Sweet and sassy Miss Arden Jane was born in 2010 with Hypoplastic Left Heart Syndrome (HLHS) which is a rare congenital heart defect in which the left side of the heart is critically underdeveloped. This means Arden’s left side of her heart cannot effectively pump blood to her body. In her short life Arden has spent a great deal of time in hospitals and undergone numerous surgeries and procedures. She also gets sick quite easily. At only seven years old, this spunky lady has spent more time with doctors and in hospitals than a child should have to.
Having a child with high medical needs is a journey all its own and impacts every facet of life. In spite of this, the Bogroff family has chosen to pursue happiness, joy, and good memories. They have a deep faith in God that carries and lifts them through good times and bad.
On May 5, 2017 Pearcia took Arden into the OHSU Dornbecher Children’s Hospital ER after noticing some critical changes in her and she was eventually admitted to the ICU there. Multiple tests, diet changes, fluid restrictions, and still no answers as to what was wrong. On May 15th, she was transported via medical flight down to Lucile Packard Children’s Hospital at Stanford. May 19th they learned they were no longer getting a heart transplant evaluation as Arden’s nutrition wasn’t where they need it to be and were awaiting word if there were any other surgical options. This is the hardest part about transplants; one has to be a strong enough candidate to receive one. May 21st Arden took a turn for the worse with blood tests confirming something was wrong and was transferred to the ICU at Stanford; Arden was in a fight for her life. That night, the doctors told Pearcia that Arden wasn’t responding the changes in medications and may not make it through the night. Very slowly, things slightly improved. She peed which means her kidneys were still functioning; labs would reveal that a UTI was not her only infection which impacted her ability to have any procedure done. May 24th she was finally well enough to have her PICC line put in. May 25th things improved further with report of infections being cleared, improved respiratory rate and kidney function. May 26th, things started to go downhill again with fluid retention, and regurgitation of her tricuspid valve. Through all of this time, the prayers were for healing and for Arden to be sent home. They were still working on gaining weight and losing fluid. On Friday June 2nd, we learned that she was once again holding on to too much fluid and not urinating and the doctors were not able to determine where the fluid was being held in her body. The hope was to get her to a discharge-able state to be sent home for end of life care. Monday June 5th revealed that due to the types and amounts of medication she was on, Arden’s palliative care team didn’t think they could get her to a discharge-able state. She would need to be in the hospital to receive her end of life care. Arden made the decision that she wanted to be at home in Oregon at OHSU for this care. As of this post, her PICC line has been placed and we are awaiting her transfer to OHSU.
On top of being faced with the unimaginable news about their youngest daughter, the Bogroff family is also facing unimaginable financial strain. The ICU medical flight from Stanford back to OHSU is about $65,000 which the family will have to cover. This fundraising campaign is to raise money for the Bogroff family for medically related expenses including: medical bills, new tires for multiple car trips to California and soon OHSU, gas, rent while missing work, groceries and food while away from home and the list goes on and on. Please give what you are able to; every single dollar counts. On behalf of the Bogroff family, THANK YOU and please keep praying.