THE STORY: In August of 2017, Jessica Greene, was diagnosed with two very rare blood disorders, PNH and Severe Aplastic Anemia.
Aplastic Anemia is so rare that it affects fewer than four out of a million people in the United States on an annual basis. It is a disease of the bone marrow that causes a deficiency of all three blood cell types-red blood cells, white blood cells and platelets. PNH is a rare life-threatening disease of the blood, characterized by the destruction of red blood cells, blood clots and impaired bone marrow function. The only cure for Jessica is a bone marrow transplant, with treatment being identical to that of a patient with cancer.
Jessica is a beautiful, smart, hardworking and caring young woman. She is 26 years old, born and raised in East Hampton, New York and a college graduate from Kent State University. Jess is the daughter of Gina Mulhern and Rob Greene and the sister of Robby Greene.
Things were going very well for Jess, as she looked forward to a bright future. She has a great job that she loves as a Senior Retail Research Analyst at Colliers International in New York City, and a very loving and supportive boyfriend.
After the August diagnosis, Jess had numerous doctor appointments. They began monitoring her blood counts weekly. In November of 2017, Jess had the first of two bone marrow biopsies. In December, her blood counts dropped dangerously low and was told that a bone marrow transplant was her only option. Jess’ mother, father and brother were immediately tested to see if they could possibly be a match to donate; unfortunately, they were not complete matches. On January 13, 2018, a search for a donor started through the National Registry.
THE PLAN: Jess will be treated at Memorial Sloan Kettering Cancer Center in New York City. Prior to radiation and chemotherapy, she must undergo embryo cryopreservation, which is a procedure that will allow her to have children in the future. The cost for this procedure is $16,000 and health insurance does not cover it. Expenses have been increasing at a rapid pace. She was also recently informed by her doctors that the donor search process will cost up to $20,000, another bill not covered by insurance. Once cryopreservation and the donor search is complete, the transplant will take place, which includes a six to eight week stay at MSK. Upon leaving the hospital, Jess must be quarantined for two months with a caregiver, providing 24/7 supervision. Her doctors say she will be out of work for approximately six months while her immune system regains strength. Disability insurance will cover a portion of her expenses, but not all. These expenses are going to be a heavy burden on Jess and any help is greatly appreciated. Our goal is to raise $60,000.
We will be setting up LIVE JOURNAL, which is a site for Jess’ friends, family and supporters to view and get updates regularly. We thank you for taking the time to read Jessica’s story and for your support. Please feel free to share as any help goes a long way.