Help Arden Jane and the Bogroff Family

For: Jimmy Bogroff
Organizer: Jessica Abblitt
Help Arden Jane and the Bogroff Family (Jimmy Bogroff)
$17,379
of $100,000 goal.
Raised by 278 donors
17% Complete

The Story

Sweet and sassy Miss Arden Jane was born in 2010 with Hypoplastic Left Heart Syndrome (HLHS) which is a rare congenital heart defect in which the left side of the heart is critically underdeveloped. This means Arden’s left side of her heart cannot effectively pump blood to her body.  In her short life Arden has spent a great deal of time in hospitals and undergone numerous surgeries and procedures.  She also gets sick quite easily. At only seven years old, this spunky lady has spent more time with doctors and in hospitals than a child should have to.

Having a child with high medical needs is a journey all its own and impacts every facet of life. In spite of this, the Bogroff family has chosen to pursue happiness, joy, and good memories. They have a deep faith in God that carries and lifts them through good times and bad.

On May 5, 2017 Pearcia took Arden into the OHSU Dornbecher Children’s Hospital ER after noticing some critical changes in her and she was eventually admitted to the ICU there. Multiple tests, diet changes, fluid restrictions, and still no answers as to what was wrong. On May 15th, she was transported via medical flight down to Lucile Packard Children’s Hospital at Stanford. May 19th they learned they were no longer getting a heart transplant evaluation as Arden’s nutrition wasn’t where they need it to be and were awaiting word if there were any other surgical options. This is the hardest part about transplants; one has to be a strong enough candidate to receive one.  May 21st Arden took a turn for the worse with blood tests confirming something was wrong and was transferred to the ICU at Stanford; Arden was in a fight for her life. That night, the doctors told Pearcia that Arden wasn’t responding the changes in medications and may not make it through the night. Very slowly, things slightly improved. She peed which means her kidneys were still functioning; labs would reveal that a UTI was not her only infection which impacted her ability to have any procedure done. May 24th she was finally well enough to have her PICC line put in. May 25th things improved further with report of infections being cleared, improved respiratory rate and kidney function. May 26th, things started to go downhill again with fluid retention, and regurgitation of her tricuspid valve. Through all of this time, the prayers were for healing and for Arden to be sent home. They were still working on gaining weight and losing fluid. On Friday June 2nd, we learned that she was once again holding on to too much fluid and not urinating and the doctors were not able to determine where the fluid was being held in her body. The hope was to get her to a discharge-able state to be sent home for end of life care. Monday June 5th revealed that due to the types and amounts of medication she was on, Arden’s palliative care team didn’t think they could get her to a discharge-able state. She would need to be in the hospital to receive her end of life care. Arden made the decision that she wanted to be at home in Oregon at OHSU for this care. As of this post, her PICC line has been placed and we are awaiting her transfer to OHSU.

On top of being faced with the unimaginable news about their youngest daughter, the Bogroff family is also facing unimaginable financial strain. The ICU medical flight from Stanford back to OHSU is about $65,000 which the family will have to cover. This fundraising campaign is to raise money for the Bogroff family for medically related expenses including: medical bills, new tires for multiple car trips to California and soon OHSU, gas, rent while missing work, groceries and food while away from home and the list goes on and on.  Please give what you are able to; every single dollar counts. On behalf of the Bogroff family, THANK YOU and please keep praying.

Fundraiser Updates

Posted on July 14, 2017

UpdateImage

Posted on July 14, 2017

Pearcia & Jimmy Bogroff welcome you to celebrate Arden Jane with them, Monday, July 17th @ 2pm. 

Resound Church
1400 NE 48th Ave. 
Hillsboro, OR 97124

Wear blue, not black.

Posted on July 10, 2017

Posted on July 10, 2017

From Pearcia 7/9/17 7pm:

Today Heaven met earth and collected one of its most beautiful saints. Arden is with Jesus, no pain, complete comfort, and happier than she has ever been. We are praising God she is experiencing these things and we mourn her physical loss. I miss holding her hand and her little grins, but I know I'll see her again. This has always been one of her favorite songs. I will always think of her when I hear it. Please continue to pray for our family as we process through it all and allow us some space to grieve. No plans have been made for a service yet.

https://m.youtube.com/watch?feature=youtu.be&v=JoC1ec-lYps

Posted on July 9, 2017

UpdateImage

Posted on July 9, 2017

From Pearcia 7/9/17 5am: 

Specific prayer requests for Arden: Jimmy and I take turns taking the night shift with Arden; he told me that she coughed up blood last night. When I spoke to her this morning, she said her throat and ear hurt. No idea what we will be able to do for her if she has an infection since she is on hospice.

When I spoke to her yesterday, she said she wasn't afraid of Heaven anymore. She used to be because she was afraid to be away from me and the family. We've reassured her that time is different in Heaven and she won't be away from us. We've talked about many other things as well, but Heaven is a hard concept for ANYONE to understand. I was grateful she wasn't afraid anymore though, as I hope no one is afraid of Heaven.

Also, please be praying for her nutrition. We are trying a couple different things to help her be at her best, and this is one of them. Pray she accepts the nutrition and her body responds in health. Thanks all.

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