8am.

Following the onset of Kennedy's Disease, Ed Montie began the strongest fight of his life. He was courageous and optimistic through every step along his journey. We sadly lost Ed Montie on April 11, 2011. Words cannot express how proud we are of him and thankful for having had him in our lives.

Kennedy’s disease is a genetic neuromuscular disease with symptoms similar to ALS. It affects men starting in their 30s or 40s & gradually weakens all muscles over time. Many are wheelchair bound by their 40s, and lack upper body strength to compensate. Swallowing & lung muscles weaken to the point that assistive devices are necessary. This is a rare disease & research funds are limited. The Kennedy's Disease Association is devoted to funding research to find a cure for this debilitating disease. 

Please help us all to continue Ed's fight against this devastating disease and to honor his memory by registering for the 3rd Annual "Ed Montie 5K Race to Cure Kennedy's Disease." Proceeds will be donated to research via the Kennedy's Disease Association (KDA), to help find a cure for patients living with KD. We are forever grateful of your support. -The Montie Family 

***Raffle prizes will be available, so please bring some extra cash with you.

Thank you for your support! All proceeds benefit the Kennedy's Disease Association, a 501(c)(3) organization. 

To learn more about Kennedy's Disease, visit www.kennedysdisease.org    

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3rd Annual Ed Montie 5k Race to Cure Kennedy's Disease

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