Help Karen Williams Brenchley cure her MS!

For: Karen Williams Brenchley
Sunnyvale, CA
Organizer: Jeannie Warner
Help Karen Williams Brenchley cure her MS! (Karen Williams Brenchley)
of $58,000 goal
16% Complete
Raised by 71 donors

The Story

Karen Brenchley is an icon in the West, for SCA people. In the writing community, she's making her bones editing and writing fiction. In the world of software, she is the eDiscovery queen. Karen has MS.

Wouldn't it be great if we lived in a country where she could go get the cure, and it was included in her insurance? We don't and it isn't. Karen has found a procedure abroad that can cure her MS. In her own words:

"I'll be going to Mexico on October 9 to start HSCT treatment. When I come home, I won't have MS anymore. Unfortunately, that doesn't mean all the damage to my body will be cured, but I won't get any more lesions. What I've heard is that the year after this treatment is rough, but then things start getting really good. Wish me luck."

Karen needs your help. This is the best site I could find where most of the money actually goes to the one who needs it. Please donate if you can.

Fundraiser Updates

Posted on June 24, 2017

Posted on June 24, 2017

From Karen:

Thank you to all of you! Because of your great generosity, from this site and from direct contributions we've raised almost half of the entire cost. This is so very exciting for me (and for Chaz), and this is making my cure closer and closer to coming true. I don't know what I would do without all of you. You are all fantastic people.

Posted on June 16, 2017

Posted on June 16, 2017

An Update from Karen:

First, thank you, everyone, who has contributed so much so far. I appreciate this more than you will ever know. I also felt it would help if I explained exactly what's going on, so here goes.

Multiple sclerosis is essentially a disease caused by having an immune system so good that it gets bored and starts attacking the body itself. In particular, MS targets the myelin sheathes of nerve endings, which results in scar tissue forming on the nerve endings. The nerves are fine, they just have a lot of trouble firing. In my case, this has most noticeably affected my ability to walk.

The treatment I'll be undergoing is the chemotherapy used for leukemia patients. What happens is that the doctors will give me something to stimulate stem cell growth, then will harvest some of my stem cells. That will be followed by ten days of chemo, which will target my blood cells, essentially killing off my immune system. Immediately following chemo my harvest stem cells will be reintroduced, thus giving me a rebooted immune system.

When I come back, instead of having an immune system so powerful I rarely get sick, instead I'll be starting over, the same way children do. I'll also still have the damage that has happened so far, though there is a chance that some or all of it may fix itself over time, now that it will no longer be constantly attacked.

Is this really a cure? Yes. The U.K. offers it as a cure through their National Health. The U.S. doesn't offer it, though they are doing studies. Many other countries offer it, most notable Russia and Mexico. Russia doesn't seem like a great place to visit right now, so Mexico it is. And I thank all of you for helping me get there.

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