Joseph Stanley's Brain Tumour Fund

For: Joseph Stanley
San Luis Potosi, S.L.P., Mexico
Organizer: Tom Wiseman
$13,576
of $10,000 goal.
Raised by 139 donors
100% Complete
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The Story

When I saw my son after the operation to remove his brain tumour, with the freshly stitched incision curving half-way across a head swollen to twice it’s normal size, puffy eyes swollen shut, tiny teeth bared in a cry of pain as his faced pressed up against the fishbowl glass of his oxygen chamber, the tears I cried and the overwhelming emotion I felt was of admiration. My son is my hero.

In March 2016 our happy and playful baby boy was diagnosed with a brain tumour (pilocytic astrocytoma), we acted swiftly and, thanks to a great team of doctors, we were able to give Joseph a chance of life that many babies with the same condition never get.

It is my privilege to walk beside such a beautiful and brave little boy. We believe that life is not about what happens to you, but how you react to it. No one would wish for this situation, but we feel we have a responsibility to use this as an opportunity to demonstrate our love for our son and to help others who are going through similar heartaches.

Joseph is now recovering well from his surgery but this is going to be a long-term struggle for his health, he cannot see right now and the brain swelling will last several months. We are hopeful that his sight will return and only time will tell with regards to cognitive abilities and development. We'll not settle for less, we'll help him in every way possible to achieve what he wants to in life just as before.

You can help to ensure that Joseph has the best possible treatment and rehabilitation. By donating or fundraising, you will be helping to cover the costs of his surgery, the next step in his treatment, and the regular monitoring that he will need from here on out.

Thank you to everyone, from the bottom of our hearts, for all of your support, prayers, and messages of encouragement.

Tom & Mariana Wiseman

Fundraiser Updates

Posted on February 3, 2017

Posted on February 3, 2017

Dear Friends,

Queridos amigos,
Happy New Year!

Feliz Año Nuevo!
Just a quick note to let you know the progress that Joseph is making.

Solo una nota para informar sobre el progreso de Joseph.
The 6-month MRI showed a very slight decrease in the size and density of the tumour and we have moved to a maintenance schedule chemotherapy which is just once every 3 weeks until the 9-month marker when we'll do the next MRI and reassess.

La resonancia de 6 meses mostro un pequeño disminucion del tumor. En la quimioterapia hemos cambiado a un esquema de mantenimiento, ahora toca cada 3 semanas hasta la resonancia de los 9 meses.
At this stage we don't expect the tumour to grow or cause more problems, although it is difficult to say if it continues to have an affect on his vision or if the damage is already done so to speak.

No pensamos que el tumor va a crecer o causar mas problemas, es dificil decir si aun esta afectando su vista o si el daño ya esta hecho.
Joseph has started going to a school for blind children 3 afternoons per week, he is in an early intervention class with other children around his same age. (http://institutoparaciegos.org/)

Joseph ha comenzado a ir a una escuela para ciegos 3 veces por semana en las tardes, esta en un clase de intervencion temprana con otros niños de su edad. (http://institutoparaciegos.org/)
Most doctors are ready to give up on optic nerve damage as irreversible but there is one doctor in Germany who has seen significant improvement using an ACS therapy, we have been in touch with him but it seems that there is nothing ready to use with babies just yet but that is one hopeful treatment for the future.

Muchos doctores se sienten vencidos con el daño al nervio optico pero hay un doctor en alemania quien ha experimentado grandes mejoras en sus pacientes tratandolos con terapia de ACS, hemos estado en contacto con el doctor pero parece que no es viable para bebes de la edad de Joseph pero tenemos esperanza para el futuro.
We have also been learning about the stories of some remarkable blind people and learning what might just be in store if he doesn't recover his vision. Daniel Kish is located in California but visits all over the world so we are hoping that he may be able to visit the school. (https://www.ted.com/talks/daniel_kish_how_i_use_sonar_to_navigate_the_world).

Hemos estado descubriendo varias historias increibles de gente ciega y aprendiendo como puede ser la vida en el caso que Joseph no recupere su vista. Daniel Kish vive en California pero visita todo el mundo y esperemos que el pueda visitar la escuela. (https://www.ted.com/talks/daniel_kish_how_i_use_sonar_to_navigate_the_world)
It's good to be in a bit more contact with people who are going through similar things and hopefully we can continue to connect people and share our knowledge and research.

Se siente bien estar en mas contacto con gente quien esta pasando por lo mismo y esperemos que podamos continuar contactando personas y compartir el conocimiento.
A couple of pictures, Joey and Mummy delivering super hero costumes to the children's cancer ward at the general hospital; Christmas presents; fun in the park.

Unos fotos, Joey y Mamá entregando disfraces de superheroes en la unidad oncologico de niños en el Hospital Central; Regalos de navidad; diversion en el parque.

Love,
Tom, Mariana, & Joseph

Posted on December 12, 2016

Posted on December 12, 2016

We are coming to the festive period of a very difficult year, with certainly the biggest challenges we have ever faced and also with an incredible show of love and support which has meant that we were never alone.

Estamos llegando al periodo festivo de un año muy difícil, con los retos mas grandes en la vida y con una muestra de amor y apoyo que nos enseño que nunca estábamos solos.
We are reaching the end of Joseph's 2nd 3 months of chemotherapy, defenses permitting we will have done the last session by the end of the year and will have the next MRI shortly afterwards.
The MRI results will pretty much dictate the what happens next: if there is no more significant decrease in the tumour size, or if there is a very significant decrease, we will likely stop the treatment. If the reduction is steady then we are most likely to continue to the 9 month marker.

Hemos casi cumplido el segundo periodo de quimioterapia y, si las defensaslo permiten, habremos terminado antes del fin del año, con las siguiente resonancia programada para un poco despues.

Los resultados nos va enseñar el camino para adelante, hay posibilidades de seguir y tambien existe la posibilidad de que paremos el tratamiento, todo va depender.
We haven't been back to Ver Contigo yet for a follow up with the exercises but we  have been to investigate a school for blind people here in SLP. Ver Contigo is more focused on rehabilitation whereas the people at this school don't really have a chance to recover their vision but it seems that they could work with Joseph with his exercises so it might be an option n the new year.

No hemos regresado a Ver Contigo en Torreon para dar seguimiento con los ejercicios pero investigamos una escuela para invidentes visuales aqui en SLP que puede ofrecer algo parecido para ayudar a que recupere algo de su vision o para adaptarse a vivir en otra forma.
Other than that Joseph is very active, with lots of running and walking and dancing and joking around. He has enjoyed his first Thanksgiving dinner and visits from Aunty and Grandad and we are looking forward to some fun in this his 2nd Christmas.

En lo demas, Joseph esta muy activo - corriendo, camninando, bailando y bromeando mucho. Disfrutó su primera cena de Thanksgiving y lo han visitado su Tía y su Abuelo. Ahora estamos listos para su segunda Navidad.
Thank you all again for your support this year, wishing you all a lovely Christmas and a Happy New Year.

Otra vez gracias por todo su apoyo en este año, les deseamos una bonita navidad y feliz año nuevo.

Posted on September 9, 2016

Posted on September 9, 2016

It has been a busy time for Joseph in the last month or so.

Our friend Sam was inspired to run his first triathlon to fund raise and did a great job of training and finishing and raising a lot of money to help Joseph. Thanks to Sam and everyone who sponsored him!

We took a trip to visit Ver Contigo in Torreon; this is a school that helps to rehabilitate vision impaired people. We had a good day at the school and learned a lot about what exercises we need to do. Torreon is about 8 hours away from us and they ideally want us to visit every month so we need to see how we will manage that.

We have also been reading the books from The Philadelphia Institute of Human Potential, where we have found a very thorough programme of rehabilitation and development for babies.

We do think that there is some improvement to his vision but it is very difficult to tell.

We are working as much as we can on diet and certain supplements that could help and have got a lot of good information from The Truth About Cancer.

Chemo has been difficult – we have missed some sessions because Joey’s defenses have been down and we have had problems finding a vein which is horrible for everyone involved.

The big news is that we have reached the first milestone in the therapy and yesterday we received the 3 month mark MRI which shows a 12% reduction of the overall tumour size! We are cautiously optimistic that we can continue this success and are already looking forward to the next marker in December.

Thanks to your support we have been able to do all of this for Joseph, please keep him in your prayers as we push on to December.

Joseph ha tenido mucha actividad durante el mes pasado.

Nuestro amigo Sam estaba inspirado a hacer su primer Triatlón y no solo lo completó, también logro juntar una buena cantidad de patrocinadores. Gracias a Sam y a todos quienes lo apoyaron.

Fuimos a visitar a Ver Contigo A.C. en Torreón, es una escuela que trabaja con gente con debilidades visuales. Pasamos un buen día allí y aprendimos a cerca de los ejercicios de estimulación que tenemos que hacer. Torreón está a más o menos 8 horas de SLP y quieren que vayamos mensualmente, entonces tenemos que ver cómo organizarnos.

Hemos estado leyendo varios libros del instituto de potencial humana en Philadelphia y hemos encontrado varios programas para ayudar a su desarrollo.

Parece que hay una mejoría en su visión, pero es difícil saber con certeza.

Estamos poniendo mucha atención en su dieta y hemos encontrado algunos suplementos que pueden ayudar. Recibimos mucha información viendo los documentales de the Truth About Cancer.

La quimioterapia ha sido difícil, hemos perdido algunas sesiones porque sus defensas han estado bajas y a veces es difícil encontrar una buena vena, es una cosa horrible para todos.

La buena noticia es que hemos llegado al marcador de 3 meses y realizado la resonancia magnética de nuevo. Ayer recibimos los resultados y parece que el tumor ha disminuido 12%! Estamos emocionados y el nuevo reto es disminuirlo más para la siguiente prueba en Diciembre.

Gracias a su apoyo todo esto fue posible, por favor, manténgalo en sus oraciones mientras seguimos en este camino.

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