Posted on March 24, 2017
Posted on March 24, 2017
Once again, sending heartfelt thanks to everyone for their prayers and continued support. Kain is still in the PICU – it has been 33 days now – but the doctors are cautiously optimistic that things are turning in the right direction.
Last week, we shared that Kain’s right foot and part of his leg had to be amputated. The orthopedics felt the surgery went well. Telling Kain that his foot was gone was the hardest thing we’ve ever had to do. He did not understand why we did that to him. It’s taken a week of similar discussions to convince him that it had to be done to save his life, yet every day he asks us if he is going to die. Watching him try to understand all that has happened to him in the past month is heart wrenching and painful. We have not even broached the subject of rehab and learning to walk with a prosthetic leg. That will come in time.
Two of Kain’s other limbs – his left leg and his left hand also sustained some damage due to lack of blood flow, so he will soon start to work with physical therapists to see if he can gain full mobility in them.
Kain is off the respirator and breathing on his own. However, he is still taking antibiotics for sepsis, mrsa and pneumonia and is still on blood thinners for blood clots that need to dissolve. He is off dialysis, for now, as his kidneys have started to show some signs of improvement, but we were cautioned that it could take weeks for them to completely work on their own. He is also still on a feeding tube.
We can’t say enough about the doctors and, especially, the nurses in the PICU. They are the most kind, compassionate, caring people we’ve ever met. They become your friend, they hug you when you need a hug and give you a pep talk when they know it’s needed. On Wednesday, one of the nurses wheeled in a sensory machine for Kain. Now that he is awake and knowing that he is on the autism spectrum, she noticed that with all the activity going on around him in his room, and all the activity in the hallway, he was getting very anxious and experiencing sensory overload. He loves it and it’s on constantly.
Kain had some victories this week and we are so very thankful for them. He has a long, hard road ahead, so please continue your prayers for Kain and our family!
Posted on March 16, 2017
Posted on March 16, 2017We would like to take a moment to thank everyone for their continued support, prayers and generosity. It is because of your outpouring of love that we have been able to find the strength to stay positive. We are heartbroken to share that Kain went into surgery late yesterday to have his right leg amputated slightly below the knee. While this news was devastating, the doctors have determined that this was his best option for a full recovery. We were informed post-surgery that the foot was so badly infected that it was likely the primary factor for his continued fever and sepsis. Under the recommendation of the physicians, we were encouraged to not disclose this to Kain until after he has regained some of his strength and to allow him to be better prepared both mentally and physically to meet the challenges this “new” disability will present. He remains on a respirator and is receiving insulin for his failing pancreas, and is still fighting the sepsis from this infection. Through these difficult past few days, we were blessed with two small victories. Kain’s glucose levels have stabilized AND they brought him out of the medically induced coma so he opened his beautiful blue eyes. While he is still unable to communicate, he hears and sees everything, and expresses his love by raising his eyebrows three times. Getting him weaned from the respirator is the next big challenge.
As parents, it is our job to make everything better, to kiss away the injuries and promise that things will be okay. It is tremendously difficult to see our baby boy laying in a hospital bed in pain, as we stand by helplessly, unable to take away his pain. It is through the strength from God, family, friends and community that we can remain optimistic of a healthy and happy future for Kain. This future will be full of obstacles as he recovers from this traumatic experience and adjusts to a prosthetic leg. We are sincerely grateful for all the donations, meals, prayers and well wishes as we continue to make this transition for our basketball loving, kindhearted, precious little man just a little easier. He is our warrior, our hero, and we are blessed beyond words to call him our son.
With Sincere Appreciation & Love,
Tiffany and Ryan
Posted on March 15, 2017
Posted on March 15, 2017Good afternoon,
Words are powerless to express the amount of gratitude Kain and his family have for each and everyone of you. The amount of support you have all shown our family during this very difficult time is overwhelming. With that being said, I would also like to take a minute to let you all know that we will be posting an updat for Kain in the next day or two. so please check back soon to get an update on Kains progress and setbacks during the past week. Thank you all again for your unwavering support.